u/Satan_nsfw

25F, 136lbs, 5'3", I consume 4ish edibles a day for pain and to help make me less overstimulated by EVERYTHING with my autism, indica or hybrid only and I've worked with the pharmacist for the correct strains, only zrytec & zofran 4mg odt as needed, I don't drink.

List of "fun" issues i have:

- dysautonomia

- Postural Orthostatic Tachycardia Syndrome, diagnosed via Tilt table test, stressb test, and 13 years of monitoring.

- Heart murmur that can only be heard when I'm sick

- Hypoglycemia, I stay on top of it because it feels like it drops constantly.

- MCAS

- Gluten intolerance, I haven't risked eating it to redo the test due to the bloating and puking it causes in over a year.

- Mild Chronic Gastritis, currently inactive. I have burning in my throat/small intestine we're keeping an eye on yearly.

- Heterotopic pancreatic tissue all over in my throat, small intestine, upper stomach, and we have plans to do a colonoscopy to see if its elsewhere.

- Asthma

- Vitiligo

- Autism, level 2, but in therapy since the age of 5 to help make it not other people's issues for my triggers.

- Sleep apnea as an infant/toddler, I am waiting for insurance approval for a sleep study rn.

- Chronic Fatigue Syndrome

- dysphagia, for like 3 years? Maybe more

- Chronic migraines with and without aura, and hemplegic migraines. Long story short thought i was having a stroke when my left arm went temporarily paralyzed and left side of my face drooped at 14.

- Elhers Danlos

- heavy menstrual cycle that needed ablation due to bleeding for 3 years straight with no known reason and no ultrasound showed anything

- scoliosis, 13° curve

- 3 extra, backwards ribs that don't cause issues, they're just kinda cool at the bottom of my ribs.

Surgeries:

- Left knee surgery due to a small benign set of tumors popping my knee out of place constantly

- bilateral tubal ligation with filshie clips and endometrial ablation

- throat scope, removed Heterotopic pancreatic tissue

Honestly, I hope that's all of them. My issue is i keep waking up so lightheaded, dizzy, heart palpitations, sweaty, hot, it's hard to think, and I keep getting heart flutters with the palpitations every so often that cause air hunger and bits of chest pain. It takes me like 1.5 hours of laying there with my eyes closed, distraction free, to fall asleep. Then I cannot stay asleep for more than about an hour at a time.

I'm waking up overheating and then freezing the next second. I'm waking up with heart palpitations that make me cough. Gasping for air 1-2x a night, reason I asked for a sleep study. I'm waking up with tremors that last like 3 hours sometimes just in my hands. I feel like I cannot focus or process anything recently, like I'm listening but it's not working in my brain somewhere. My brain isn't even doing the thing where I ask, "what?" And accidentally answer mid through them asking again.

I'm chilling, not stressed about this, more annoyed if anything because its probably just POTS or something related. I just want to feel back to my old normal, which wasn't great but it was better.

I have a migraine about 23/28-31 a month. Not on prevention because I'm allergic to immatrex, and the others drop my blood pressure horribly. I'm sleeping head elevated slightly to avoid the POTS blood volume issue. I'm making sure I snack on something like gluten free bread and peanut butter, something similar to that or a breakfast shake because its the only way to keep my blood sugar from dropping in my sleep like an hour and a half before bed so I have time to digest food without gastritis trying to get me with heartburn. I've avoided caffeine as much as possible unless its naturally in something.

I'm well hydrated, I drink electrolytes, I consume salt, I wear compression. I refuse to be inactive bc i don't want to give up on my body eventually figuring my nervous system out. I don't push myself past a certain level to avoid flares, but I'm active at least 2-3 hours a day to avoid regressing not only for POTS but my autism as well, I know it happens still.

If you read this thank you.