u/Shordaden

Does anyone feel like they will faint? And does anyone have their vision look tilted like counter tops or floors seem slanted?

PLEASE DO NOT SAY THIS IS ANXIETY>>> THIS IS CAUSING ANXIETY

Please I am holding on to my only hope that someone will see this and help me, I’m at a loss, Im not functioning, I’m not interacting with my children and convinced something bad is going to happen as Im getting worse. I feel like I will faint all the time, despite normal vitals, and no major fluctuations. I have no will to live like this, there is no life that Im living, Im living in constant fear.

I am 41-year-old female who has had issues for several years. My current symptoms are pre-syncope ( feeling lightheaded, similar to holding breath too long). Parasthesias all over my body that come and go ( they can last weeks, days, hours). Balance issues (swaying, sometimes counters seem tipped/angled, floors seem off). Belching/acid burn in my throat. Adrenaline dumps (these can happen randomly, but I know that they are triggered almost anytime that I get acid burning in my throat. They now happen with stomach cramping too or right before bowel movements). During the adrenaline, my heart rate and blood pressure spike pretty high. I have a feeling of dissociation where I feel that my surroundings feel like and I’m not here. I have had issues where my breathing seems dysfunctional such as I feel like I’m over breathing or under breathing. I have also had an interoceptive issues where it feels like my chest or my heart are not functioning. The only way I can explain this is like if someone were to be underwater and they’re running out of breath, but they can’t actually take a breath because they’re underwater. It goes into a panic and I feel like I can’t breathe in or out. It’s like my body forgot, even though I’m actually breathing my oxygen remains normal, it says if my chest doesn’t feel like it’s doing much.

The lightheaded and presyncope and dizziness are happening daily now, and the sensations are more intense. I can also feel hot and cool blood rushing sensations in my body that make me feel unwell. I’m not able to maintain eye contact with Standing as I feel like I’m wobbling and will fall over. This morphed into anxiety and adrenaline dumps whenever I’m not able to be close to an exit or I’m overstimulated by fluorescent lights. Maintaining conversations feel very hard and I feel lots of parasthesias, swaying, perceived weakness, vision seems off and feel faint and shaky, it always escalates to adrenaline dumping.

I blink a lot, sometimes my face with grimace or move when I feel off balance. Sometimes have floor drop sensations. Sometimes bladder doesn’t seem to empty the first time.

Parasthesias are worse left sided.
They started with buzzing in my chest, now it’s a sandy barrier like numb feeling but the feeling returns and I also get cool menthol burning all over randomly.
Symptoms are worse with menstrual cycles
LEFT SIDE OF JAW FEELS NUMB LIKE LIDOCAINE
Most recent with the increase in dizziness and pre-syncope, I feel lots of pressure pain in back of head and neck and my neck feels weak/ticklish feeling like it wont support my head, and my head feels heavy.
I get hot and cold.
Mental issues seem to be getting worse because the symptoms are scaring me. I feel disassociated to the point where it’s affecting me and making me think I’m going crazy. I feel so scared of what is happening in my body that I can’t calm from this. Anytime I’m calm, i get even more symptoms. Just as I think I can do something, it changes or gets worse.

Past history
Many years back I would have heart racing and feel a bit panicky with large meals etc, if I would belch, my heart rate would return to normal, and then I would bloat back up in my heart rate would race, this pattern continued until I guess digestion would take place.
I had dizziness randomly.
I have OCD, health anxiety, high intellect, hyper mobile hands, stretchy skin on face. I had surgery for a cholesteatoma (mastoid), tonsils and adenoids removed, gall bladder removed. I would have bad adrenaline dumps. I saw a GI Doctor Who said they thought that I had MCAS. They told me adrenaline was my body’s way of keeping me out of anaphylaxis. I removed many foods and got down to about 7 and still had issues. At that point I developed ARFID ( a fear of eating and adding foods back) and a fear of medication. This went on for about 5 years. I had Bell’s palsy in 2017 with symptom resolution a few weeks later ( no herpes and didn’t take antivirals) I HAD A FEW TEETH PULLED AND RIGHT AROUND THE SAME TIME I DEVELOPED BUZZING IN MY CHEST THAT FELT LIKE NUMBNESS, IT SPREAD. I ALSO HAD RANDOM PATCHES OF GOOSEBUMP LIKE BUMPS, AND I WOULD SHIVER AND SHAKE UNCONTROLLABLY WITHOUT BEING COLD. THEN I HAD BURNING COOL MENTHOL SKIN FEELING AND THEN ITS BEEN PARASTHESIAS EVER SINCE. MY BALANCE HAS GOTTEN WORSE, I PHYSICALLY SWAY AND MY TOES AND CALVES MOVE TO KEEP BALANCE. I CANT STAND WITH EYES CLOSED. AT ONE POINT I LOOKED AT MY HUSBAND AND HE DIDNT LOOK AS FAMILIAR AND IT TOOK ME A WHILE TO THINK OF HIS NAME. I ALSO DEVELOPED WHAT SEEMS LIKE ADHD AND IM UNABLE TO RETAIN OR FOLLOLW CONVERSATIONS, ITS HARD TO KEEP EYE CONTACT AND IT FEELS OVERWHELMING. I MIX WORDS, FORGET EASILY AND OVERSTIMULATED VERY QUICK. IIN DECEMBER MY LOW FERRITIN OF MANY YEARS FINALLY DROPPED TO AN ANEMIC STAGE, I had a massive my heart rate went up to 190 during the anemia. And ever since then my balance has gotten worse, and I have been getting more pre-SYNCOPE, I’m also having headaches in the back of my head and neck that I did not have before along with feeling like my neck is not stable.

Normal tests
Carotid ultrasound
Brain MRI was normal a year ago before symptoms intensified
Heart monitor normal besides rare PVCs
Normal Echo
Normal catecholamines and plasma metanephramines
NORMAL CRP AND SED RATE

Normal Chest and abdomen ct besides liver hypodensities that likely represent cysts
MRI SPINE
C5-6 new left central disc extrusion (superimposed on previously described mild diffuse disc bulge) with T2 hyperintense annular fissure abutting and indenting the anterior margin of the spinal cord without compression or visible cord signal abnormality. No cervical peripheral nerve root impingement. Electronically signed by: David Loy, MD
Narrative
EXAMINATION: Magnetic resonance imaging (MRI) of the cervical spine without contrast HISTORY: Cervical pain: TECHNIQUE: Multiplanar multi-weighted MRI of the cervical spine was performed without intravenous contrast using the standard protocol. COMPARISON: 3/19/2024 FINDINGS: No acute fracture. Normal bone marrow. Normal alignment. Mild straightening. Normal craniocervical junction and visualized posterior fossa contents. No cervical spinal cord signal abnormality. See C5-6 below. Mild loss of intervertebral disc space height with new left central disc extrusion at C5-6 with T2 hyperintense annular fissure abutting the anterior thecal sac narrowing the central canal to 8.5 mm without cord compression. There is mild indentation of the ventral margin of the spinal cord similar to before. Intervertebral discs are otherwise normal. Normal uncovertebral and facet joints. No neural foraminal stenosis. Vertebral artery flow voids are normal as visualized. Ligaments and paravertebral soft tissues are normal. No muscular atrophy.

THORACIC SPINE: Vertebral Bodies: Few small vertebral body hemangiomas including T9 vertebral body. No suspicious marrow replacing lesion. Chronic mild anterior wedging T7 vertebral body with chronic appearing mild inferior endplate compression. Otherwise no suspicious loss of thoracic vertebral body height. Alignment: Slight rightward curvature of the thoracic spine. No significant listhesis. The facet joints are intact. Extradural: There are no abnormal extradural fluid collections or masses. Spinal Cord: Small central protrusion at T7-T8 mildly flattens the ventral cord without convincing cord signal abnormality. The thoracic spinal cord is otherwise normal in signal and morphology. Intervertebral discs: Mild degenerative changes seen most significant at T7-T8 where there is subtle loss of disc, degenerative endplate changes, and tiny osteophytes. Thoracic level: Small central protrusion at T7-T8 indents the ventral thecal sac without central spinal canal narrowing. The thoracic spinal canal is otherwise patent. Mild multilevel facet hypertrophy without high-grade neural foraminal narrowing. Paraspinal Soft Tissues: No posterior paraspinal hematoma. No prevertebral edema. Visualized Surrounding Organs and Viscera: No acute abnormality. IMPRESSION: 1. Mild degenerative changes of the thoracic spine most significant at T7-T8 where a small central protrusion indents the thecal sac with mild flattening of the thoracic cord but without associated cord signal abnormality. Thoracic spinal canal is otherwise patent. 2. No acute abnormality in the thoracic spine. For the purposes of quality control, this study was initially interpreted by teleradiology. There is no significant discrepancy. Electronically signed by: Louis Bonacorsi, M.D.
Narrative
EXAM: MRI CERVICAL SPINE WO CONTRAST, MRI THORACIC SPINE WO CONTRAST INDICATION: Myelopathy, acute, cervical spine COMPARISON: MRI 1/29/2019, CT 1/8/2023, 9/9/2021 TECHNIQUE/PROTOCOL: Multiplanar multisequence noncontrast MR sequences through the cervical and thoracic spine performed as separate acquisitions. FINDINGS: CERVICAL SPINE: Vertebral Bodies: No loss of vertebral body height. No suspicious marrow replacing lesion. Alignment: Straightening of cervical lordosis. No significant listhesis. The facet joints are intact. Extradural: No abnormal extradural fluid collections or masses. Spinal Cord: Mild flattening of the ventral cord at C5-C6. Cervical spinal cord is otherwise normal in signal and morphology. Intervertebral discs: Mild degenerative changes seen most significant at C5-C6 where there is subtle loss of disc, early degenerative endplate changes, and tiny osteophytes. Tiny annular fissure at C5-C6. Incidental note is made of mildly low-lying bilateral cerebellar tonsils, similar compared to 1/29/2019. C1-C2: The spinal canal is patent. C2-C3: Mild disc bulge without central spinal canal narrowing. Mild facet and uncovertebral hypertrophy contributes to mild left-sided neural foraminal narrowing. The right neural foramen is patent. C3-C4: Minimal disc bulge without central spinal canal narrowing mild facet and uncovertebral hypertrophy contributes to mild bilateral neural foraminal narrowing. C4-C5: Small central protrusion indents the ventral thecal sac abutting the ventral cord contributing to mild central spinal canal narrowing. Facet and uncovertebral hypertrophy contribute to mild bilateral neural foraminal narrowing. C5-C6: Broad-based disc bulge, tiny posterior osteophytes, and tiny right central extrusion indent the ventral thecal sac mildly flattening the ventral cord in combination with infolding of the ligamentum flavum contribute to moderate central spinal canal narrowing. Facet and uncovertebral hypertrophy contribute to moderate right and mild left neural foraminal narrowing. C6-C7: Small left central protrusion and tiny posterior osteophytes indent the ventral thecal sac and contributes to mild central spinal canal narrowing. Facet and uncovertebral hypertrophy without neural foraminal narrowing. C7-T1: The spinal canal and neural foramen are patent. Paraspinal Soft Tissues: No posterior paraspinal hematoma. No prevertebral edema. Neck Soft Tissues: No acute abnormality in the neck soft tissues. Slight asymmetric enlargement of the right thyroid lobe.

ABNORMAL TESTS

QSART-REDUCED SWEAT LEG
LOW FERRITIN
HISTORY OF PAST HIGH METHYLMALONIC ACID/LOW B12 (I INJECT 1X MONTHLY WITH NO ADVICE FROM MY PHYSICIANS)
LYME ANTIBODY ( THEY SAY NOT ENOUGH BANDS ARE POSITIVE TO SAY I HAVE A CURRENT INFECTION)
EBV ANTIBODIES.HIGH PGD2 BLOOD, SLIGHTLY ELEVATED N-METHYLHISTAMINE URINE-NEVER HAD AN ALLERGIC REACTION OR HIVES
WAS TOLD I HAVE CONVERGENCE INSUFFICIENCY
FGFR3 ANTIBODIES

PLEASE FEEL FREE TO ASK ANY QUESTIONS.I WILL BE GRATEFUL FOR ANY ADVICE
IF ANY PHYSICIAN FEELS THEY CAN HELP I WOULD BE INTERESTED IN ESTABLISHING

Does anyone else always feel light headed, pre-syncope all the time despite normal vital signs? Similar as if you hold your breath too long or maybe stood up too fast? I get this and then after I get lightheaded I will get adrenaline surges and I need to keep moving and I feel like I’m going to pass out or die.
Does anyone know what causes this when your vital signs are normal?

Is black decaf tea bad for MCAS? Does other people tolerate it?

Anyone feel liked counter tops/baby gates/floor/random things look tilted/angled?

Anyone look at the phone while laying on their side and it suddenly turns into a tilted angle like a rhombus?!