r/recurrentmiscarriage

Looking for some hope! Has anyone here had recurrent pregnancy loss and endometriosis and gone on to have a successful pregnancy?

Id love to hear:

How many losses you had?

Your endo stage / whether you had surgery

What you did differently during the cycle you conceived (meds, progesterone, baby aspirin, supplements, etc.)

Anything you did after ovulation that you feel helped

I know everyone is different, but I’d really love to hear some positive stories from people who have been through something similar.

Tw: pregnancy loss

I am 30 in the US and have been ttc since Jan 2025. I have had 3 pregnancies all conceived on 1-2 try and all ended before a heartbeat/fetal pole could be detected. All my rpl testing has been normal but my pcp suspects I have endo. I have some questions about this and am hoping someone out there can tell me they’ve had success with it. I don’t want to do ivf (can’t afford it) and there are no REIs at the only academic medical institution in the state. I’m hesitant to go to a private rei because I don’t want to be pushed into ivf just to have more failure. I currently see an OB Gyn.

From what I’ve read, women with endo have more occurrence of fertility issues including miscarriage, but treatments of endo (surgery, suppression) have not shown conclusive influence on pregnancy outcomes either due to lack of data or due to some root cause that precedes both issues that is not addressed by treating endo alone.

What have your doctors said about this? Do any recommend surgery for rpl, or just for pain management? Or is immune suppression recommended? And if yes, then how does that address progesterone uptake issues?

I feel so lost. Wondering if anyone else in the “unexplained” camp is spinning their wheels on this like I am. Feels like science hasn’t done much investigation into this and no one really knows what even causes endo in the first place.

I had a complete and natural miscarriage at 6w 5d on 3rd August. This was confirmed at the hospital on the 6th August. I didn't need any medication or surgery. I have taken a pregnancy test today and its negative. I am not ready to try again just yet as I am in a dark place. I hope to try again in a couple of months.

I an 33yo and don't have any children. I will be 34 in January. I want to know if anyone has had a healthy pregnancy and birth following their first mc. I have seen many stories about recurrent mc's and this pushes me into a darker place. Any good news stories from those who tried again again within 3 ti 6 months?

I'm considering participating to a clinical study that investigates Prednisone as a treatment for recurrent pregnancy loss. It means I'd get assigned to taking Prednisone (or a placebo) for 8 weeks at the beginning of the pregnancy.

I've had 3 first trimester MMCs in the past and for two of them I ended up needing emergency surgery due to excessive bleeding.

I am a bit hesitant as Prednisone is an immunosuppressant and could be problematic in case I need surgery yet again.

Do you have experience with Prednisone as treatment for your RPL? What were the outcomes? What dose did you take? Did you experience side effects from taking it?

Thanks!

I’m currently experiencing my 4th miscarriage - had what should have been my 10 week apt Monday and it turns out growth stopped at 8 weeks. I had been on progesterone so I’ve stopped since then and plan to take the misoprostol tomorrow. The anora test was brought up, so I think we’ll try that … just got off the phone with insurance and of course it’s not covered so hopefully it’s worth it? Curious about others experience with the test and how it helped with conceiving in the future.
For some extra info, I had a healthy pregnancy in 2020, I’ve had an HSG procedure since, and genetic testing that came back normal. Just feeling at a loss on where to go from here :(

I had a very low HCG at 17 dpo (88). My pregnancy tests are also not getting dark. I went for my second HCG this morning. Waiting on the results, but I know this will end with a miscarriage. It will be my 4th. I am on progesterone and am wondering if this keeping the miscarriage from starting? I haven’t had any bleeding yet. I just want this to be done with so we can figure out next steps. :(

I'm looking for any mantras that have been helpful for you all. Before all of my losses "I'm pregnant until someone tells me otherwise" helped a lot but now I know more. Is there anything that's helped you?

Thats it. I am a horrible person. Unless you've suffered recurrent loss and genuinely deserve a baby....I dont even care that youre pregnant. Please get out of here. I am SO TIRED of everyone else getting their 3rd, 4th, 5th child...and then have the audacity to say "your time will come". F off.

Hello everyone!! Had d&c last July 7. Just wondering when is the best time to try again? Wanna hear your success stories in conceiving your rainbow babies.

Had an ultrasound this morning that confirmed it’s not viable. Went to school (I’m a teacher) and people were announcing/talking about their pregnancies and principal said “there will be so many new babies this year!”. That was supposed to be me too. Salt to the wound.

This was in June. I also had a MMC in February earlier this year. I feel absolutely numb reading the report the hospital has just sent me. My husband is out with family today and all I can think of is how if I tell him when he gets home, he'll secretly believe it's my fault, that this has happened because I'm past having babies (I'm 36) and he needs to find someone else younger.

I feel like all the grief has just come roaring back. But it was my fault. My body caused it. I desperately want to try again but what if this happened because my eggs are expired? What if it keeps happening?

Today I got a Saline Infusion Sonography (SIS) test, and I found out that I have a polyp on my uterus..I am going to have it removed. My question is has anyone who has had difficulty conceiving had a polyp removed and then immediately been able to easily get pregnant? Just curious to see if that’s causing possible infertility

Unfortunately I’m going through my 4th loss. I had 2 miscarriages, then one successful pregnancy, and then 2 more mc as we tried for our second child. The last miscarriage I had a d&e and they tested the embryo and it came back normal female but there was a note that it could’ve been contaminated with my blood. The RE believes that was the case and that it was an abnormal embryo. I’ve had a ton of testing done and everything came back normal: thyroid, clotting disorders, semen analysis, hormones, a1c, karyotype, hysteroscopy, ultrasound, endometrial biopsy. Now I’m seeing a different RE, who told me the next steps would be to do MORE testing, specifically endometriosis blood test ($700), and immunology testing ($1,850). My first instinct was to just say eff it and go straight to IVF with PGTA testing, but I really don’t know what to do. Looking for advice and others experiences…

TW: MMC, MC
Wondering if there is any hope or if I should prepare myself for a second MC in five months.

At 5w5d, I experienced a fair bit of bleeding while on the toilet and then spotting for 24 hours. Cramping accompanied the bleeding for about three days and my other pregnancy symptoms (bloating, fatigue, nausea) have gotten better. For context, I had cramping at 6 weeks for my MMC.

I went in for an ultrasound at 5w6d and they saw an empty gestational sac with nothing in it. That same day, my HCG was about 12,500. 48 hours my HCG had gone up to over 20,000 (65% increase). My OB said that since my HCG is rising appropriately, it’s seeming like a healthy, normal vaginal pregnancy. However, from what I’ve read online, at 12,500 HCG, at least a yolk sac should be visible. Has anyone had a similar experience of high HCG with nothing appearing in the gestational sac? Trying to decide if I should trust the hope my OB is giving me or brace myself for a heartbreaking second ultrasound this Friday.

TW: LC and pregnancy

Have you been referred to MFM for pregnancies after loss?

I have one LC from my first pregnancy that was uncomplicated up until the end in which I was induced due to hypertension and had post partum pre eclampsia. I then had three pregnancy losses - two blighted ovums and a mmc due to turners. I did almost all of my rpl testing through my ob who was so supportive in testing everything I asked. She referred me to a generic counselor for karotyping but that all came back normal other than that I hadn't seen any other doctors or specialists. I am now pregnant again and have stuck with my normal ob throughout the pregnancy. She never referred me to mfm through the first trimester however due to an incorrect measurement on my anatomy scan I was referred at 19 weeks. I saw the mfm and they confirmed baby is measuring perfectly normal but they are keeping me as a patient (along with my normal ob) due to my rpl and history of pre eclampsia and small birth weight of my first child. It just feels weird that I wasn't referred at the beginning as the reasons they are keeping me as a patient have been known since the beginning. Everyone I know that went to mfm for pregnancies after loss "graduated" after the first trimester and stopped going. Anyone else have something similar?

hi there, I’m currently going through a natural miscarriage I was supposed to be 10 weeks and baby stopped growing at 6 weeks. The doctors missed the first ultrasound where the baby’s heartbeat was too low. I kept bleeding and then they told me it was a miscarriage. I feel like I passed mostly everything over the weekend but I’m currently still clotting and it’s been day 5 at this point. My legs hurt but aren’t different colors they just feel uncomfortable.
I was supposed to get a d&C but they cancelled it today due to the fact that my ultrasound showed mostly everything was gone.

How long does the bleeding stop? And when do I return to normal life? I feel like these doctors aren’t helpful

TW: pregnancy

Here we go again friends. Just had my very very light test at 11 DPO (wondfo early test strips). So faint that I will take a FRER tomorrow to make sure but…it’s very daunting and anxiety inducing to be here again.

It’s been 5 cycles since my last loss, I keep telling myself to not get attached but also trying to not be too negative. It’s hard. This is my third pregnancy, no LC

I guess I’m just venting, but if anyone has success stories of having an LC after two chemicals let me know, could use some positivity.

Being in this boat is really hard, just waiting for the other shoe to drop. How nice it would be that we all had a chance to live through a pregnancy from naivety and color lenses instead of fear and anxiety💔

I’ve had four miscarriages, one of which required a D&C, and I hate admitting this, but whenever I see someone who is pregnant or holding a newborn, I feel this overwhelming mix of jealousy, anger, and sadness. Sometimes it hurts so badly that I can physically feel it.
I’m still young, and what makes it even harder is that there doesn’t seem to be a medical reason why this keeps happening. I’ve been to fertility clinics and specialists, and they’ve all told me that I have great fertility. But somehow, I keep getting stuck in the same heartbreaking cycle: I get pregnant, I get my hopes up, and then I lose the baby.
It hurts more than I know how to explain. And on top of grieving the babies I’ve lost, I feel guilty for being jealous of other mothers. I don’t want to feel this way, and I don’t wish anything bad on anyone. I’m genuinely happy for people who get to have their babies. But seeing them sometimes reminds me of everything I’ve lost and everything I desperately want.
I feel like I’m carrying so much grief, jealousy, anger, and guilt all at once, and I don’t know how to make it hurt less.

I’m 27 and was diagnosed with mild/focal adenomyosis after dealing with recurrent pregnancy loss. I have regular cycles, ovulate every month, and get pregnant pretty easily, but I’ve now had 5 losses, most around 4 weeks.
I had my first child without any issues, and I’ve wondered if something changed postpartum that may have contributed to the adeno. I also have basically no adenomyosis symptoms. My periods are regular, and I don’t have the heavy/painful periods I usually see people describe.
My OB has checked my progesterone over the past couple of years, and it seems to be getting progressively lower, although still high enough for me to ovulate. Everything else has looked good: eggs/ovaries, uterine lining, other bloodwork, and my husband’s semen analysis.
It feels like getting pregnant isn’t the issue, staying pregnant is.
I keep seeing women with adeno/RPL mention progesterone supplementation helping them finally maintain a pregnancy. Has anyone here with mild adenomyosis and very early/chemical losses had success with progesterone? If so, when did you start it, what dose did you use, and how long did you stay on it?
I’d really love to hear success stories or experiences from anyone with a similar situation.

I’ve had 3 losses and one healthy 21mo old. I found out I was pregnant at 10dpo with a very faint line. Today I went for my hcg draw at 17dpo and it was 88. In the healthy pregnancy, it was over 346 at 16dpo. I just know this 88 is too low, and am bracing for another miscarriage. I truly cannot believe this will be my 4th. We’ve done all the RPL testing. My husband had a sperm analysis and everything has come back normal and looked great. I’m at such a loss. I think we’re headed to IVF.