u/Prize_Trash2631

I am currently in the middle of a modified natural FET cycle. I did 60 days of hormone suppression with Orilissa to suppress my endo before going right into this cycle. I have been on once a day Follistim injections and I didn’t realize it would cause me to mature so many follicles! It’s uncomfortable while they are all growing, just like it was for stims, but what I’m really worried about is ovulating all of them at once, instead of having them aspirated like during the egg retrieval. 10 follicles rupturing at once during ovulation sounds soooo painful! I am working full time, have a very physical job, and am on call the next 7 days so will be working after hours/extra hours in addition to my long shifts during the day.

Has anyone else been in a similar situation and what was it like??

I did 60 days of hormone suppression on Orilissa to treat my endometriosis after having 2 miscarriages after both of my FET’s. I immediately went into a modified natural cycle starting Follistim on “day 1.” I did 4 days of 75 units, then 3 days of 150 units. Today I am day 8 and I have no lining growing and no follicles growing at all still! My previous FETs were natural and I have never had any problems growing my lining or follicles. I feel so frustrated, especially because I took off work for the week I was expecting my transfer to be because I do a lot of heavy lifting at my job and that always makes me so nervous right after my transfer. Originally my clinic told me I was going to do a medicated cycle and had my appointments and FET procedure already scheduled. Now it looks like it might not happen that week and I just feel frustrated that nothing is happening! If anyone else went into a modified natural cycle right after hormone suppression with Orilissa, how long did that cycle take you?? My nurse just keeps saying I’m the only patient she’s had on Orilissa so she doesn’t know, and I only get to talk to my doctor during consult appts, which I wouldn’t be able to get any time soon.

Update: my estrogen today is up to 95. My RE is having me continue the same dose of Follistim 150units a day for 3 days and then go in for another monitoring appt.

Day 11 update: My lining is still thin at 5.5mm. I now have 10 follicles growing which is insane. The dominant one is 11mm.

What do you guys do when you have to fly with IVF meds that need to be kept refrigerated? I will be traveling for 10+ hrs without access to a refrigerator. Do you have a cooler/medication canister, or any tips you recommend? I’m also kind of worried about keeping the room temp meds at an appropriate temperature because I will be traveling to Florida in July! It’s about an 8-12hr timeframe that I will not have access to a refrigerator and it will be hot. The meds I need to bring are Follistim and Menopur which are refrigerated, and Ganirelix, Pregnyl, and progesterone in ethyl oliate which are room temperature.

Can anyone else relate? I am a nurse at a hospital; I am responsible for direct patient care. As an employee of my hospital, I have zero bereavement leave for miscarriage. If the time ever comes, I have zero maternity leave. I know I could use FMLA for maternity leave , but that is unpaid and I am using most of my 12 weeks (which doesn’t reset- it takes 12 months to earn back each minute I use) for IVF. For miscarriages, I am SOL. I have spent the past 17 years of my life working full time taking care of others, and I feel like I am treated like a robot in return. I have shown up to work while actively miscarrying, while going through stims, while going through hormone suppression, while recovering from procedures, while getting devastating news during the afternoon phone calls from the clinic, day after day, year after year. It just seems so wrong 💔

I need to rant a little! Can anyone else relate? I am a nurse at a hospital; I am responsible for direct patient care. As an employee of my hospital, I have zero bereavement leave for miscarriage. If the time ever comes, I have zero maternity leave. I know I could use FMLA for maternity leave , but that is unpaid and I am using most of my 12 weeks (which doesn’t reset- it takes 12 months to earn back each minute I use) for IVF. For miscarriages, I am SOL. I have spent the past 17 years of my life working full time taking care of others, and I feel like I am treated like a robot in return. I have shown up to work while actively miscarrying, while going through stims, while going through hormone suppression, while recovering from procedures, while getting devastating news during the afternoon phone calls from the clinic, day after day, year after year. This is so wrong! 😢

I am about to go into a very different FET cycle. For background, I have unexplained infertility and have done two natural FET cycles (trigger shot and progesterone suppository only). We transferred Day 6 AA expanded blast or hatching blast embryos. They both resulted in pregnancy but I miscarried both at around 5.5 weeks. After that I did a RPL workup and had intrauterine scarring cut out, treated chronic endometritis with doxycycline, and was diagnosed with silent endo and am almost finished with 60 days of Orilissa and NEA suppression.

There was a lot of miscommunication from my clinic about this upcoming FET cycle so it’s been a rollercoaster. First they told me I would be doing a medicated cycle and booked out my monitoring appts and transfer. Then they said no, my doctor wants to do another natural cycle. Then, a week before I am supposed to start my cycle my nurse calls me and gives me an overwhelming list of meds I am going to be on for my “natural” cycle. I am honestly 100% down to do whatever will actually work, but it’s just been a lot to take in with all these changes in plans, and the progesterone in ethyl oliate is not covered by insurance and it is EXPENSIVE. Anyway, has anyone else done this medication protocol for their FET cycle and had success??

I will be doing monitoring every 1-2 days during my follicular phase and my doctor will instruct me how to take/adjust the stim injections.

Follistim- 75 units per night starting day 5

Menopur- may need halfway through

Ganerelix- may need, they told me to order 3 doses to start

Pregnyl for trigger

Progesterone in ethyl oleate (not in oil), compound drug, start 2 days after trigger and take IM every day until 10 weeks

Oral prednisone, start 2 days before transfer

Lovenox injection, start 2 days before transfer

Claritin, daily after transfer

Pepcid, daily after transfer

I am about to go into a crazy FET cycle after hormone suppression with Orilissa for endo….it is “natural” but I will be on 8 meds. One of them is progesterone in ethyl oleate instead of in oil. My nurse said that my doctor prefers it in her protocol for those still struggling to achieve a live birth. I miscarried after both of my previous euploid transfers. Had anyone else’s doctor done this? I definitely want to do what will give us the best chances, especially after everything we have been through! The progesterone in ethyl oleate is just so crazy expensive so I hope it is worth it! For background my previous FETs were way more natural- I only took a trigger shot and vaginal progesterone- but that was before we knew I had silent endo and we did the hormone suppression. So I’ve never done any IM progesterone before.

I am about to go into a crazy FET cycle after hormone suppression with Orilissa for endo….it is “natural” but I will be on 8 meds. One of them is progesterone in ethyl oleate instead of in oil. My nurse said that my doctor prefers it because she thinks it may be more effective especially in those still struggling to achieve a live birth. I miscarried after both of my previous euploid transfers. Had anyone else’s doctor done this? I definitely want to do what will give us the best chances, especially after everything we have been through! The progesterone in ethyl oleate is just so crazy expensive so I hope it is worth it! For background my previous FETs were way more natural- I only took a trigger shot and vaginal progesterone- but that was before we knew I had silent endo and we did the hormone suppression. So I’ve never done any IM progesterone before.

Has something similar ever happened to anyone else? This is really scary!

I am doing 60 days of Orilissa and NEA for endo suppression for my next FET. I only have a week and a half left. Pretty much the whole time I have had night sweats every night which sucks but I can deal with that. Last night in the middle of the night I started having nausea and really bad body aches. The nausea was constant and felt like at any moment I could throw up but I never did. That eventually went away but the body aches did not. I had to call out of work today which I never do because the pain is so bad that I can hardly get out of bed. The pain is so bad I can’t sleep either. I sent a message to my nurse which she didn’t answer and is so unlike her, maybe she is away? I’m debating whether to go to urgent care, the pain is so bad! Has this happened to anyone else? I’m scared!

Has anyone ever tried PRP for hair loss? I’m considering it because after almost 3 years of IVF I have lost 50% of my hair and have bald spots and I can’t use any meds for it! 😭

My husband and I have been TTC/doing IVF for unexplained infertility for almost 3 years. I recently miscarried twice, in December and February, after 2 euploid FET’s. There have been a lot of other difficulties in our journey starting with 4 failed IUI’s, a surgery to remove a pre malignant lesion on my cervix, and recent diagnoses of Asherman’s, chronic endometritis, and endometriosis. I am currently doing hormone suppression putting me into medical menopause to try to suppress the endo for 60 days before another FET. Also doing abx and a repeat biopsy for the endometritis. Needless to say, I have been going thru a lot the past few years! All of my friends have kids and I stopped hanging out with them bc they never go anywhere without their kids and it became too painful for me. IVF and miscarriage is so isolating.

I was devastated to find out in March, a month after my last miscarriage, that my sister in law is pregnant. My family is very small, I just have one brother and my younger male cousin. Also mom, grandma, 1 aunt & uncle- that’s it. Now I feel like I no longer can be comfortable in my own family because this pregnancy/soon to be baby is in my face/all I can think about with my family during holidays etc. I’ve been doing my best to wrap my head around that.

What makes this harder is I don’t even like my SIL and my brother and I have gotten less close since they have been together. I find her to be very judgmental, entitled, selfish, and a bit crazy at times. She’s not afraid to express her often ignorant/hurtful opinions to myself and my mom when she knows we have differing views and what she is saying is offensive to us and that has definitely caused a rift for me. My mom just wants to keep the peace and is close with all of us. I recently opened up to my mom about my struggles with IVF and miscarriages and she is very supportive. I asked my mom to talk to my SIL about my journey so she would understand the need to be sensitive around me (I didn’t want to be announced to). From her opinions I was afraid she would be one of those people who believe doing IVF is a sin because it is “playing god” but thankfully she was more supportive than my mom and I expected.

Now, I just found out she is having a baby shower in June and is inviting me. Her baby is due in August. My first baby was due in August. My second baby was due in October. I just don’t know if I can go to the baby shower. I would be miserable and heartbroken and either completely detached or crying. My mom is expecting me to go bc my SIL “doesn’t have a lot of people.” I don’t see how what I do really matters. She is going to be happy and have a baby whether I go to the baby shower or not. Meanwhile it would be heartbreaking for me. It seemed like it is going to be a women’s only shower which would make it way worse bc I wouldn’t have my husband there to support me.

Baby showers are the worst 💔💔💔💔💔💔

I don’t think people who haven’t experienced this kind of grief and loss understand that if we don’t go to a baby shower it isn’t because we are just being selfish.

My husband and I have been TTC/doing IVF for unexplained infertility for almost 3 years. I recently miscarried twice, in December and February, after 2 euploid FET’s. There have been a lot of other difficulties in our journey starting with 4 failed IUI’s, a surgery to remove a pre malignant lesion on my cervix, and recent diagnoses of Asherman’s, chronic endometritis, and endometriosis. I am currently doing hormone suppression putting me into medical menopause to try to suppress the endo for 60 days before another FET. Also doing abx and a repeat biopsy for the endometritis. Needless to say, I have been going thru a lot the past few years! All of my friends have kids and I stopped hanging out with them bc they never go anywhere without their kids and it became too painful for me. IVF and miscarriage is so isolating.

I was devastated to find out in March, a month after my last miscarriage, that my sister in law is pregnant. My family is very small, I just have one brother and my younger male cousin. Also mom, grandma, 1 aunt & uncle- that’s it. Now I feel like I no longer can be comfortable in my own family because this pregnancy/soon to be baby is in my face/all I can think about with my family during holidays etc. I’ve been doing my best to wrap my head around that.

What makes this harder is I don’t even like my SIL and my brother and I have gotten less close since they have been together. I find her to be very judgmental, entitled, selfish, and a bit crazy at times. She’s not afraid to express her often ignorant/hurtful opinions to myself and my mom when she knows we have differing views and what she is saying is offensive to us and that has definitely caused a rift for me. My mom just wants to keep the peace and is close with all of us. I recently opened up to my mom about my struggles with IVF and miscarriages and she is very supportive. I asked my mom to talk to my SIL about my journey so she would understand the need to be sensitive around me (I didn’t want to be announced to). From her opinions I was afraid she would be one of those people who believe doing IVF is a sin because it is “playing god” but thankfully she was more supportive than my mom and I expected.

Now, I just found out she is having a baby shower in June and is inviting me. Her baby is due in August. My first baby was due in August. My second baby was due in October. I just don’t know if I can go to the baby shower. I would be miserable and heartbroken and either completely detached or crying. My mom is expecting me to go bc my SIL “doesn’t have a lot of people.” I don’t see how what I do really matters. She is going to be happy and have a baby whether I go to the baby shower or not. Meanwhile it would be heartbreaking for me. It seemed like it is going to be a women’s only shower which would make it way worse bc I wouldn’t have my husband there to support me.

Baby showers are the worst 💔💔💔💔💔💔

I don’t think people who haven’t experienced this kind of grief and loss understand that if we don’t go to a baby shower it isn’t because we are just being selfish.