r/TTCEndo

I’ve been TTC for 2 years now and have both adenomyosis and endometriosis. I’m starting IVF next month and just wanted to hear from anyone who’s been in a similar situation.

I’ve had 2 surgeries for endo, one of which included a dye test/tubal flush and everything was clear. My fertility doctor thinks the adenomyosis may actually be causing more of the issue, especially since I’ve never been pregnant before, so it could potentially be more of an implantation issue.

For those with adeno, did you ever manage to get pregnant naturally? If so, did you do anything differently that cycle or in the lead up?

And for those who went through IVF, how many transfers did it take before you got pregnant?

Obviously I know everyone is different and there’s no magic answer, but I’d really love to hear other people’s experiences, especially anyone who had never had a positive test before starting IVF.

Thanks in advance :)

Looking to start IVF.
Did anyone have success not suppressing Endo prior to egg retrieval? Trying to decide if I should suppress prior or just go ahead and do egg retrieval then suppress prior to transfer.

Here's a long and rambling story about our IVF journey and everything that led up to it - and why it might be time to call it quits. Can anyone relate? Does anyone have any insights or humor or hope to add to what is feeling bleak to me now? I wrote this in a stupor this morning as a way to cope. I know it sounds whiny. I am grateful to have the things I do have, even if that doesn't come through here. I'm hoping for someone to understand. Totally get it if this is too damn long.

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It started with our wedding. I can’t help but feel that getting married on Friday the 13th was an omen. We didn't care about the date at the time. It was during Covid and the only date available. My husband's back went out the spring before our summer wedding, which started the cascade, a cascade that won’t seem to end or even slow. What came first after that? The water leaking in through our roof? My husband bought the house in his late twenties and didn’t have enough money to fix the roof, and then put it off, and put it off, and put it off some more, until I came along and pushed. Until it was an emergency fix during the pandemic when prices were through the literal roof.

He was on the fence about kids because of his back pain — pain that lingered after the herniated disc. He was so dire during those years. He said once that he wasn’t sure he wanted to have a kid if he couldn’t lift the kid. I said people in wheelchairs had kids. He seemed distant and wouldn’t explain his rationale. Finally, on our trip to Maine, shortly after our dog was diagnosed with cancer and had surgery too, shortly before our way-too-expensive emergency house renovation, he relented. That’s what it felt like — not two people coming together with hope for the future, but more like a sigh. A collapsing. I was already exhausted, and we had barely begun. I can only imagine that he was exhausted too.

OK, so he wanted to have a kid (with reservations), but he didn’t want to start trying until after the renovation. He feared our child having issues with us as parents, like he had issues with his parents; he feared not being the father he wanted to be. I told him that if he was having those thoughts, he’d be a better father than most. I remember us debating whether or not to add the spare room (for a possible child) or to make my office larger. Ironically, I was afraid of adding the spare room only to realize we couldn’t have kids. We were lucky enough to have choices, because we had been saving for years, though we had no way of knowing when we started saving that it would cost an arm and a leg. I keenly remember standing there with the contractor and alluding to our conundrum, as if the guy understood. I also remember trying to sleep while the roof was torn off the second floor — literal wind flowing down the staircase; the plastic sheeting shivering. What a metaphor.

If only it were as simple as deciding whether or not to add a room for a child — if only that could decide our fate. I was a writer at the time, and figured I would always need an office. I had no idea that I would abandon that dream too.

All throughout those years — (did it start the year after our wedding? I think so) — I had pelvic pain on and off and blood in my urine. I avoided going to the gynecologist again after the first few times, because if you’ve had a terrible gynecologist, you know. I did get tested for the blood in my urine; it was another one of my autoimmune diseases that eventually improved. The test required a urologist to stick a literal mini camera up my urethra. To this day, I feel like I imagined the balding man looming over me while I displayed my bare vagina to the world. But it was just another real semi-bizarre medical incident.

The cyst began to grow, though I didn’t know it. I was in and out of the ER about 3-4 times over two years with intense bursts of pain that caused me to collapse into a ball. It was the cyst torking, my ovary twisting on itself. They said if I wasn’t puking or passing out, it wasn’t a true emergency that required surgery. But then, the last time it happened, shortly before the renovation wrapped up, probably during the month that I was painting the entire upstairs by myself (because of my husband's back), I went to the ER again — and this time, they said I had a 7 cm cyst on my left ovary and needed to see a gynecologist.

The new gynecologist I found told me I had endometriosis and would need the chocolate cyst (chocolate because it was filled with old blood) and likely my left ovary removed. I started crying in her office. She looked at me like I had two heads. I am adopted and had just started getting in touch with how much I wanted a family of my own — and a biological connection. I had just convinced my husband to start trying, right around then I think, if I remember correctly. Or maybe it was after that appointment that he finally realized it might be dire, and we had better try. My adoptive mom adopted me because she had endometriosis, too.

I was 34 at the time. Oh, how young that seems now!

I got a second opinion, feeling in my gut that two ovaries were needed to get pregnant, in an ideal world, even though both gynecologists laughed off my concern and anxiety. I saw an excellent surgeon (though she wasn’t an excision specialist) who finally explained the gravity of the situation to me, and said that yes, preserving my left ovary as much as possible was paramount if I wanted to get pregnant. She was sane, finally. But I could tell in her voice that my endo diagnosis was more serious than I had imagined. I didn’t yet realize how serious it was.

She said we could try naturally for 6 months after the surgery, but she advised getting into an IVF clinic as soon as possible. Then I was laid off and had to find a new job, right as we were nearing our first appointment after an excruciating wait. We had to wait more, due to the insurance change. Finally, when we got in the door, it was late 2024, and I was almost 36. I was gobsmacked when the RE told us we had a 5% chance of getting pregnant naturally due to my stage IV endometriosis diagnosis. I figured they were just statistics, and maybe we had a better shot than that. After all, my husband’s sperm parameters were great. We had a real shot, I thought. That was naive.

Meanwhile, I was in therapy to explore my feelings around being adopted. I was really healing, finally. I had spent my whole life avoiding desire — the desire to find my first family, and any other desire. It was so hard for me to “want” anything in my childhood and young adulthood, but I was finally wanting, hungering — for connection.

Then, right as we were preparing for our first round of IVF, my husband cut ties with two of his family members and, at the same time, herniated the same disc he had before. He wasn’t doing anything, lifting anything — it just went out in the midst of his grief and stress, like the first time. He woke up one morning, and there it was again — horrible and familiar. He suspected it was the same pain, but insurance still wouldn’t approve his MRI. Months went by with required PT and more. He was on the max dose if ibuprofen 24/7 and could barely function due to the pain. While in a blind panic about our first cycle (I was terrified of needles), I was also calling around trying to figure out how to get him an MRI and get him in to see the best surgeon. He couldn’t do any of that on his own because of the pain. He was barely present emotionally during those months, and I understood that, but it was still incredibly hard. The wait times for the best surgeons were insane, considering they wouldn’t even put us on the wait list until we got an MRI. Finally, we decided to pay for the MRI ourselves. We received confirmation that he had indeed herniated the same disc and would require another surgery. More wait times to see the surgeon — the same one as last time, who was good but not the best, because we couldn’t wait any longer. All this time, he was on the max dose of ibuprofen.

Well, we went in for our first retrieval with what I thought were reasonable hopes. I remember thinking that the pain was greater than I thought it would be. It felt like my lap surgery. But it was my first retrieval, so I didn’t know any better. The doctor slipped in with a folded piece of paper with a number on it: 5. I stared at it blankly for a moment, in shock. They had only retrieved 5 eggs — though we had expected 9-11 based on my follicle growth. She didn’t say anything. A moment after she left, she returned again with another sheet of paper directly from the embryologist, to let us know that my husband's sperm was almost unusable. His motility was near zero. ICSI would be required to rescue the cycle. We were shuffled out.

The whole two hour ride home, I felt like my insides were exploding. And I was crying non-stop. The doctor called me in shock about the results. What’s crazy is that we had run the ibuprofen by her and she had said it would likely be fine. We hadn’t frozen backup sperm because of the two-hour drive and because no one seemed concerned.

That night, I couldn’t sleep because whenever I reclined too much, the pain was unbearable. I woke my husband up at 1 am and we rushed to the ER. I had internal bleeding and the blood was floating up to my diaphragm, irritating it. The bleeding slowed on its own but the recovery was brutal.

Then, a month later, my husband had his second back surgery. I developed a goiter from the stimulation or maybe the stress (at least that is what the endocrinologist suspects). It is benign and ok, but sometimes to this day, it inflames. His surgery went as expected.

We got zero blastocysts from that first round.

We planned our next cycle, hoping the first had been a fluke. But we took a break first, because I was convinced I could improve the situation by going on a boat load of supplements and a low-inflammatory diet. It had to be the endometriosis, I thought — or, at least, I could try to mitigate that factor. My doctor seemed dire about endo and said it could affect all aspects of IVF, and it just depended on the person. I’m not overweight and I ate well to begin with, but I cut out all added sugar, gluten, cheese and ate ONLY whole foods for months. (I hadn’t been drinking for years.) I knew in my gut that I wouldn’t be able to handle another failure so soon.

Unfortunately, I guess, I needed a lot of time, or what now feels like a lot. We started the process of getting approved for the second cycle about five months after our first cycle ended. I prepared mentally by searching for another clinic in case that second cycle failed, as I needed a backup plan and a solution. I needed to feel in control. I set up consultations with three of the best and chose our new clinic.

Meanwhile, my husband’s second back surgery recovery didn’t pan out as we had hoped. He gained weight from not being able to exercise (and he had also gained weight after the first surgery too). He is now about 15-20 pounds over his ideal weight. He seems a lot older to me now, and more depressed. He recently had a falling out with his mom, too, on top of everything else. He is now out of touch with almost his whole family. Luckily, my family is not a problem in that way. (No, my husband is not the cause of this unfortunate drama. He has a very difficult family.)

All this time, by the way, we had investigated his sperm parameters. We’d done multiple follow up tests and since the “event” in which the parameters tanked before his first surgery, they had never improved measurably. Despite supplements, despite everything. He also has high DNA fragmentation, though we don’t have pre-back pain test to compare that to. I am convinced it was all the ibuprofen and/or inflammation from the herniated disc that did this to him. Maybe the inflammation has never gone away, I don’t know. He certainly still has discomfort and lingering low-level pain that may never improve.

Between my endo and his back, I feel that our lives have been robbed from us. I know that sounds dramatic, but that’s how it feels. We were/are relatively healthy otherwise, but the life has been drained from us both. There’s only so much grief and suffering we can take, individually and as a couple. We’ve drifted apart… We are still good friends and kind to each other, but it doesn’t feel the same. I feel guilty for feeling resentful of my husband sometimes… I wish he would have had a more positive outlook about his back the first time, and this time, too, and I wish he could look for ways to manage his stress. I recently asked him (again) to try therapy, and he might this time, but is it too little too late? Sometimes I feel like his back goes out when he’s stressed to the max… Like his body is rebelling. Maybe I’m crazy. Maybe I’m desperate for there to be a reason.

Anyway, we tried ICSI and Zymot, and even tried TESE during our third cycle. Oh, the second cycle failed. My follicles weren’t empty but fertilization was below 25% and we made zero blastocysts. During the third cycle, that just wrapped up, my husband had an hour-long procedure (TESE) in which they cut into his testicles while he was awake to extract immature sperm that might have less DNA fragmentation. We thought that would give us a shot at making blastocysts. To be honest, if I had known that the procedure would be so unpleasant and involve actual stitches, I would have recommended against it. I guess the procedure was a bit undersold to us. Although the fertilization rate improved, nothing else did.

I am now almost hopeless. On top of that, I feel ancient and exhausted even though I’m only 37. I stopped writing around our first IVF cycle, maybe before. It’s like I can’t focus on anything else except IVF, even between cycles. It rules my consciousness. I feel haggard. I’ve gained probably 5-10 pounds overall and developed huge bags under my eyes since our wedding five years ago. I am stuck in my job because the health insurance is so good. (I guess I shouldn't complain about that!) It doesn’t seem like it should be a lot, but when I look at photos of us both five years ago, I barely recognize us.

I think it might be time to give up. And I’m not sure our marriage can survive this. When I look at my husband, I don’t see hope and I don’t see a future. I see two people who are surviving together, but no longer happy. It is circumstantial, but how long can two people last like this? If were apart, maybe none of this would have happened. Was it the stress of the stupid wedding that threw my husband's back out to begin with?

I’m sorry if this all sounds really depressing. I am very depressed and having trouble seeing through it. I’m in therapy and I hope my husband will be soon, too, but nothing seems to help the feelings of loss.

Has anyone gotten pregnant naturally (not IVF) after a lap for stage 4 DIE? I haven’t had an official diagnosis by surgery yet but due to my MRI and multiple exams and tests, size of my endometrioma, they’re thinking it’s stage 4 DIE. I know they say people have success getting pregnant after but I haven’t seen many success stories for those who had stage 4 DIE and looking for some hope 😞

Looking for some hope! Has anyone here had recurrent pregnancy loss and endometriosis and gone on to have a successful pregnancy?

Id love to hear:

How many losses you had?

Your endo stage / whether you had surgery

What you did differently during the cycle you conceived (meds, progesterone, baby aspirin, supplements, etc.)

Anything you did after ovulation that you feel helped

I know everyone is different, but I’d really love to hear some positive stories from people who have been through something similar.

Hi everyone,

I thought I would lay out my problem. I am 37, and was diagnosed with stage 4 endo at 35 when I had a 10 cm endometrioma removed in lap surgery. The surgeon preserved what she could of my left ovary and didn’t see any other endo. She is considered a very skilled and well regarded lap / robotic surgeon but admittedly not an excision specialist. (I didn’t know at the time that I should have shopped around more… All I knew was that she was better than my OBGYN who said “you’ll be fine with one ovary”!)

Anyway, I obviously needed surgery. That cyst had been causing me pain for years before I was diagnosed, and it was continuing to grow. The surgeon advised going straight to IVF (in a kind way).

Well, we’ve done 3 rounds of egg retrievals since and made 0 blastocysts. 19 mature eggs total, 7 fertilized, 2 arrested on day 3 and the rest between day 4-5. Everything except the endo looks ok and considering my age and that I only have 1.5 ovaries, I’m happy with the number of eggs I produce. Our huge drop off is fertilization and blast rates. My husband does have high DNA fragmentation, but we have done ICSI, Zymot and even TESE (testicular sperm extraction) and nothing has improved. We even switched clinics and found one with a better lab for the last cycle. I really think it’s the endo.

The cyst on my left ovary has grown back but is stable at 3 cm. That ovary produces half the number of eggs as my right ovary. Part of me wishes the whole ovary and affected tube had been removed.

My sister was diagnosed with endo because I was (no one believed her pain previously) and had proper excision surgery. She had extensive endo everywhere. I fear that I do too and the inflammation is what is causing this. After all, even having one chocolate cyst means Stage IV.

Should I have another lap even though every doctor I talk to including excision specialists say that is not advised BEFORE egg retrievals (due to the risk to ovarian reserve)? Plus they could nick something.

But we are getting nowhere…. And I am running out of time. Could lap surgery help reduce the inflammation enough to improve my egg quality?

The tentative next step is a FRESH DAY 3 transfer but I have so little hope….. and how much more can I go through? I’m not sure if I can handle another 1-2 years of IVF to then throw in the towel when I am nearing 40.

I’m heartbroken and exhausted.

Thank you.

Turning 39 in November. Three failed transfer of untested embryos. Normal SIS/HSG. Provider is recommending a hysteroscpy and biopsy. Surgeon suggested doing a lap at the same time. Surgeon is a robotic gynecologic surgeon and uses both excision and ablation. I can't find anything on him on Nancy's Nook, and the fact that he uses ablation has me anxious, but he's assured me he won't touch my ovaries. I have two more untested embryos left.

I'm potentially going into my third and absolute final round of IVF and I'm hoping to hear your experiences.

I have severe endometriosis adenomyosis. I had specialist excision surgery to remove all of my endometriosis in February. Along with removal of endometriosis, I also lost both of my fallopian tubes. Surgeon had no choice but to do a bilateral salpingectomy as both of my fallopian tubes were far too damaged to be fixed.

The clinic I'm with have always known that I have endometriosis but haven't ever suggested any suppression or frozen transfer before. What they're hoping to do now is full cycle to retrieve my eggs and use the ICSI method to fertalise. They then want me to be on some form of suppression for 2 to 3 months before a frozen transfer. Has this worked for anyone before? They believe my last embryo fail to implant due to inflammation from all the drugs. I'm really gutted they didn't think to do this in the first place! Here's what I've had done before

1st Round (NHS) in late 2024/early 2025

- Down regulation for 1 month

- Max dose stims

- 3 eggs

- 1 fertalised & became a high quality blasto

- Although implanted, became a loss at 8 weeks

2nd Round - June 2026

- Shorter protocol, milder dose of stims

- 2 eggs

- 2 fertalised

- 1 blasto, even better quality

- Failed to implant entirely

Any hope, guidance, positive experiences would be great to hear.

For those struggling with infertility from endo, what worked for you to get pregnant? Did you have to do Lap Surgery, IVF, different diet, vitamins? What worked for you?

My backstory…. I’m a 32F. I was TTC for one year before becoming naturally pregnant which unfortunately resulted in Ectopic and losing my right tube. I am now back to TTC again. Did anything help you reduce endo enough to conceive? During my surgery they found stage 1 endo.

So I was cleared for my FET for September I’m currently on norethindrone only after having a lap, the pills will be done by next weekend, I am to call them on the day of my first bleed but what does everything look like after that ?

Hi ladies, I’d really appreciate hearing from anyone who has been through something similar. 🙏🏻
My AMH is 0.8 and AFC is 13. I have superficial endometriosis outside the ovaries with significant pain, but thankfully no endometriomas and my ovaries are clear. The ultrasound also showed no obvious adhesions or deep endometriosis. I also have signs of adenomyosis.
My doctor suggested laparoscopic surgery to remove the endometriosis lesions and assured me that he will not touch my ovaries. He may also need to take a biopsy.
Because of my low AMH, I’m torn between having the surgery first or trying to conceive before surgery, as I’m worried about losing time or potentially affecting my fertility.
Has anyone here had low AMH + endometriosis outside the ovaries? Did your fertility specialist recommend surgery first or trying to conceive first? And what was your experience with fertility/AMH after surgery?

Long story short: my (private) fertility doctor says there’s nothing else than more IVF she can do for us. Which of course we want but can’t afford. Tried naturally and with letrozol etc for 1,5 years.

Have had 2 FETs. One before excision surgery (found moderate endo with one deep lesion, nothing on ovaries or reproductive organs), and one after.

(The surgery was done with a respected expert on endo excision)

We haven’t tried naturally after the surgery, only had the one FET which was unsuccessful.

Ive been treated for endometritis 2 times. Last time in march. Have not had a third biopsi. Now worried it hasn’t cleared, but the dr is very hesitant on giving more antibiotics no matter a new potential result..

This is a dr that has a very good track record and there’s not many else.
Not in the US/countries who are good at this, so very restricted health care on this matter.

Got pregnant naturally in 2024 but lost our son due to premature birth due to BV, which I think started this all. Had pelvic pain / stings after birth which just continued, but got no help for one year, despise countless visits with drs and gynos.

I feel so very broken, and that there really is no help out there. I’ve tried so many times to get help.

Hope someone can give me some advice. Should we spend all our money on new IVF (we are waiting for public funded but they won’t give us any add ons like aspirin or prednisone which we can get privately), try naturally, get a new biopsy, go overseas for other treatments (multi resistant bacteria test..?).

Edit: adding that the excision was complete. Have had MR and multiple ultrasounds for other findings but nothing. Same with hysteroscopy. Tubes are not blocked.

Hi All,

I’m 38. AFC 1-3, AMH 0.02 - 0.3. FSH all over the place. Moderate adenomyosis, endometriosis/ 18mm endometrioma on left ovary, High NK cells and high Cykotines.

TTC for nearly 3 years. Never seen a positive test. Over 9 cycles / 6 egg retrievals, I’ve collected 10 eggs and made 2 blasts on cycles 6 and 8, 1 Day 5 BC (age 37) and 1 Day 5 3AB (38). Untested.

I’m debating going a few more cycles or moving to transfer. If we move to transfer, should I have a lap to remove the endo and do suppression? A handful of REs have said absolutely not to the lap. My new RE says yes, but only if I manage to collect another 3(!) embryos as mine are untested.

What would you do? Any and all advice would be appreciated! Thank you

UPDATE: Thank you everyone for the insight, support, and community. My doctor's office just called and my levels are declining. I'm devastated 💔

I (33F) have never posted on Reddit before. I have endometriosis and my husband and I have been ttc for almost 4 years. We've done multiple IUIs and I've never had a positive test. My cycles have historically been intense and very painful, but the last few months have been better(thanks to the research of my incredible husband and more natural supplements than I can count lol) I thought I had a fairly good, and manageable cycle a few weeks ago, but after my period, I started brown spotting for about 5ish days. Figured this was just my body bring unpredictable. Of course, Google said it could be lots of terrifying things, but do take a test. Honestly seemed like a waste of money because they're always negative. Well! To our shock, the test came back VERY positive Saturday night. I still don't know how to believe it after years of hopelessness. However, I began having mild cramping for about 12 hours and the spotting turned red, so we spent the morning in the ER. The doctor is estimating I'm about 4/5 weeks. Hcg level was 1050 but wanted to rule out miscarriage and eptopic. Had a vaginal ultrasound and blood test and it was determined it was to early to have a clear answer, but the radiologist didn't see a clear eptopic pregnancy, but also didn't see anything in my uterus (except the usual endo). So, I'm feeling slightly better that it might not be eptopic but still so uncertain. What really scares me is this evening I've started bleeding a lot more- like a period with some clotting. I called the ER and they said to follow up with my ob tomorrow. I'm so worried that I'm going to lose this pregnancy. Such a helpless feeling. Has anyone had similar experiences? I just want to have hope ❤️

Hello,

I have done pelvis MRI and were recommended to do endometrial biopsy. The gynecologist would like to do hysterectomy without doing biopsy. I am wondering if there is any centre in BC to do biopsy with family doctor referral and preferably with no long wait time.

So I did Larascopic Surgery August 4th 2026, I find out that both my fallopian tubes were able to be kept just had adhesions in which they removed. How soon after did you start trying? And was it successful.. if so any tips 🙏🏾🙏🏾

Hi everyone,

My husband and I have been trying to conceive for 1 year. 5 months into trying I got pregnant but had a chemical pregnancy/early miscarriage. In the 7 months since, we have been unsuccessful in getting pregnant again. I’m now seeing a fertility clinic to figure out what’s going on.

So far all my labs and ultrasounds have come back normal. I have a robust follicle count, plenty of eggs, endometrium is a trilaminal pattern and not too thin or too thick. They confirmed I am ovulating. Etc. Etc.

We are still waiting for my husband’s semen analysis to come back. One thing the fertility doctor mentioned to me is silent endo, but she said the only way to find out whether I have it would be surgery, which is obviously not ideal. Here’s what I’d love help with: can someone help me understand if silent endo is *truly* silent? I’ll explain my cycles and symptoms or lack thereof below, but I am wondering if people really do have endo with zero symptoms at all or if doctors are just dismissing them.

About my cycles:
- Very regular, average of 28-30 days long
- 15 day luteal phase, ovulation is predictable
- Sometimes I experience very mild ovulation pain that I assume is mittelshmerz and normal, it doesn’t affect my day at all. No ovulation spotting.
- Periods are 2-3 days long and fairly light. I only need to wear a panty liner and change it maybe twice a day. However I do get lots of clots when I go to the bathroom. I don’t quite understand why I get clots without heavy bleeding.
- Periods are not painful. Maybe one day of mild cramps but I can still do what I want to do and even exercise. I do get hip and thigh pain on the first and second day of my period but again it’s more a discomfort than pain and goes away after a day or so.
- I tend to bloat more leading up to my period but not in a painful way
- I was on birth control for 15 years and if I recall correctly I was put on it at age 16 because my periods were coming too frequently. Nobody investigated why. I’ve been off birth control for 3 years.
- I have anxiety but have had it my whole life
- I don’t get headaches and have no pain other than the first two days of my period.
- I have Graves’ disease which is an autoimmune disorder that involves hyperthyroidism

Does anything here scream potential silent endo? Is it worth having surgery for? From my perspective I don’t have any symptoms but I realize I’m not very informed at all and would love to hear from some of you. Thanks for reading this far 🙏

Hi

Anyone on metformin here? Endo (already had my lap) and was told I have possible polycystic ovaries yet I’m not meeting all the criteria.

I started metformin 3 weeks ago. I’m not reacting well to it. Doc says it’s normal.

Doc said to kee up with it because it’s good for endometriosis inflammation? I can’t find any evidence of this:

For the record I’m throwing up and having horrible GI symptoms and for me I’m not sure this is worth it.

Thanks in advance for any advice!

34F feeling desperate and not sure which private clinic in or near Manchester would be best.

I have deep infiltrating endometriosis (excision surgery six months ago) and adenomyosis. I suspect we are going to need FET. My AFC was 19 in April with no dominant follicles, 13 in July with one dominant follicle. My AMH was 19.2 in February and 15.8 in April. (All this year 2026). I am having a polyp removed next week. FBC are all normal. My BMI is 27.2 but slowly coming down. One chemical in 2024 and no positives since. 

I am entitled to one funded cycle, but my experience with St Mary’s NHS so far is demoralising for a large variety of reasons, and they are very flippant about my adenomyosis.

I’ve spoken to Manchester Fertility, but there’s an uncomfortable feeling I can’t shake about them. Looking at the price lists, it seems there are a lot of extras. I feel like all these companies are just taking advantage of desperation and don’t actually care. I feel so confused about whether MF are the best or Care or ABC… it’s just so overwhelming.  

Can anybody please share their experiences of any private IVF clinics within a 50-mile radius of Manchester, and the full cost breakdown? I had a look at Access but that just seems to be a finance option that you then use with Manchester Fertility or Care. If anyone is happy to give me as much information as possible it would be really helpful, I feel like I am drowning.

Not sure if this is the right subreddit, but I’m hoping to hear from anyone who’s been in a similar situation.

My OB saw that both my fallopian tubes looked blocked. She said I need to have an HSG first to confirm because it might just be spasm and not an actual blockage.

If it turns out to be true blockage, she said tubal recanalization could potentially be an option.

Has anyone here had blocked tubes that were successfully recanalized? Did you go on to get pregnant naturally afterward?

Would really appreciate hearing your experiences. 🙏