u/Substantial_Lab21

Specifically regarding Hyperakusis?

My tinnitus sounds just like brown noise, but it doesn't cure my hyperacusis.

I breathe anger like oxygen. All my thoughts are angry. I have good reasons to feel angry too, and I wish I could say a word or two (hundred) to those who hurt me and abused me. But it's not allowed. It's bad manners to say you have been wronged. It's offensive to describe your experiences exactly how they happened because it damages the reputation of the perpetrators. Of course it does. And it should. Why is it not allowed to speak up in this world? Why must I lie down and be crushed to death?

Did anyone else here feel like their brain got damaged somehow by loud continuous noise? I felt like the noise broke a barrier and flooded my brain like water breaking a dam. I felt my neurons spasming from noise. I started sleeping much less since this event, and I grew much more sensitive to sound than I was already. It wasn't painful at first, just certain sounds started to seem surprisingly louder than how I remembered them to be. I keep get that same feeling when I am exposed to loud noise again, of noise flooding my brain as if there were no physical barrier between the sound source and my bare neurons. Like the sound waves are smashing directly against my nerve cells. I get like this echo effect throughout my skull. I feel a bit dizzy and also scared. Pain comes usually a bit later, and only inside my ear. Metalic sounds are a bit special because they feel like a razor blade on my eardrums. I guess everyone with hyperacusis experiences this, but I haven't seen anyone yet reporting this high feeling from sound. I guess I am the only one who feels their brain mashed with a fork by loud persistent noises. One would normally withdraw from such highly uncomfortable circumstances but I couldn't. I was tortured. It was my job and I needed the money, and I couldn't leave. I had to put up with more noise than my system was able to take. Today I break down from much less. What was normal sounds for me two months ago, now make me spasm. I don't know where this will end.

I find it paradoxical that the more I hate people and distrust everyone, the more I am in need of professional help. Clearly, therapists are also humans, not angels or advanced robots, so they are themselves part of the problem. How to solve this?

Yes, it looks as if I have the full range of ENT afflictions. Does anyone else experience something like this?

Hi all! I have had the worst experiences with ENT doctors and I simply don't know what to make of it. I wonder if other people are being treated by doctors as badly as I am. I got tinnitus and hyperacusis only because of noise at my work place. I needed to ask my employer to put me in a quieter station, and they said no, unless you bring a medical certificate requesting this. 7 months later I am seeing the 7th ENT doctor begging for such a medical certificate for my work place. Over and over I am being thrown out the door, often in a very rude manner and without a proper check-up. Twice I left the clinic in tears and suicidal. 7 months ago I only had tinnitus in one ear, the hyperacusis hadn't started yet, and I wasn't aware such a thing existed. Because I continued to suffer at work, I got tinnitus in both ears by now and the hyperacusis developed slowly to the point that it became very difficult for me to go see a doctor anymore, because the way there is killing me. I always return home with aching ears from the traffic. Despite going back to ENT with complains of worsened symptoms and telling them how hard it is for me even to travel to their clinic, I am shown the door and receive zero help. The doctors are literally lying to me, telling me that they will send me a medical certificate later by post, but they send nothing. When I try to send them an email, I find that they disabled the message function on their website or that they no longer take appointments. They refuse to send me the file with medical information they have on me, which is my right by law to ask for. Very strange things are happening. Without any medical proof that I am sick I can't continue asking my GP for sick notes but I also can't go to work, where I would only get sicker. My employer is deliberately placing me in the loudest work places available. So I see myself hit from all sides and my life completely destroyed. I don't have any family or close people that could look after me when I am no longer able to sustain my own existence because I can't leave the house. I can't imagine being homeless with hyperacusis. The worst thing is that I can't tolerate any form of hearing protection anymore - excessive use of hearing protection has actually largely contributed to my current condition. On one hand I can't not wear hearing protection when it's painfully loud, on the other hand any earplugs, any muffs cause me pain as well and they make the tinnitus seem unbearable. I am trying to fight the world with hyperacusis and without hearing protection. I haven't yet heard of a person with hyperacusis who can't tolerate hearing protection, but I am one, and I am a dying person.

Hello!

Before getting straight hyperacusis, I just had a high sensitivity to sound. One day I got ear pain because of the loud music played by colleagues at work, and that night I slept poorly, and then also the next night after that. The third day there was loud music again and again I got pain in my ears. But this time it was different. I felt something I never felt before: the noise seemed to be inside my head not outside of my head. It was as if the sound waves were reverberating from the walls of my skull creating like an echo effect. I went home feeling a little dizzy, and when it was quiet I could also tell that my tinnitus got louder. That night I could barely sleep, and since then I had a permanently reduced ability to sleep. So I used to sleep about 8-9 hours, suddenly I couldn't sleep more than 2 hours. At best I can pull 4 hours, when I have a good night, these days. I don't understand how can sound create such effect on the brain. Sometimes I feel like my brain has been mashed with a fork, after being exposed to some loud noise even for a short while. I have seen some doctors, but only blank stares when I recount this. Does anyone have an idea what exactly does sound to the brain and the whole body, beyond just the ears?

For context, I just got diagnosed with autism and ADHD, which could explain in my opinion, at least partly the extreme reaction I have to noise, it's just that no one has really sat down to talk to me about this. They tell me I got tinnitus because of stress, and literally ignoring the fact that I developed hyperacusis. I feel like my life is over. I am scared to leave my room, because the world is suddenly too loud. What do other people know about this? Any similar experiences?

I had an MRT for my spine, and my hyperacussis and tinnitus got worse as a results. I just didn't know MRTs are so incredibly loud, otherwise I wouldn't have done it. But I need an MRT for my ankle as well, this is important. I don't know if there's any way to have a quieter MRT for the foot, or if any methods exist to protect my hearing while in there, other than with the ear protection they provide, which is useless to me. I was wondering if anyone has any creative suggestions. Thank you!

edit: they provided both earmuffs and earplugs (foam), I mean USELESS.

I was thinking of bringing a couple of pillows to put over my ears, or a few meters of sound-absorbing foam to wrap around my head. Did anyone ever try something like this?

Can you guys help me out here, please?