u/Safe_Lab_4811

I’m one of the trifecta POTS, MCAS, EDS along with other diagnoses and am wondering if living in the Blue Ridge mountains Asheville is hindering toward any path of recovery. I currently live at 2800 ft elevation, and been here for 3 years now. My symptoms ramped up after moving here (undiagnosed before), we (medical team) thought it was due to an infection that went untreated so my body rebelled causing POTS etc but now that I’ve been diagnosed with EDS as well I’m wondering could it be the altitude. I’ve moved around a lot in the past but all at lower elevations Brooklyn, Seattle, Charlotte. I always feel better when I’m on vacation at the beach but is that just because I’m on vacation or is it also the elevation?!? I also feel better when visiting family at lower elevations but again is that because I’m with family so spirits are high, I’m paying less attention to my symptoms, etc etc. Anyway has anyone in our community moved and seen an improvement?
Also I’m doing all the right things have all the specialists and right doctors so no medical advice please. Just looking for those who have seen a similar pattern or moved and seen an improvement.

My kiddo loves all things fancy including his suit with bow tie that I thrifted for him and his shiny tuxedo shoes. His birthday is coming up and I’d love to gift him a new fancy suit but would love for him to go to a “fancy” store pick out a suit or tux try it on so he can get a fun experience and a new fancy suit. Is there anywhere locally that sells kids suits or tux’s in store? If possible a “fancy” step up from Kohls, Ross etc.

I have an hEDS diagnosis (along with the trifecta) and am wondering if anyone else gets an increase in dizziness when looking around in a store or when driving a car looking side to side. I even notice it when I’m in the passenger seat or using an electric wheel chair so I’m thinking it’s more related to EDS than POTS. Anyone else have this? What helps?

I’m diagnosed hEDS, POTS, Gastroparesis, MCAS, chronic venous insufficiency. I’m mostly bedridden BMI 14 and miserable always in pain, always dizzy, always nauseous, not living a life. I went to obgyn for a yearly Pap because well it’s necessary, and it was abnormal ASC-UC for the third year in a row and positive for HPV (first time). I have not been sexually active in 2 years because of my pain and inability to do anything so I’m confused how I could be positive for an STI when not sexually active and when I stated this to the provider she questioned me “you haven’t had a partner in the past year? None are you sure”. And there was the medical trauma feeling…5 years ago I stared with obgyn as they thought my pain was endometriosis, which they ruled out after laparoscopic surgery. I’m mostly rambling but I’m feeling defeated and frustrated because even if I have HPV and an abnormal Pap smear, what treatment is there, it’s not related to any of my current symptoms so what the fuck? What will going to these follow up appointments and tests do? will anything help me feel better my entire calendar for the next three months is filled with appointments across the state hours away from my home. It’s exhausting and in the past four years I have never had a treatment medication any doctor intervention that has been helpful.

Does anyone else experience cramping, pelvic pain not associated with ovulation or menstruation? I’ve had an increase in pelvic pain the past few months, I noticed the increase around the time of my period and ovulation but now it’s consistent. Today is so bad I’m contemplating the ER to check for pelvic congestion. But as we all know we’re always in pain/struggling always, so what’s the switch to go to the ER? My partner says to go and stop thinking about it, but I don’t wanna be gaslit for an entire day and be out $3,000 when I’ll see my primary doctor on Friday. She does not want to send any orders or referrals without seeing me but the pain is bad today. Current diagnosis: POTS, Gastroparesis, EDS, MCAS, venous insufficiency.

Does anyone else get pain in their arm and the feeling is similar to when you hit your funny bone, but it just reverberates from shoulder to finger tips for hours without you ever actually hitting or hurting your elbow?

I’m part of the “trifecta” POTS, MCAS, EDS sprinkle in Gastroparesis, Raynaud, TOS (I’m sure I’m missing some diagnosis but I’m exhausted). I’ve had new weakness and pain all over my body I’m a 37 year old single mom who is barely 80 lbs yet doctors continue to pass me around like a hot potato. No treatment plans, attempts of medication but nothing that has made any positive impacts without adding negatives. I work full time remotely but am far behind on deadlines, call out sick all the time, I’ll likely lose my job because I’m not well enough to sit up with my laptop then do all of my mom duties, so I prioritize parenting. Anyway I hate everything, I hate my illness, my responsibilities, my house, my family, even my child. I’m so miserable physically and hopeless mentally, the only hope to me is death. I’m angry with everyone for no reason, I guess it’s my own pain. I can’t help but think the statistics for suicide in our community must be high. The only person that can help me is myself and I can’t do that anymore, I’m too tired.
***Editing to say I’m not asking for advice on how to treat depression, please don’t comment with SSRI recommendations or therapy recommendations (currently in therapy and I’m a licensed clinical social worker so I fully understand traditional treatment options).

Hi, all first time poster about my car so bear with me. I recently had my power steering rod replaced unfortunately right afterwards the car started making this crazy creaking sound. Luckily the part was under warranty because it was just one day after it was repaired. I took it back to the shop to be replaced and they took it for a test drive and said they aren’t sure what’s causing the noise, but we’ll go ahead and replace this power steering rod because it’s under warranty. It took about three weeks for them to get the new part and I had to drive three hours out of town for a medical appointment before I was able to get it repaired. Today I dropped it off at the shop and they called me within 20 minutes to let me know that the lower front control arms also needed to be replaced due to normal wear and tear, which had nothing to do with the faulty power steering rod that they just put in. I am not a car person, but I’m also not stupid. My car was working great before they repaired the power steering rod and the day I got it back it was making the crazy creaking noises. Is the shop responsible for the damage to the lower front control arms? Is it worth it to get them to admit they are at fault and repair it or do I eat the cost and take it to a shop that won’t fuck up my car?