Repeat EUS for Staging Friday
After diagnosis, PET, Surg Onc, and Med Onc appointments. I’m finally getting a repeat EUS this coming Friday @WVU to stage and check KI67% nearly a year from the original “benign” EUS.
PET in late August was hot for primary tumor, plus 3 micro pancreatic tumors and local node.
Quite honestly, I’m still mad as hell at Vandalia/CAMC for botching this so bad/failing to investigate and now needing another anesthesia event to stage. There have been discussions, and I hope they’ll have to answer for their own actions.
Currently on Cabergoline 0.25mg twice a week for a 7mm micro benign pituitary tumor. Med Onc’s plan is Lanreotide injections once a month post EUS.
Honestly can’t say enough good things about WVU’s whole operation and how well the care team collaborates, plus the support and resources given.
Here we go.
Original thread posted below:
https://www.reddit.com/r/neuroendocrinetumors/s/MyGulBPz5N