Deeply Frustrated at Pediatric Dr.

Hi All!

Low levels of Vit D runs in my family- I have a SNP that impairs absorption of D and I suspect my children have this variant as well. I 💯 should have pushed this harder- but my 13 year old has been complaining of exhaustion for months (years?). She’s been on the cusp of hypothyroidism and is neurodivergent and I’ve been pushing for most testing but her levels have been “normal”. They’ve been 20-22 with supplementation of about 15,000/week. She’s been struggling with taking pills so we moved her to a gummy :/ and lo and behold she’s been dizzy, short of breath, exhausted and had shortness of breath. I finally put the pieces together last night finally and am 99% sure it’s vit D deficiency that is making her feel horrible.

I’m so frustrated because she’s been seeing a pediatric endocrinologist at a highly regarded University hospital who knows that she’s been exhausted and has seen her very borderline levels - with fairly high supplementation, and never once noted it!

I am going to buy some drops and try myself to get her levels up.

I had no idea that 100 was a reasonable goal. I was taking 10,000 a day at one point and my levels were 80 and an endocrinologist freaked out at me saying I would damage my bones.

I apologize for the rant, I’m just (again) shocked at the level of knowledge/curiosity of so many healthcare providers.

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u/SnooCats1465 — 10 days ago

Fringe For Oldsters?

I’m hitting a milestone birthday next year and considering visiting Edinburgh Fringe to mark 50 years.

I’m also neurodivergent and kind of a baby about huge crowds. Should I scrap Edinburgh and find something more chill or is it worth sucking up for a bucket list adventure?

I’m a Taskmaster nerd and have begun the descent into the UK and AU and NZ comedy scenes and would be thrilled to see many of the comedians’ shows. I know this is something I’ll need to figure out but am having a hard time grasping the scope of the festival and the boots on the ground experience.

I love live music and theater and can handle that. Thank you! I hope those of you there now are having a blast!

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u/SnooCats1465 — 2 months ago

Taylor’s Wedding …..

Did Taylor just create the largest, most inclusive (of seemingly everyone she’s met or worked with) wedding at freaking MSG just so she could very, very, very clearly not invite Blake?
If so, well damn, we should all be a little afraid of Taylor and a little impressed at the level of petty.

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u/SnooCats1465 — 3 months ago