u/ScaredAndStrong

Hi, started setraline because cancer feelings and nightmares are becoming a bit much. I’m crying too often even when I don’t feel hopeless. It’s day 2 and somehow feel a bit calmer. I’m taking 25mg very low dose but I’m usually very sensitive to pills. Welp. Will be documenting my journey.

I miss my long hair. I miss my slim frame and muscles. I miss not having to think “what’s next”?. I miss the old me so much . That’s all. I’m happy to be alive but I really do miss my innocence. Building everything back up from scratch right now.

Hey I was diagnosed with tnbc stage 4 de no vo and I was curious if anyone had a 9cm tumor at diagnosis? Or had a tumor in their breast for over a year without getting help and still made it to pcr or near pcr? I just realized how big my tumor was and im wondering why it got so big without going all over the place ?

Hi, like the title says I want to leave my boyfriend. We have been together for almost three years and he has helped me through my diagnosis , but I just realized that I really don’t think I’ll be able to live life the way I want to with him around. I want to be spontaneous and free. I want to travel . I want to go to parties and explore new places when I get bored without being made to feel awful for not having a “plan” or changing the “plan”. Even a trip to Walmart sometimes turns into a whole thing because I’m enjoying every minute of being outside and free and he is upset because they are people in the Walmart like what?… there will be people in the Walmart and it’s like he gets so upset about small things and I can’t deal with it. When we have to do something he makes excuses and money is always an issue but I always say there is things we can do that is free. He doesn’t plan dates unless I ask him to. I’m just so sick of being home and tired just waiting out the clock. I want to live.He has been supportive of me don’t get me wrong and I do love him but I literally haven’t done anything exciting since I’ve been with him. Every plan he makes we never actually follow through with it and I just want to live it up while I can. I am currently ned but idk what the future holds and I just want to have fun. I am also 25 and I turn 26 this year December . Am I the bad guy?

Edit: thank you for your replies, I guess I just needed someone to give me permission to just DO IT. Small baby steps, going to a small concert in the park today then going to get myself something to eat!

Ok so they took 2 from my left armpit ( all negative ) and 9 from my right which is the infected side , (2 out of 9) had residual disease that was microscopic. I wished they all didn’t have any but I’m grateful that it’s just a tiny bit left and I’m also grateful to finally be ned. I have radiation coming up for the armpit and for my lungs. My hair is growing back ! Yayyy and my surgery scars are healing well. I’ll keep posting and I’m grateful for this community.

Tnbc stage 4 mets to lungs and lymph nodes.Hello! I just finished the keynote protocol 522 and qualified for a bilateral mastectomy . I just finished getting my surgery and I am still in the hospital, waiting for the results of lymph nodes ( if any cancer cells are left). Overall I feel great and I want to show that tnbc isn’t the end. My oncologist still thinks I need radiation for my lungs even though on my last scan before surgery all my Mets resolved. I still have a tiny bit of active disease in the tumor (breast) so the mastectomy was the best possible solution especially considering how big it was. I’m just so happy and grateful. I’m 25 and I can’t wait to just live my life and have some children ( hopefully). I’ll update after my results after surgery <3 I thank this community for being so supportive and being REAL. Hugs

Hey so I’m currently getting my third AC Infusion as I’m typing this and I also got gene testing done about a week and a a half ago. Turns out I have the BRCA1 gene , :(, but good news as well ! It says I have less than 0.05 tumor fraction!!! >0.05 !!! I’m so happy and I’m so close to being done with AC, which honestly has been harder then the keytruda combo I was getting beforehand, I was doing very well on keytruda but this AC makes me nauseous for the first week to the point that I can’t even tolerate being in the car, what’s weird though is I haven’t gotten to throw up at all. Just a lingering nauseated feeling. Anyway I’m just so happy to be seeing this thing melt away, I’m 25 and I can’t wait to just get back to my normal life on the gym, I know I’ll be on meds forever but atleast I’ll be alive 💕🌸🌸 looking forward to my scans coming up ! The scan anxiety is so real. Oh btw I haven’t gotten to discuss next steps with my doctor yet , I see him on 4th infusion and I’m going to advocate for surgery to remove the primary site ( my boob) and the 2 tiny mets to my lungs 🫁 as well as infected lymph nodes, I hope to god he agrees because I’ve already grieved the loss of my breast . I have settled on an aesthetic flat closure mastectomy.

Hey I just read that keynote 522 ( what I’m on) is for stage 1-3, but I’m on it as well at stage 4, anyone else had this happen and why? Also did anyone experience 0.05 tumor fraction after 2 doses of AC? I have another 2 coming up and I’m seriously hoping and LOOKING FORWARD to PCR , i can’t afford to be negative and I just tell myself I am already cancer free because I am.Would love to from others who achieved NED / NEAD / PCR and how long did it take to see results for you? How much did the tumors respond and how fast?

US. so we moved into this apartment in Schenectady New York, it’s a basement apartment in a house . We found a camera under the table in the public laundry room , only found it because I was in a wheelchair temporarily. We weren’t told about it and you absolutely can’t see it when you walk in and do laundry . After our lease ended ( 6 months), they switched to month by month without giving us a new lease in writing ( even though they said we would renew for another 6 months ) . We also have been paying in cash and haven’t been given any receipts . We asked for receipts but they are just ignoring us . It’s getting to the end of the month and we don’t know what to do.

I’m here to give some kind of hope for anyone out there who is going through what I’m going through, I also need to write it because I’m still in shock on how well this is going for me. I am grateful.It’s been 6 months so far since my diagnosis of tnbc and I’m having a near complete response to the first line of meds, keytruda and taxol.here is my report, this is before my first round of AC which I just got 2 weeks ago. One more week and I’ll have my second dose. GENERAL: There is heterogeneous fibroglandular tissue (C). There is mild background parenchymal enhancement. RIGHT BREAST: Right breast mass is significantly decreased in size and enhancement intensity. The mass previously involved the upper outer and upper inner quadrants from 9:00 through 2:00 sectors; on the current exam it extends from 11:00 through 1:00 sectors (i.e., is less extensive). Involvement of the overlying skin is no longer visualized. There is no evidence of pectoralis involvement. Skin and trabecular thickening/edema is decreased from prior. Right breast mass - measured on T1 fat-suppressed postcontrast imaging (#159: Series 10) 04/03/2026: 6.1 x 1.9 x 3.7 cm 12/15/2025: 10.1 x 6.7 x 6.6 cm Right breast mass - measured on computer-generated vascular map imaging 04/03/2026: 5.1 x 0.5 x 4.2 cm, volume 12 mL 12/15/2025: 10.2 x 6.3 x 10.4 cm, volume 215 mL No new mass or worrisome enhancement is visualized in the right breast. LEFT BREAST: No suspicious mass or non-mass enhancement. OTHER: Right axillary and internal mammary lymphadenopathy is significantly decreased from previous. Right axillary lymph node anterior-inferior (#112:5) 04/03/2026: 1.0 x 0.8 cm 12/15/2025: 2.7 x 2.1 cm Right axillary lymph node posterior-superior (#122:5) 04/03/2026: 0.9 x 0.8 cm 12/15/2025: 2.0 x 1.5 cm Right internal mammary lymph node (#118:5) 04/03/2026: 1.6 x 1.4 cm 12/15/2025: 2.8 x 2.6 cm

In short this means “Significantly decreased in size and enhancement intensity" Not just smaller, but less alive. Enhancement = blood flow = active cancer. Mine is dropping fast.

"Involvement of overlying skin is no longer visualized" The cancer was growing into my skin before. Now it's gone from there. That is a major milestone.

"Volume 12 mL (was 215 mL)" my tumor is 94% gone by volume. What remains is a thin, flat remnant (5.1 x 0.5 x 4.2 cm → basically a sliver).

"No new mass or worrisome enhancement" No new metastases. No resistance developing.

"Lymphadenopathy significantly decreased" The cancer in my nodes is retreating exactly as it should.

The Most Important Number: 94% Volume Reduction in 4 Months.

I use ChatGPT to help me understand the medical jargon but I’m on my way to Complete NED by the end of my 4th round of AC. I’ll have my second I think may 5th. I’m been tolerating the chemotherapy very well and I’ve gained weight. God is good. 👍 it’s TNBC with lung mets and lymph node involvement.