u/Jaded-Addendum-4489

Silent Endometriosis Makes Up 30-50% of “Unexplained Infertility”

I will continue to shout this to the rooftops! So many doctors never consider endometriosis for the cause of fertility issues. Endometriosis affects 1 in 10 women but it is EXTREMELY under diagnosed. I’m guessing 1 in 8 women have it (Australia says 1 in 7).

Endometriosis doesn’t only cause painful periods, but it can cause GI issues, fatigue, infertility, painful intercourse, non-period pain in your pelvis/lower back/hips, painful urination, painful bowel movements, and so much more.

If your doctor ever says endometriosis does not cause fertility issues, drop them ASAP!

Gold standard to diagnose endo is undergoing a laparoscopic endometriosis excision surgery with a specialist. Sometimes (not always) more advanced endo can be seen on ultrasound/MRI, but silent endo will not be seen on ultrasound. I was diagnosed with stage 3 endo after three early miscarriages, a specific cyst on my ovary, and undergoing a Receptiva test.

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u/Jaded-Addendum-4489 — 3 days ago

Silent Endometriosis Makes Up 30-50% of “Unexplained Infertility”

I will continue to shout this to the rooftops! So many doctors never consider endometriosis for the cause of fertility issues. Endometriosis affects 1 in 10 women but it is EXTREMELY under diagnosed. I’m guessing 1 in 8 women have it (Australia says 1 in 7).

Endometriosis doesn’t only cause painful periods, but it can cause GI issues, fatigue, infertility, painful intercourse, non-period pain in your pelvis/lower back/hips, painful urination, painful bowel movements, and so much more.

If your doctor ever says endometriosis does not cause fertility issues, drop them ASAP!

Gold standard to diagnose endo is undergoing a laparoscopic endometriosis excision surgery with a specialist. Sometimes (not always) more advanced endo can be seen on ultrasound/MRI, but silent endo will not be seen on ultrasound. I was diagnosed with stage 3 endo after three early miscarriages, a specific cyst on my ovary, and undergoing a Receptiva test.

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u/Jaded-Addendum-4489 — 3 days ago

3 dpo & Continuous Ovary Pain - 1st TWW Post-Excision

Hi all! I am 3dpo in my first full cycle post excision surgery and drained endometriomas. I am 100% sure I ovulated on my right ovary, the one that I had a 2cm endometrioma drained. I was having lots of pain day before ovulation, day of ovulation, 2dpo and now 3dpo. Sometimes when walking I feel pain. I had intercourse on the day before ovulation, day of ovulation and 2dpo and it hurt some (never have pain with intercourse and only on the side I ovulated from).

Before surgery, I would have ovulation day pain, but never like this. Anyone know what this means? Is it because I’m still healing? Could it be the corpus luteum causing the pain?

I am on progesterone suppositories starting last night at 2dpo.

Thank you!

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u/Jaded-Addendum-4489 — 4 days ago
▲ 16 r/TTCEndo

Little joys found post-lap

I think this group would understand my excitement. This is my first cycle post lap (stage 3 excised on 4/17). My period came early after surgery (never been so happy for an early period). Also, my ovulation is today, and it’s the first time in a long time I have ovulated on textbook CD14. I also had the STRONGEST natural LH peak since my 15 months of TTC. I feel more energized, less bloating and pain on my ovulation day, and more “in the mood” than ever before.

I know this isn’t a guarantee we will conceive this month, but my body is doing all the right things. It’s reassuring after so many failed medicated cycles, two IUIs and recurrent chemicals that my body is back to somewhat “normal”. Not sure if we will ever be normal with the endo diagnosis, but feeling good today.

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u/Jaded-Addendum-4489 — 7 days ago

Cervical mucus post-excision

Hi all! I am on CD9 of my first cycle post excision. I noticed CM today a few times while wiping after using the restroom. I NEVER had CM prior to my excision surgery. Did anyone notice a change in this post surgery?

I am hoping this means things are balancing out and we may have a better chance? Trying to stay hopefully but not disappoint myself. I will say, I had three chemicals prior to surgery and I never had CM with those conceptions too.

TIA!✨

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u/Jaded-Addendum-4489 — 12 days ago

Drained endometrioma + TTC

I had stage 3 endo excised on 4/17 where she also drained a 2cm endometrioma on my right ovary, and two 3mm endometriomas on my left ovary. I know this is not excising them, but we were worried about my fertility and how small the endometriomas were to fully excise/damaging my ovaries.

Has anyone gone on to successfully conceive after draining an endometrioma? To add, I had three chemicals prior to my surgery. My receptiva was 3.9. I’m wondering if the chemicals were due to the inflammation in my pelvis and less the egg quality (one I know I ovulated on my left ovary and those endometriomas may not have been there at the time).

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u/Jaded-Addendum-4489 — 15 days ago

Officially CD1 today. First off, I have never been so excited for my period to arrive, and it came early! My surgeon removed stage 3 endo on 4/17 and she is hoping we conceive within 3-6 months of surgery.

Do you recommend trying completely natural, or add Letrozole in to boost follicles, and maybe chances? Also, it drops estrogen which we know is good for endo patients.

If you chose one way or another, why and did you conceive quickly?

Thank you🤍💕

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u/Jaded-Addendum-4489 — 20 days ago

At my endometriosis excision laparoscopic surgery post-op appointment, my doctor mentioned 40% of women with endo also have IC. After learning that I frequently use the restroom (but not an urgency like UTI) and wake up every night to use the restroom, she said I could likely have IC. She wants me to start taking an antihistamine (Hydroxyzine pamoate) and stop caffeine for a month and see how I feel.

Endometriosis has already taken so much from me (changed my diet and lifestyle)…this is just icing on the cake. I love my morning ritual with my cup of coffee.

To add, I am 30yo, diagnosed with stage 3 endometriosis and fertility struggles. Does IC cause infertility? I know endometriosis does.

TIA for those who read this post. I am very overwhelmed and sad 😔.

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u/Jaded-Addendum-4489 — 22 days ago

Stage 3 endo and just diagnosed with interstitial cystitis. How are you coping? I have already given up so much through diet…

I love my morning coffee ritual. I have already reduced my caffeine intake. I also love citrus fruits and chocolate. I just don’t know how much more I can take of having these complex diseases taking everything from me…

I was prescribed Hydroxyzine pamoate to take at night. It’s an antihistamine.

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u/Jaded-Addendum-4489 — 22 days ago

Hi, it’s me again! I am posting to bring awareness to this during National Infertility Awareness Week.

I have posted this before but I want to continue to shout this from the rooftops. I wish more women knew about this and I wish more doctors cared to look into this BEFORE going through IVF, or if they have had recurrent miscarriages.

The gold standard to test for endometriosis is through an endo excision specialist via a diagnostic laparoscopy. However, you can test for Recepriva via a endometrial biopsy. This looks for inflammation of your lining. If positive, it’s highly suggestive that you have endo. Sometimes (but not always), endo can be see on ultrasound and/or MRI.

I hope this can help couples struggling with infertility.

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u/Jaded-Addendum-4489 — 26 days ago