u/OwnPotential

I'm newly on dialysis and curious on how people find work while getting treatment. I hear a lot people just opt to get disability but how do people do it and find work.

At my clinic the earliest they can seat me for hemo is 7am and I finish 11-12pm so makes me concerned about being able to find a 9-5 if I am not able to work two out of the five work days.

Also I'm not too familiar with US work laws at the moment when it comes to this stuff. Is the employer not able to consider my health when hiring me?

I understand there are home treatments and PD to consider but the short term i'm not opting for that at the moment. There have been issues with treatment at the clinic I would feel more comfortable with the nurses handling.

Well thank you for your time in answering my questions.

Edit: oops I meant "while on dialysis" for my title

Hi, I don't use reddit too often. A little context about my situation. Had CKD about two years now and newly started on dialysis.

One week of treatment in the hospital and one week out patient clinic.

My latest treatment, when I got home, I just felt drained, no energy and no motivation to do anything but sleep.

Is this a common feeling? Does it get better over time while on dialysis?

I'm a gamer but even gaming I'm rarely in the mood for now. Maybe I should ask my social worker to speak to a therapist.

I have been diagnosed with CKD for over a year now. All the meds i had to take got to me and I stopped taking them for over a month and I ended up getting hospitalized due to troubled breathing/excess fluid in lungs.

The doctors have decided to start me on dialysis while in the hospital and I was recently discharged. My first out patient treatment is tomorrow morning and it will continue 3x a week.

I'm not sure if I would be able to keep my job with my treatments. It is a position where I can work from home at the moment but still, I wanted to advance my career but I'm concerned that treatment will hinder my ability to seek better career opportunities.

Is anyone able to share their work/life with dialysis and maybe some travel stories? I've had dialysis education classes where the nurse told me I would still be able to travel and even go on cruises because there are dialysis center all over or so the nurse says.

A little help setting expectations would be appreciated.