My hairloss is all around my scalp and I lost so much when I first got diagnosed and now I feel like I'm going through another episode again and it's worse than the first one.
My hair is constantly falling and Clobetasol isn't working.
Do I just make peace with my bald head?
I have been having heavy diffused shedding for a year now. Scalp becomes inflamed, itchy and tingling around hair that falls out shortly after. Does this look like LPP?
I’ve seen a lot of people talk about metformin and I’m starting to wonder has anyone actually used it long enough to see any results? If so, can you please share?
It just spreads more and more. Such a weird condition idk what to do
I use to have really bad flareups on my skull. I kinda have it under control. I’ve taken medications and I’ve seen doctors and this is what I’m left with. Honestly, it’s robbed me of so much my confidence, my social skills and friends. I don’t know where to go from here and I feel stuck I’m ready to throw in the towel i have used minoxidil while I was having flareups, only my hairline grew, as soon as I stopped everything went back and I lost more hair every year I keep losing more hair this year it got up to my hairline
Any advice or coping skills? Should I try to go back on minox or just let it be and see where nature takes me I’m 22 years old.
Has anyone who is under the age of 30 successfully stopped their LPP? i feel like those of us who are younger have more widespread and harder to treat disease and would like to be proven wrong. I have issues with my hair literally all over my body
I have itching that comes and go especially when it's hot or i feel nervous,my hairloss is diffuse and i have aga but nothing worked for it, could this be lpp+aga?
In the middle of an inflammatory flare - I've been getting steroid shots every six weeks (two rounds so far) and I'm on doxy, LDN, min, dut, and zyrtec. I was supposed to rotate between a topical steroid (1x every two days) and opzelura (2x a day, except when applying the topical steroid). At my last appointment, my scalp apparently showed new "irritation" (not follicular inflammation -- not perifollicular redness or scaling -- but pinkness between the follicles, on my scalp itself) so I was recommended to stop the opzelura since that was suspected to be cause as it was the only notable change to my routine.
I've also been dealing with a persistent case of perioral dermatitis on my face (never had it for month than a week or two before, but going on eight months now). It can be triggered by topical steroids. Even though I'm only applying it to my scalp and go to great lengths to prevent transfer to my face (make sure to wash my hands after application and before anytime I wash my face, almost never touch my face now except for skincare, sleep with a hair bonnet and on my back in case the topical has transferred to my pillow, etc), I'm scared that I may be retriggering the PD. I don't feel like the topical steroids even help that much for my inflammation and one derm I saw (though not a scarring / hair loss expert) told me to stop because the topicals don't penetrate the skin deep enough to treat inflammation anyways.
Has anyone chosen to stop topical steroids, and what has been their experience? Did they notice more shedding or symptoms?
I am 29 and have had CCCA for about 5 years. I think it is staying the same. I would be happy if it stays the same and doesn’t progress! I feel like it is flaring up now, my scalp feels a bit tender. I have been suffering from more stress and anxiety so that might be the trigger. I’m mostly just posting an update and to vent. This is so devastating. I feel like mine isn’t too terribly bad, I just have no clue how it is going to progress.
Read some of the symptoms and I do have a tingling/burning scalp discomfort. Idk if it’s because I used a derma stamp yesterday before I actually did the research on what type of hair loss this is or what. And yeah I know now not to use a derma stamp or roller.
Anyone with diffuse hairloss and prominent perifollicular scaling/colars? Are those enough for scarring alopecia to be diagnosed? Biopsy show inflammation without scarring but is inconclusive. Second biopsy shows only sebderm.
Is it only scarring alopecia that can cause this or are there any other conditions? My scalp is mildly painful and sensitive, dry and oily in same time, no redness, no scarring signs, loss is absolutely diffuse. No response to many meds (nizoral, ciclopirox, zinc pyrithione, salycilic acid, topical steroids, ldn, doxycycline, hydroxy, fin, dut, oral minoxidil)
Anyone else?
Hey all, gas anyone here been treated by Holistic Practitioners of Trichology for CCCA or LPP. The main Trichologist is Nadia Hughes I found her on tiktok and she looks to have had very successful results. They practice more holistic routes to hair gain/ stopping inflammation and have products on their website formulated for CCCA. I would like to know about first hand testimonials..
Hi, I’ve been lurking here for awhile and now I want to ask a community a question.
I‘m worried about my hairline and parting. Does it look normal to anyone? I felt like it’s getting sparse there and it’s giving me tremendous amount of anxiety. I don’t know what’s real and what’s not. I’m terrified of having scarring alopecia.
My scalp is itchy for the last two weeks. If you zoom in the pictures closely, you can see some redness. Does my scalp look fine to you? Is this inflammation or something is going on? The amount of my hair that falls out is increasing. Every time I wash and detangle, it is between 100-125. Should I be worried?
Thank you so much for any and all help.
Do you think this could be scarring? I have had diffuse hair loss for two years and about 8 months ago the top right spot has been becoming more and more sparse and seems to be growing. I have dandruff that won’t go away with treatment and a tender scalp. My eyebrows fall out in the front portion but then mostly grow back every 4 months or so. I’ve seen 3 derms who said that they don’t think it’s scarring but no one will do a biopsy. I just feel in my heart of hearts that this is more than just chronic Telogen effluvium. I also have dermatitis around my eyes and mouth but I calm it with zoryve daily. Oh and my nails have horizontal ridges.
Hello,
I have a few worries about having scarring alopecia.
So my scalp has been itching for about 2 years now on a daily basis. I went to a dermatologist who told me I had nothing and gave a little relieving spray that didn’t work whatsoever. In December, I started experiencing a particularly smelly scalp as well as much more itching. Also, my scalp started to hurt when touched, and I would sometimes wake up with the roots of my hair hurting like hell.
And, 3 weeks ago, my hair started to fall like crazy. The shedding is diffused, I don’t have delimited holes, and the places where I’m shedding burn and itch a lot. When I take pictures of it, I don’t see any pores or anything, it’s pretty white and smooth.
The hair loss is the most noticeable on the side of my head, and it’s currently spreading fast on the top and behind.
I managed to get an appointment with my doctor who told me I had nothing and that a soothing shampoo, few oils and pills for hair strength would do the trick. Safe to say I got mad and managed to get a blood test I’ll do tomorrow as well as a letter to see a dermatologist.
I live in a city in France where getting a dermatologist appointment is top 3 hardest thing to do in your life and it’s not third place.
—> My questions are :
- Does the scarring of the hair follicule happen right when the hair fall? If not, is there a time limit of action to save it ? Would an appointment in 1 month maximum be too late?
- Is there any way to stop the hair shedding ? My doctor refused to give me cortisone in any way, and it was the only thing that soothed me when I was applying it earlier in the year. But if it’s an inflammation, I don’t think a soothing shampoo is going to stop the shedding whatsoever ?
Thanks in advance for your help.
I added direct sunlight photos/ and some with no sun so you can see the full extent of the damage. I took the tips Yall have given me last month. I spent all summer trying to see how much hair I can grow out (I’m an educator) now that schools back in sesh I’m wondering if I should keep going or just shave it off. I’ve documented my progress for the past 3 years so if you look back this is the worse it’s ever been. But I’ve taken the advice more cloberasol 2x a day 2 weeks on 1 week off. Doxy now switch to Minocycline instead. I laid off the ketoconozyle shampoo. Minoxidil oral 1x a day. I’ve also trying to run 30min everyday I only bring that up because the days I run my inflammation is down when I don’t inclination goes up. So yea be honest should I keep trying to grow it out or should I just shave everything off
Pioglitazone found non-inferior to hydroxychloroquine as first line treatment. Pioglitazone prevented progression in 87.5 % of cases. One caveat, in my mind, is that the pioglitazone treated patients with a smaller amount of LPP scalp involvement than the hydroxychloroquine group so I don’t think they can be directly comparable here. However, researchers concluded no significant differences between pioglitazone and hydroxychloroquine in terms of LPPAI reduction and global photographic assessment (GPA).
Here is study link. I do not have full text:
I got irritant and allergic contact dermititis that led to scarring and Inflammatory alopecia in the form of folliculitis and up to seven ridges in my scalp and rapid hairloss,
After being misdiognosed and given the wrong treatment.
Well I just got my scans back,
After being gaslit by Dermatology saying these ridges in my scalp are just my skull,
And that is just aga, and I have no Inflammation,
The scans show I clearly have ridges in my scalp, described as palpable ridges in the scans,
And a blood test show I have a botanical allergy,
And over 1000 pictures of my scalp show clear Inflamation and Seb derm of every kind.
And my biopsy shows lymphacytic Inflamatory reaction surrounds my blood vessels in my superficial and mid dermal layer,
With 42/46 follicles significantly miniturised,
And there's me of course telling them exactly how all this occured right from the start lol
And that it started unilaterally only after applying undiluted rosemary oil to brush my fringe,
I've more than cracked the case all on my own,
However I still have not been diagnosed and given treatment,
And every single last doctor Ive been put in front of has dismissed all info given,
Ommited it when handing over info,
and in multiple cases said I said things I did not,
Including saying to radiology that I've said the ridges were in my skull leading to in radiologists words the scans only legally being allowed to be viewed in relation to my skull,
Pathology was led to say I have well established aga by the dermatologist,
And twice given more info and stuck to their conclusion even stating no signs of Irritant contact dermititis,
Which is factually untrue,
Lymphacytic Inflamation is a clinical sign.
Take care of yourselves,
Be you're own advocate,
If something isn't right stand up for yourself,
Don't allow yourself to be bullied by doctors because they messed up.