r/TTCEndo

Hello! I just posted about baby aspirin but I was also curious to just see if there were any others like me out there.

My husband and I have been TTC for almost 2 years with not a single positive. I have short luteal phase with spotting that I’m assuming is due to low progesterone (that’s also the assumption my RE is making as they have me on progesterone supplementation). I don’t have a formal diagnosis of endometriosis. I don’t have painful periods. They’re actually short (2-3 days) and really light (I may fill one pad a day). I have really bad gas, constipation, bloating, indigestion, and acid reflux and am currently waiting for an upper scope to rule out a GI disorder but my symptoms tend to be really bad during my luteal phase, especially 2-4 days before my period. I just chalked it up to PMS.

Like mentioned in my aspirin post, my RE is considering that I may have mild endo given some of my symptoms, but my period symptoms seem to be the opposite of typical endo symptoms (especially from what I can find). Has anyone else been diagnosed or struggled with endo and didn’t have the “typical” presentation? I only ask because, like I said, I’m TTC and want to know what you ended up finding out and how you proceeded.

Hello! I’m wondering if anyone has gotten pregnant either naturally OR via IVF with stage 3/4 endo (ovaries and bowel) without having surgery? I’d love to hear your story if so. I am debating if I should get surgery as I found out I have endo via MRI. Please and thank you!

Hi all! I had an IVF consult today with a different clinic and I really liked the doctor. However, she has two approaches to suppression for endometriosis.

Your standard 2 months of suppression monthly shots with Lupron OR daily low-dose Lupron down regulation for 2-3 weeks.

I know the gold standard is the 2 months, but my doctor said she has seen success in both scenarios and that the 2 months is best for those who haven’t had surgery (I had surgery in April).

Background: 20 months TTC, 3 CPs, stage III endo excised in April 2026. My husband and I have completely normal labs (we have done extensive testing), I ovulate on my own and normal cycles.

I’ve had 5 losses to date (3 MMC all between 6-7 weeks and 2 chemical pregnancies). Four of these have been natural pregnancies and the most recent loss was IVF as we opted for PGT-A.

I’ve done all the testing for RPL and everything has came back normal (karotype, thyroid, HSG, etc,) and was on a pretty robust protocol for my FET including doxycycline, Lovenox and Methylprednisolone.

I don’t know what could be contributing to these losses but deep down I suspect silent endo. My RE has recommended a lap as a next step. I feel like this has to be my answer as it’s currently unexplained infertility.

For those of you who didn’t have trouble getting pregnant but have had repeat losses, was it silent endo or did you get diagnosed with something else?

Searching for answers or success stories as I’m in limbo waiting to fully recover from my third D&C.

I had my first ER 20 days ago. The first 3 days were painful as expected but then it went down a lot. My period came 11 days after the ER (worst pain of my life due to my endo and not being allowed NSAIDs, but it calmed down) and the bloating drastically decreased right beforehand, so I’m on cd10 now. Outside of the period, I had felt like the pain was getting better and better. I only had pain when I used my abs or walked (and for a bit after), and I stopped walking like a snail and started walking at a meandering pace.

Today though, my pain started getting worse. Even when I had been entirely sedentary (driving for 2h), I got ovary pain, and on top of that, it hurts more than it did before. It’s still a super manageable amount of pain, but I expected it to keep getting better rather than worse.

They only retrieved 11 eggs (AFC 17) but I think they did think I was at some increased risk of OHSS because they lowered the trigger drugs after seeing my estrogen levels. I also don’t have any symptoms of OHSS.

I thought maybe my estrogen rising approaching ovulation could be causing it, but I usually ovulate around cd18 (cd14-20) so that’s not really that soon. I also don’t have any EWCM. It’s still pretty dry as I just stopped spotting yesterday. So I have no reason to think that my estrogen is very high.

What could this be? Should I be concerned? I got booked in next week for bloodwork and an ultrasound because I am leaving for the long weekend (Canada). I hadn’t yet told them the pain was getting worse though - we booked it when I was just concerned it was lasting too long, before it got worse today. Does it sound urgent? Should I delay my trip to get checked out in 2 days instead?

I have history of endo with excision surgery 1 year ago. I did 2 months of lupron suppression prior to my first medicated transfer with a euploid embryo which failed.

My clinic has me doing another fully medicated cycle for this next transfer, with the addition of 2 weeks of birth control and daily lupron prior to starting transfer meds.

I asked about adding in an immune protocol, including baby aspirin, Pepcid, Claritin, and steroids with this transfer. My doctor said there’s basically not enough evidence to recommend this, but if I wanted to take these meds myself I can (minus the steroid) as there’s minimal harm to it.

I don’t feel fully comfortable doing something that my clinic doesn’t necessarily recommend, but at the same time I am willing to do anything possible to make this work and have read a lot of positive discussions on immune protocols.

Would you feel comfortable taking these meds, or have you found them to be beneficial for you?

I was just in NYC for IVF and endo consults. Both the endo specialists said surgery is fine before retrieval. The IVF doctor, who specializes in low AMH is very concerned with that, and thinks I should do egg retrievals first.

My AMH has moved around from .87-.33, and I am 32. We have been trying for 16 months, two failed IUIs. My insurance does not cover IVF so I want to get the endo removed first.

Anyone have a similar experience? As of right now I have surgery scheduled with Dr. Vidali 10/29. He is a fertility specialist, as well as an excision specialist.

If you had 2 failed embryo transfer and one of those with 2 months of Orilissa. Would you do Endometriosis Excision + Lupron Depot or just Lupron Suppression before another FET? I was diagnosed with endometriosis after my first failed embryo transfer via a ReceptivaDx test. I’ve had no prior laparoscopic surgery. So I’m trying to decide whether I should do the surgery + suppression or just try Lupron depot suppression before my next FET.

Hi everyone, I’m looking for some advice and shared experiences. My partner and I have been trying to conceive (TTC) for 1.5 years.

​During the first year, all basic tests (hormonal panel, transvaginal ultrasound, sperm analysis) came back normal, and my first OB/GYN told us to just keep trying. After 18 months with no success, I saw a fertility specialist who performed a 2nd-level ultrasound and a tubal patency test (HSG/HyCoSy).

​Here is what he found:

​Fixed/immobile retroverted uterus

​Right ovary adhered/tethered

​Possible adhesions in the Pouch of Douglas (pain in a specific spot on the right side)

​Fibrous uterus

​Good ovulation, great ovarian size, and excellent endometrial thickness

​Tubal results: Left tube open but with an abnormal path; Right tube open only under high pressure.

​The doctor suspects endometriosis and that adhesions have distorted my pelvic anatomy. Since he is the director of a local IVF clinic, he immediately recommended going straight to IVF (PMA).

​I feel like this might be skipping a step. Based on my research, mechanical infertility and adhesions can often be treated with excision surgery to restore pelvic anatomy, cut adhesions, and remove endo lesions.

​However, public health doctors won't listen and just referred me to an IVF center. I have now booked an appointment with a surgical endometriosis specialist to evaluate if I’m a candidate for surgery. I feel like operating first could help us either conceive naturally or create a better, safer environment for future IVF.

​Has anyone had a similar experience?

​Why do doctors push for IVF without evaluating if surgery could fix the mechanical/anatomical issues first?

​Has anyone with a similar clinical picture been advised against surgery, and why?

​Tomorrow I’m getting my AMH tested on my own initiative, as my first doctor never requested it. My ovaries look clean internally (just pulled out of place by adhesions) and my cycle is super regular, so I hope for a good result, but at this point, I'm prepared for anything.

​Thank you so much to anyone who takes the time to reply!