▲ 2 r/POTS

Inflammatory POTS

I think I have inflammatory pots. Dr Driscoll said it to me already couple years ago. But there hasnt been any effective treatment for this. I have gpcr antibodies which means antibodies in angiotensin, adrenic, muscarin and endothelial receptors. I have also high il6 and below ranges TNFa. I have a bit high inflammation marker. Also endometriosis and possible hidradenitis suppurativa which is inflammatory or autoimmune condition. And most of all I have hyperadrenic pots which is very difficult to treat. Beta blockers and clonidine both makes my brain and heart not to get enough blood, affects blood flow. Clonidine makes my pem more difficult. Pretty severe cfs also. Please tell me what you would do in my situation? Any lifestyle changes, supplements, meds, tests?

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u/Sweet_2026 — 24 days ago

I got off of lexapro with very difficulta withdrawal. First too fast and then very slow over many years. I developed dysautonomia, pots during that. After jumping off of very slow dose i developed full hyperadrenic pots. I have been bedridden now almost three years with cfs and pots. Anyone experienced this? How to heal?

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u/Sweet_2026 — 2 months ago

I got off of lexapro with very difficulta withdrawal. First too fast and then very slow over many years. I developed dysautonomia, pots during that. After jumping off of very slow dose i developed full hyperadrenic pots. I have been bedridden now almost three years with cfs and pots. Anyone experienced this? How to heal?

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u/Sweet_2026 — 2 months ago
▲ 5 r/cfs

I got clonidine to hyperpots. It first helped my ortostatic intolerance and made it easier to stand. But it did my cfs worse.
After couple month i think i got tolerance and it deosnt help me. Just makes symptoms worse. Anyone experiences?

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u/Sweet_2026 — 2 months ago
▲ 1 r/POTS

Has someone tried huprezine a instead of mestinon for pots? Any experiences? Dr driscoll has this on parasymplus.

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u/Sweet_2026 — 2 months ago