Clinically diagnosed POTS. Constant derealization, heart pinned at 120, and severe water/calorie deficit. What treatments worked for you beyond propranolol? Has anyone else experienced this?
Hey everyone. I have a confirmed POTS diagnosis and have been told I experience hyperadrenergic states. I’m currently spiraling in a moderate nervous breakdown and feel entirely isolated. I feel like my anxiety is a severe, untreatable anomaly, even though I know a lot of it is physical.
My boyfriend is a firefighter on 24-hour shifts (+ paramedic school), and my separation anxiety on the days he is gone has become incapacitating. I live alone, which makes it worse. When I panic, I get severe derealization (feeling high, completely detached, like nothing is real or like I'm losing my mind) and my heart rate stays pinned at 120 BPM just sitting on the couch. I also get severe pressure in my head, neck ache ("coat hanger pain"), and ear fullness. I tried getting back on Sertraline recently, but it completely backfired—gave me a horrific adrenaline surge and severe derealization.
I recently realized I have been living in a severe chronic water deficit (only drinking 16–30 oz a day) and a calorie deficit (~500–1500 max, I’m 5’5 and 115 lbs) for months or years. My blood sugars test fine, but I know my liver is dumping cortisol/adrenaline to keep it that way. I tried drinking electrolytes today, but it took me all day because the concentration made me anxious/nauseous.
I’m trying to do prerequisites for nursing or sonography school, but this breakdown is making me question everything.
Propranolol doesn't feel like enough to stop these severe chemical terror dumps. For those of you with hyperPOTS, what treatments worked to turn off the central adrenaline faucet? Have you tried Guanfacine, Clonidine, or Ivabradine? Also, did slowly correcting a chronic fluid/calorie deficit significantly lower your daily surges and lift the constant derealization?
Any success stories from people who got through clinicals or handle first-responder lifestyles with hyperPOTS would mean the world. Thank you!