u/NoAppearance7378

▲ 10 r/PregnancyAfterTFMR+1 crossposts

Anxiously waiting for genetic testing

Had a full on meltdown last night over the genetic testing we have yet to receive. Got the worst news a week ago today. My husband and I knew immediately what we had to do. Have my d&e tmrw and it feels like this nightmare is never ending.

We have done all the testing done. We will prolly get our blood work back first. Then a few weeks for the CVS results. But what if it is something genetic ?! What if we can’t have healthy kids!? What if there’s a 1/4 chance this happens again? I don’t know if I can carry other baby for 15 weeks just to have to do this all over again. We have no answers so why am I jumping to the worse scenario? Idk.

We want to try again as soon as possible but if this is a genetic condition then what? Who can afford 45k for IVF? This all just seems so unfair. This has been the most horrible experience and I feel like God is punishing me(I know that’s not the case just feels like it.) I don’t know if I’ll be able to handle the news that the possibly of this happening again is high. I just pray this happened spontaneously. I pray it’s nothing we carry. I never thought I’d be praying for trisomy 13 or 18. So unfair.

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u/NoAppearance7378 — 1 day ago

Holoprosencephaly Cystic hygroma

I am in shock. FTM to the happiest surprise. Went in for our NT scan after NIPT came back all low risk. NT also had 13 week anatomy scan added to it. When the tech was done she said she needed to get a better look to see if she could see babies kidneys since he was so tiny. Got the results back a few days later and he was showing abnormalities in his brain. Saw the perinatologist today and it was so much worse than we could’ve ever imagined. My boys brain just never formed properly. Did a CVS and that was so incredibly painful. I hope I never have to feel that popping feeling again. Dad and I are both absolute wrecks. I have no idea how you move forward with this. How do I deal with telling everyone the horrible news. I know there’s nothing I could’ve done, I know it’s not my fault. All I wanted was my baby. Will get a call to schedule the “interruption”. Cherry on top is insurance doesn’t cover it. What a mess.

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u/NoAppearance7378 — 8 days ago

We are between Ezra and Ezekiel(Zeke). I think Zeke is so cute but I think it might be kinda hard to say with our last name. Our last name starts with a “K”— think Keith. Name suggestions are also welcomed! Thank you!

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u/NoAppearance7378 — 25 days ago