u/SwitchIndependent714

I don't know what to do right now... I have a chronic severe hair loss since 1 year now, it looks inflammatory i have servere digestive issues since 5 years now but this hair inflammation really started in April 2025 after antibiotics use.

I have SIBO, histamine intolerance and surely undiagnosed MCAS...

My symptoms are :

-Scalp redness that get triggered by food supplement and drugs

-Pins and needles sensation and itchy or burning sensation when triggered

-My hair changed texture (I had straight hair and now they are all frizzy like pili torti)

-I often shed a lot of very small hair (anagen hair loss)

-My hair basically just detached when I comb it or when I pass my hand through the scalp

-Lots of hair never regrew

-Some hair are being actively miniaturized

-I have more likely folliculitis because I have pimple (I use antiseptic shampoo everyday and it seems to help a bit)

-When I triggered my MCAS I have a massive shed in the next few hours

-I have hair casts on my hair, sometimes very close to the bulb

-Lots hair fall with a white dot bulb and overtime bulbs get smaller with each shedding

-I loose on every area of the head even on my lower back head/neck area

I have seen a dermatologist but he told me that it was nothing more than Effluvium telogene with a small seborrheic dermatitis... I am pretty sure it is not.

I have multiple nutrients deficiency, I am fixing B9 and B12 right now and I will soon start vitamin D and Iron.

I have seen plenty of docs and they all seem to not care and don't want to help.. my blood test came back with no inflammation.

I have folliculitis for sure because of the pimples but I am sure this is not what cause my shedding.

Also I am in the process of finding a doc for getting a proper diagnosed for MCAS and it is often acknowledge with MCAS that Alopecia Areata is the most common hair loss type.

But I don't think it is AA only because of the hair casts and pili torti...

To make it better I run out of money because I am chronicly ill and I am mostly bedridden...

I don't know what to do right now... I have a chronic severe hair loss since 1 year now, it looks inflammatory i have servere digestive issues since 5 years now but this hair inflammation really started in April 2025 after antibiotics use.

I have SIBO, histamine intolerance and surely undiagnosed MCAS...

My symptoms are :

-Scalp redness that get triggered by food supplement and drugs

-Pins and needles sensation and itchy or burning sensation when triggered

-My hair changed texture (I had straight hair and now they are all frizzy like pili torti)

-I often shed a lot of very small hair (anagen hair loss)

-My hair basically just detached when I comb it or when I pass my hand through the scalp

-Lots of hair never regrew

-Some hair are being actively miniaturized

-I have more likely folliculitis because I have pimple (I use antiseptic shampoo everyday and it seems to help a bit)

-When I triggered my MCAS I have a massive shed in the next few hours

-I have hair casts on my hair, sometimes very close to the bulb

-Lots hair fall with a white dot bulb and overtime bulbs get smaller with each shedding

-I loose on every area of the head even on my lower back head/neck area

I have seen a dermatologist but he told me that it was nothing more than Effluvium telogene with a small seborrheic dermatitis... I am pretty sure it is not.

I have multiple nutrients deficiency, I am fixing B9 and B12 right now and I will soon start vitamin D and Iron.

I have seen plenty of docs and they all seem to not care and don't want to help.. my blood test came back with no inflammation.

I also have my gums that are inflamed when my scalp is inflamed so I am pretty sure it is something deep like an auto-immune condition..

I tried to study a bit my possibility and think this may be a mix of LPP, TE and folliculitis. I have folliculitis for sur because of the pimples but I am sure this is not what cause my shedding.

Also I am in the process of finding a doc for getting a proper diagnosed for MCAS and it is often acknowledge with MCAS that Alopecia Areata is the most common hair loss type.

But I don't think it is AA only because of the hair casts and pili torti...

To make it better I run out of money because I am chronicly ill and I am mostly bedridden...