1st Endoscopy

Hi, I’m getting my first endoscopy next week, and I’m a bit nervous. But I was just curious to see if this is a common practice. My appointment isn’t until 10am, but they’re requesting I arrive by 6:30am, is this normal? Did you guys have to do the same? And what is the reason? Also, I am getting sedated and SO anxious about accidentally ingesting liquids the day of, specifically when brushing my teeth the morning of the appointment. I am SO worried that I’m considering not brushing my teeth at all until after the procedure. Did any of you do the same or did you go ahead and brush before your appointment? If you didn’t brush, were the medical staff bothered by your morning breath or are they used to this? Thanks in advance!

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u/Odd-Yellow-5843 — 10 days ago
▲ 3 r/MPN

Searching for Answers

37/F

Hi, I am currently awaiting a hematology appointment due to persistently elevated WBCs and slightly elevated platelets, plus I have not been feeling well. Two rheumatologists didn’t think it was autoimmune. I do also have slightly elevated ESR and CRP. Currently seeing a GI specialist and getting an endoscopy soon, an abdominal ultrasound, and some CMP labs. This is a spreadsheet I created showing my 3 year labs. I don’t drink, smoke, or take any medications. I’ve had a normal PFT, normal heart echos, normal non-contrast brain CTs, and normal chest x-rays. The reason my doctor and I started wondering if it could be an MPN, is due to my 2024 ER visit, which I went in due to chest pain and cardiac like symptoms. The ER physician seemed more concerned about my labs than my heart though, and officially diagnosed me with Leukocytosis. He also really wanted me and my doctor to figure out the cause, and in my discharge papers I saw some of the causes for Leukocytosis which were MPNs or Leukemia. Which is why my doctor finally put in the hematology referral.

u/Odd-Yellow-5843 — 10 days ago

Progressive Microvascular Symptoms

37F

4’10

Non-smoker

Non-drinker

No meds

No diagnosis

No recent illnesses

I'm posting here because I feel completely stuck in the medical system. For the past three years, I’ve had a ton of weird, changing symptoms that point to a blood circulation or thick blood issue, but my primary doctor won't give me a hematology referral because my regular blood work numbers look "mostly normal" on paper. I recently got an abnormal blood smear report back that showed structural issues with my cells (like Burr cells and Anisocytosis), but nobody has explained it to me yet. I am actively having scary symptoms like chest pain and dark webs in my vision, and I really need help figuring out what this all means and how to get my doctor to take me seriously. 

SYMPTOMS 

Vascular & Extremeties:

• Erythromelalgia: Triggered by heat and physical activity. 

• Raynaud’s/Vasomotor Shifts: Alternating episodes of painfully cold, pale fingers and toes (toes will also turn slightly purple, but improve with movement).

• Facial Flushing & Paleness: Face will turn pale when I've been sitting for a while but as soon as I get up and become physically active it will get hot and flushed. 

Neurological & Head:

• Persistent Head Pain: Daily headaches, localized stabbing head pains, and pressure pain near eyes (happen at different times, not all at once). Daily dizziness. 

• Migratory Neuropathic Pain: Sharp throbbing pains and tingling that happens in different parts of my body at different times. 

• Auditory Changes: Pulsatile tinnitus, constant ringing, and chirping sounds, the chirping only happens in my right ear. 

• Transient Issues: A few times of sudden slurred speech or word finding difficulties. 

Ocular, Chest, & GI:

• Visual Cobwebs: Sudden onset of dark web-like floaters that move with my eyes, with a few instances of blurry spots in vision. Dark floaters have been persistent for two months. 

Cardiopulmonary: Resting tachycardia, paired with shortness of breath, and squeezing chest pain. Also shock-like chest pains. 

•GI: Intermittent early satiety

• Bone pain: Specifically in my right tibia, that comes and goes and will go on for days at a time. 

LABS will be posted in comments.

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u/Odd-Yellow-5843 — 27 days ago

Extremely Frustrated

37 F, 4’11, non-smoker, non-drinker, no meds, no current diagnosis, no current illnesses

Hi, can someone please explain my recent peripheral blood smear results and tell me whether they would make a hematology referral valid? I've been symptomatic for months, but it seems like my
PCM doesn't care to help me. I'm confused about why my labs show normal platelet counts, but the smear says “increased.” My PCM seems more focused on the labs than the smear, even though he specifically told me he’s not an expert in that area. I shared a post recently with more history and past labs, but I didn't get any answers on the smear results. Just based on my smear results alone, is this something that would require a hematology referral? Or what specialist besides rheumatology (I've seen two, and they both said it was not autoimmune), would you recommend? My symptoms are really affecting my daily life and I am very concerned about my health. I've been dealing with symptoms for years that are only progressing and my labs have persistently shown mild leukocytosis with sometimes increased platelets and hematocrit at the same time. I would really appreciate any suggestions.

u/Odd-Yellow-5843 — 1 month ago
▲ 0 r/haematology+1 crossposts

Desperate for answers

37F, 4’11, non-smoker, non-drinker

Since February 2023 I've been having consistently elevated WBC for no apparent reason, except for July 4, when I had a dental infection, I still don't know what's causing this. In September 2024, I went to the ER and the doctor was the first person ever to seem slightly concerned and the first to diagnose me with leukocytosis. He also wanted my PCM and me to figure out the cause. I've seen two rheumatologists who both said I did not have an autoimmune disorder. My autoimmune labs have only shown a positive ANA with a low positive anti-dsDNA and I have had slightly high CRP and ESR.

My symptoms have been headaches/sharp head pains, dizziness, pulsatile tinnitus, and A LOT of ear ringing. Speech troubles such as slurring words, itchy hands and feet (in November I was woken up with unbearably itchy hands and feet and was very sweaty), other times I've experienced itching after a shower. I also experience a lot of tingling and an increase in a prickly feeling in my hands and feet. Tiny black spots in vision. I also get migratory sharp throbbing pains throughout the body. Tachycardia while at rest. Shortness of breath. Chest pain (aching, squeezing, and sharp). I also experience intermittent early satiety. Bright red burning hands and feet, but they will also get painfully cold and pale.

I feel like symptoms are progressing and I'm developing new ones, I’ve been to the ER multiple times due to chest pain, but every time they say everything looks fine. I really want answers but I feel like no one is taking me seriously, except for the ER doctor in 2024.

I had a CBC with a peripheral blood smear on May 8 and it came back with some abnormalities. I've been trying so hard to wait for the pathology report to make sense of it and figure out what it means, but it's been two weeks and still nothing. Since I'm actively having symptoms, which seem to be microvascular in nature. I would like to see what you guys think might be going on. One of the new symptoms I've developed are dark cobweb floaters in my vision that move with my eyes. I've also been having shock-like chest pain that comes and goes for the past 4 days now, along with a cramping pain in my left foot.

Will post more labs in comments and the smear results.

u/Odd-Yellow-5843 — 1 month ago

Electric shock chest pain

37F, 4’11, non-smoker, non-drinker, no medications

Hi, for two days now I've been experiencing intermittent electric shock-like chest pains that last a second but are pretty painful when they occur, burning pain in the right thigh, and cramping pain in the left foot. Is this something to be concerned about or is it due to lack of hydration/electrolytes? I was diagnosed with leukocytosis two years ago, and due to my persistent but slightly abnormal labs for 3 years and vascular symptoms, I finally had a peripheral blood smear done that came back with some abnormalities but I'm still waiting on the pathology report. Any help would be appreciated!

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u/Odd-Yellow-5843 — 2 months ago

Smear

Hi, I was just wondering how long it typically takes for a pathologist to review a peripheral blood smear with some abnormalities? I had mine done on Friday and results were posted the same day, but I'm waiting on the actual notes. My PCM specifically requested a path review. It’s been 3 days and I still don't see them on my portal.

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u/Odd-Yellow-5843 — 2 months ago

Hi, I'm new here. So I just turned 37 about a month ago. I’ve been a stay at home mom since the age of 20. I REALLY want to make something of myself and feel accomplished in life. It stings a bit more when I see that my husband going on 41, is already on his second career. He was in the military for 20 years and is now a Firefighter/EMT. I feel shame when people ask what I do and my response is “I'm a stay at home mom.” I dropped out of high school in my junior year, and currently in the process of earning my diploma online. The thing is, even after all these years I STILL don't know what I want to get a degree in!! It's super frustrating! I want to do something that makes decent money, but I also want to make sure I truly enjoy it. How did you guys know? Any tips?! They would be greatly appreciated!

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u/Odd-Yellow-5843 — 2 months ago