u/Ok_Judgment671

Hi everyone, I wanted to share something that has been bothering me for almost 4 years now, because I genuinely still don’t know what’s causing it and I’m wondering if anyone else has gone through something similar.
Everything started after I got COVID for the first time. Since then, I began developing recurrent canker sores and lesions on my tongue, along with a constant burning sensation, almost like my tongue is irritated or “burned.” Sometimes the symptoms are milder, sometimes much worse, but I’ve almost never had a period longer than 10–15 days without symptoms.
I’ve tried pretty much everything:
B vitamin and B12 supplementation,
changing my diet,
cutting out alcohol,
avoiding acidic foods,
tracking possible food triggers,
different supplements and immune-support approaches.
Nothing has brought lasting improvement.
What’s interesting to me is that I strongly feel this may be connected to the immune system. Besides this, I’ve also been dealing with chronic fatigue for years, frequent viral reactivations (HSV), and immune-related issues in general. Oddly enough, during regular colds or infections, some of my symptoms temporarily improve, which has always seemed very strange to me.
I also feel like my tongue is chronically inflamed or hypersensitive — it’s not always a classic canker sore, but more of a persistent burning, stinging, irritated feeling.
Over the years I’ve done various tests, but I still don’t have a clear answer whether this is:
a post-viral issue after COVID,
an immune dysfunction,
a nutrient deficiency,
some type of autoimmune reaction,
MCAS / histamine related,
nerve inflammation,
or something completely different.
I’m curious:
Has anyone experienced something similar after COVID?
Did anyone manage to identify the cause of chronic burning tongue and recurrent sores?
Has anything actually helped?
Any experience or advice would really mean a lot to me, because after 4 years of constantly recurring symptoms, it’s becoming extremely exhausting.

Hi everyone, I wanted to share something that has been bothering me for almost 4 years now, because I genuinely still don’t know what’s causing it and I’m wondering if anyone else has gone through something similar.
Everything started after I got COVID for the first time. Since then, I began developing recurrent canker sores and lesions on my tongue, along with a constant burning sensation, almost like my tongue is irritated or “burned.” Sometimes the symptoms are milder, sometimes much worse, but I’ve almost never had a period longer than 10–15 days without symptoms.
I’ve tried pretty much everything:
B vitamin and B12 supplementation,
changing my diet,
cutting out alcohol,
avoiding acidic foods,
tracking possible food triggers,
different supplements and immune-support approaches.
Nothing has brought lasting improvement.
What’s interesting to me is that I strongly feel this may be connected to the immune system. Besides this, I’ve also been dealing with chronic fatigue for years, frequent viral reactivations (HSV), and immune-related issues in general. Oddly enough, during regular colds or infections, some of my symptoms temporarily improve, which has always seemed very strange to me.
I also feel like my tongue is chronically inflamed or hypersensitive — it’s not always a classic canker sore, but more of a persistent burning, stinging, irritated feeling.
Over the years I’ve done various tests, but I still don’t have a clear answer whether this is:
a post-viral issue after COVID,
an immune dysfunction,
a nutrient deficiency,
some type of autoimmune reaction,
MCAS / histamine related,
nerve inflammation,
or something completely different.
I’m curious:
Has anyone experienced something similar after COVID?
Did anyone manage to identify the cause of chronic burning tongue and recurrent sores?
Has anything actually helped?
Any experience or advice would really mean a lot to me, because after 4 years of constantly recurring symptoms, it’s becoming extremely exhausting.