u/No_Start3298

Hey yall, I wanna know if anyone shares such a strange and ungodly constellation of symptoms.

It started in 2023, after a period of high stress with chronic uticarias - spontaneous and inductible. It waxes and wanes for a while but suddenly came muscle pains. like the muscles tense up without any cause. They would ache and perticularky around the muscles would be dermatographia.

It starts to suddenlt get quite awful. Spontaneous “fibromyalgia like flares.” The dermatographia will suddenly become much more intense but with it comes full body pain, muscles everywhere pained, sensitive to touch, gi distress, and just overall awful awful episodes like this. as they die down, the dermatographia also improves.

Then, reactivity to Foods starts to spread to everything. bug bites look awful, eating food triggers weirs reactions, pain becomes chronic. now I just have chronic muscle and joint pain, small fiber neuropathy, and I’m honestly losing it.

Has anyone experienced a weird presentation like this. given the uticarias, allergy is considering mast cell issues despite negative bloodwork. i Just feel so alone in this presentation

Hey yall, I have to rant, for the sake of my own wellbeing.

I’m a caregiver to my mom, who was born with carebral palsy, and has a combination of associated neurological and psychological comorbidities.

My mom has been nothing but the best to me growing up, living on SSI, she made sure I ate before her, and she was protective of me during some traumatic situations.

Unfortunately, post 2020, there’s been signs of dementia. The only thing she really had to her name as a possession was her inherited home. It was nothing special, trust me, but quite literally her only wish was to pass it on to me. In 2020 she moved out because of the homes conditions - it was quite literally falling apart. She was having a mental health crisis at the time, so when she moved to section 8, she didn’t report the change to the SSA (likely cognitive issues being a factor). Well, I was a young 21 year old caregiver and didn’t know anything so I later had family friends move into the home for free, to save it from literally rotting, and we talked to a lawyer to transfer the property. What followed was absolute hell, as I was just trying to set up a contingency as a caregiver. That lawyer informed us that she couldn’t transfer the property to me, because she was on SSI, and that she was likely in overpayment subject to termination because the house had now become an asset since she moved…

I brought her to the SSA to communicate the mistake in 2023, while my mom is in the middle of delirium.

- She is forced to sale her only family connection (parents had died and most had abandoned her)
- SSA tells her to spend down her money to “improve her life”
-SSA makes a mistake and terminates her for a whole year without explanation
-They don’t answer phone calls
-We sale everything we bought during the spend down
-She loses access to TN choices during this decision
- We have the register of deeds call and explain their dumb mistake almost a year later
-I rack up thousands in cc debt to keep her housed
-I reeling from her diagnosis and loss of the family home, develop stress related health issues, can no longer go to school
-SSA gets establishes but they don’t back pay because of her overpayment, so she gains nothing from the sell of the house
-all of this and she wanted it to just be fixed so she could move back in

Idk, there’s much more to this, but I don’t even know how to explain it all. I’m in therapy because of all this. I’ve tried to make videos so she can communicate the injustice. I’ll probably never be the same after SSA made her diagnosis an absolutely awful traumatic experience. Given her condition, all she does is ruminate on the loss of her house and how she was treated.

I just really can’t with all this, and there’s no “justice” because it was her mistake. I just wish it didn’t have to be this way for us.

Sorry, I have to rant

Hey yall, I have to rant, for the sake of my own wellbeing.

I’m a caregiver to my mom, who was born with carebral palsy, and has a combination of associated neurological and psychological comorbidities.

My mom has been nothing but the best to me growing up, living on SSI, she made sure I ate before her, and she was protective of me during some traumatic situations.

Unfortunately, post 2020, there’s been signs of dementia. The only thing she really had to her name as a possession was her inherited home. It was nothing special, trust me, but quite literally her only wish was to pass it on to me. In 2020 she moved out because of the homes conditions - it was quite literally falling apart. She was having a mental health crisis at the time, so when she moved to section 8, she didn’t report the change to the SSA (likely cognitive issues being a factor). Well, I was a young 21 year old caregiver and didn’t know anything so I later had family friends move into the home for free, to save it from literally rotting, and we talked to a lawyer to transfer the property. What followed was absolute hell, as I was just trying to set up a contingency as a caregiver. That lawyer informed us that she couldn’t transfer the property to me, because she was on SSI, and that she was likely in overpayment subject to termination because the house had now become an asset since she moved…

I brought her to the SSA to communicate the mistake in 2023, while my mom is in the middle of delirium.

- She is forced to sale her only family connection (parents had died and most had abandoned her)
- SSA tells her to spend down her money to “improve her life”
-SSA makes a mistake and terminates her for a whole year without explanation
-They don’t answer phone calls
-We sale everything we bought during the spend down
-She loses access to TN choices during this decision
- We have the register of deeds call and explain their dumb mistake almost a year later
-I reeling from her diagnosis and loss of the family home, develop stress related health issues, can no longer go to school
-SSA gets establishes but they don’t back pay because of her overpayment, so she gains nothing from the sell of the house
-all of this and she wanted it to just be fixed so she could move back in

Idk, there’s much more to this, but I don’t even know how to explain it all. I’m in therapy because of all this. I’ve tried to make videos so she can communicate the injustice. I’ll probably never be the same after SSA made her diagnosis an absolutely awful traumatic experience. Given her condition, all she does is ruminate on the loss of her house and how she was treated.

I just really can’t with all this, and there’s no “justice” because it was her mistake. I just wish it didn’t have to be this way for us.

Sorry, I have to rant

I’ve been flaring significantly for a while. reactive to every food I’ve tried and even some drinks - which unfortunately now includes medications like antihistamines. Allergist is willing to try Cromolyn but I don’t have insurance - do any of yall know how to get this medicine?

Hey yall, wanted to check in with everyone to see if this is at least starting at a reasonable price.

A Red Toyota Solara SLE - 86000 miles. I don’t have much info on the car yet, but it looks to be in great shape, very clean, the dash hasn’t even cracked yet which is typical of these Solaras. While it is nice that it’s a convertible, the most desired thing is its reliability.

Not much more to share on the car, but at this listing price, and mileage, with make and model - is this something to consider?

Thank yall