u/Roses14__

Has anyone chose to not have an ablation?

I’m 26(f) in the uk, I had a bout of bad palpitations November last year, triggered by a nasal decongestant, by luck I had a holter monitor for a pots referral, which caught the palpitations.

My cardiologist has referred me to a specialist over suspected WPW, and I have my appointment Tuesday.

I’ve obviously had it my whole life, but was only triggered when I had the nasal spray, and it lasted two weeks. The symptoms were obvious, I couldn’t ignore them, and severely different from my pots symptoms.

Since then, they’ve never came back, I will admit the idea of an ablation terrifies me, but can I be ‘stable’ in this syndrome? I’m on 20mg propranolol also, which handles my pots so my heart rate is very stable now in that area as well.

I’m iffy about having it if it’s offered as the symptoms haven’t appeared in 6 months, but I don’t know if ‘managing’ WPW is possible without an ablation.

All opinions welcome, thank you :)

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u/Roses14__ — 5 days ago

Severe deficiency but limited prescription from doctors

So two months ago I (26F) started experiencing severe muscle twitches and left sided abdominal pain/ache, I had a blood test which showed a vitamin D level of <10 nmol/L (4 ng/mL).

I was given 6 weeks prescription of 50,000 IU vitamin D3 to take once a week, they were small oil capsules I took with food.

I’ve since finished them, my stomach ache has since come back and so has my muscle twitches. I’ve seen on here some people be dosed for longer than me, on the same amount, for a higher nmol/ng reading.

Is my prescription low for my results? Did I need longer?

Thank you for reading + I am going back to the gp in a few weeks, just looking for some advice :)

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u/Roses14__ — 14 days ago
▲ 1 r/POTS

I’ve been on 20mg of propranolol for nearly two months, and the last two weeks I’ve experienced sudden shortness of breath when eating, or just sitting sometimes.

I can still breathe, it is nothing that serious, no wheezing, my chest and throat feel a bit tight, it’s like I’ve opened my mouth and all the oxygen is gone and I have to breathe in a bit to feel better.

I don’t know if that makes sense but I was wondering if anyone else experienced this? I have a doctors appointment in a month or so, I will enquire about it but I’m also wondering if it’s potentially hayfever, as I am very congested at the moment, but it just happens so randomly.

I will add, I have not been constant in taking my meds, I’ve had to miss days due to echocardiograms, tilt table tests & exercise stress tests so I’ve been up and down, which maybe has influenced the withdrawal effects on me, or maybe I need to start taking them in the morning and night.

Just enquiring! Thank you :)

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u/Roses14__ — 19 days ago