u/Educational_Pay2878

I feel hopeless. I think I got misdiagnosed AGAIN by one of the best medical trichologist of my city.

My whole story:

I bleached my hair twice, the last time last year in May, maybe it was the event which activated this whole thing idk then I shaved them all to let them grow again but I've noticed my hair getting similar to straw especially on my sides when they started regrowing and very thin on top

Then I started noticing thinning in December on my left side (and then also on the right side) after noticing for a while some kind of hair loss and itching.

I've always had dandruff for years so my scalp itching was nothing new but I did notice some kind of worsening.

In March I said "ok this is serious" as the thinning on the sides and crown seemed getting worse and people told me I had diffuse unpatterned alopecia (DUPA) or retrograde or lichen plano pilaris

I go to my first dermatologist and she tells me "You just have AGA, retrograde pattern, treat it with minoxidil 5%", then I go to the second dermatologist, another well respected dermatologist which is also specialized on hair loss, in April and he tells me "You're fine buddy return in two years"

I started obsessing over this a bit and I noticed lots people with DUPA or Retrograde find out they have lichen Plano Pilaris

I also get bloods work done and I have extremely low vitamin d (11.1 Ng/ml) and insulin resistance (2.98 HOMA index)

I get panicked and after not even a month I stop minoxidil and I book a visit to a quite known medical trichologist which is also a important member of the Italian trichology foundation, someone who felt like she'd know what to do with my hair.

On May 12 she visits me and tells me "You're fine, you got no LPP or DUPA which is only relevant when you need a hair transplant which is not ur case, your hair thinning is caused by stress, anxiety, the lack of vitamin d, lack of sleep and also the insulin resistance"

I ask her if it's possible to get a biopsy done since I suspect LPP considering my hair loss, the people with a similar experience who told me I probably have it, the low vitamin d, the sides thinning, the scalp being slightly red in some pics and the itching but she said "Yeah biopsy is the gold standard to diagnose LPP but if I gave you a biopsy my colleagues would probably think I've gone insane and would laugh at me"

I believed her at first due to her curriculum and the fact that she also made an article about LPP on her website so she knows about it quite well but then I notice that on the paper where she put the therapy she gave me to improve my hair she didn't put a diagnosis, she didn't tell me the cause and told me it's not Telogen Effluvium either

I feel so lost, it's killing me and it's the third which refused me to give me a biopsy even tho I have all symptoms

She says I don't have scarring but I think I don't have OBVIOUS scarring as it's diffuse and/or I don't have scarring YET

I want to save my hair this is cruel it was the only thing I liked about myself since I also have underbite gynecomastia and I hate my looks completely

They all used a dermatoscope but the latest one, the trichologist, used a digital dermatoscope which was connected to her laptop and showed everything

https://imgur.com/a/OSS6kJj other pics + the paper of the therapy she gave me

I'm fed up with all this. One of the best trichologists in my countey said there was nothing wrong with me.

I went to the first real medical expert trichologist, after consulting two dermatologists, and she said it was just my vitamin D deficiency, insulin resistance, and anxiety.

She used a digital dermatoscope. I asked for a biopsy because I was itching and I was scared of pre scarring LPP, but she said, "Yes, it's the gold standard for diagnosis, but my colleagues would laugh if I told you to do one."

She prescribed me a treatment and told me to come back in December, saying she was confident the hair would grow back in the thinning areas.

I asked if it could be DUPA or retrograde alopecia, as the first dermatologist had said (the first dermatologist diagnosed me with retrograde Androgenetic alopecia and gave me minoxidil), but she said, "No, and she never should have prescribed minoxidil because you don't need it." She also said that DUPA is actually just a symptom and only relevant when a hair transplant is needed, which she said isn't the case with me.

I'm so tired; somehow I know I have non-scarring LPP, but she said I don't.

She said I don't have AGA either, but what the heck, I have diffuse thinning!

I went to the first trichologist after 2 dermatologists and she said this is just because of my low vitamin d, insulin resistance and anxiety

She used a digital dermoscope, I did ask to have a biopsy since I do have itching but she said "yeah it's the golden standard to diagnose it but my colleagues would laugh at me if I told you to get one"

She gave me a therapy and told me to return in December, she said she's sure I'm going to regrow my hair in the thinned zones

I asked if it could be DUPA or retrograde alopecia like the first dermatologist said but she said "No and she should've never given you minoxidil as you don't need it" and also that DUPA is actually just a symptom and it's just relevant when a hair transplant is necessary which is not my case according to her

I'm so tired, somehow I know I have non-scarring LPP but she said I don't

She said I don't have AGA either wtf

My story:

I started regrowing my hair after shaving my hair in August 2025 because I wanted to get rid of bleached hair and so I shaved almost completely, really short hair (I got them bleached on May 2025)

They regrew back but felt a bit weird on the sides and sometiems itched but I never really cared too much and thought ehh it's probably normal

In December I first noticed I had some king of thinning on the side and I started freaking out a bit but then I said "eh it might be just stress or so"

In March I started obsessing over this because I said "no this can't be normal" and I noticed, other than the sides, diffuse thinning on the top

I went to two dermatologists, the first performed a pull test which was negative (so no TE(?)) and diagnosed me with Androgenetic Alopecia with retrograde pattern, gave me Minoxidil and told me to cure them with it, no Propecia tho, just minoxidil

But j felt like it wasn't enough, this was too fast for it to be just AGA

So I've got my blood test checked and everything came back as normal besides slightly high estrogen and prolactin and a SEVERE vitamin D deficiency (11.1 ng/l)

I started taking vitamin d supplements as well and I went to a second dermatologist and he said "You have nothing at all come back in 2 years"

I felt lost, I felt like nobody could understand what I have

Mom helped me going through this hell and booked a visit for one of the best trichologist in my city and I'll finally get visited by this trichologist on May 12th, 3 days left.

This is ruining my life completely and it ruined 2 friendships I had and the comic convention I was so happy to go to.

People online told me everything

First they said Retrograde Alopecia, then they said DUPA (terrifying!), then they said Lichen Planus Pilaris and it scares me a lot because it seems like it is definetely the case as 3 people with LPP told me theirs looked exactly like mine.

I'm so scared!

My story:

I started regrowing my hair after shaving my hair in August 2025 because I wanted to get rid of bleached hair and so I shaved almost completely, really short hair (I got them bleached on May 2025)

They regrew back but felt a bit weird on the sides and sometiems itched but I never really cared too much and thought ehh it's probably normal

In December I first noticed I had some king of thinning on the side and I started freaking out a bit but then I said "eh it might be just stress or so"

In March I started obsessing over this because I said "no this can't be normal" and I noticed, other than the sides, diffuse thinning on the top

I went to two dermatologists, the first performed a pull test which was negative (so no TE(?)) and diagnosed me with Androgenetic Alopecia with retrograde pattern, gave me Minoxidil and told me to cure them with it, no Propecia tho, just minoxidil

But j felt like it wasn't enough, this was too fast for it to be just AGA

So I've got my blood test checked and everything came back as normal besides slightly high estrogen and prolactin and a SEVERE vitamin D deficiency (11.1 ng/l)

I started taking vitamin d supplements as well and I went to a second dermatologist and he said "You have nothing at all come back in 2 years"

I felt lost, I felt like nobody could understand what I have

Mom helped me going through this hell and booked a visit for one of the best trichologist in my city and I'll finally get visited by this trichologist on May 12th, 3 days left.

This is ruining my life completely and it ruined 2 friendships I had and the comic convention I was so happy to go to.

People online told me everything

First they said Retrograde Alopecia, then they said DUPA (terrifying!), then they said Lichen Planus Pilaris and it scares me a lot because it seems like it is definetely the case as 3 people with LPP told me theirs looked exactly like mine.

I'm so scared

My story:

I started regrowing my hair after shaving my hair in August 2025 because I wanted to get rid of bleached hair and so I shaved almost completely, really short hair (I got them bleached on May 2025)

They regrew back but felt a bit weird on the sides and sometiems itched but I never really cared too much and thought ehh it's probably normal

In December I first noticed I had some king of thinning on the side and I started freaking out a bit but then I said "eh it might be just stress or so"

In March I started obsessing over this because I said "no this can't be normal" and I noticed, other than the sides, diffuse thinning on the top

I went to two dermatologists, the first performed a pull test which was negative (so no TE(?)) and diagnosed me with Androgenetic Alopecia with retrograde pattern, gave me Minoxidil and told me to cure them with it, no Propecia tho, just minoxidil

But j felt like it wasn't enough, this was too fast for it to be just AGA

So I've got my blood test checked and everything came back as normal besides slightly high estrogen and prolactin and a SEVERE vitamin D deficiency (11.1 ng/l)

I started taking vitamin d supplements as well and I went to a second dermatologist and he said "You have nothing at all come back in 2 years"

I felt lost, I felt like nobody could understand what I have

Mom helped me going through this hell and booked a visit for one of the best trichologist in my city and I'll finally get visited by this trichologist on May 12th, 3 days left.

This is ruining my life completely and it ruined 2 friendships I had and the comic convention I was so happy to go to.

People online told me everything

First they said Retrograde Alopecia, then they said DUPA (terrifying!), then they said Lichen Planus Pilaris and it scares me a lot because it seems like it is definetely the case as 3 people with LPP told me theirs looked exactly like mine.

I'm so scared

Does it look like diffuse LPP? I'm terrified.

I'm itchy, not terribly so, but it gets worse when I sweat. Some areas burn a little, but it could be due to the minoxidil since I'm using minoxidil 5% but I see no improvement yet (1 month)

I've been to two dermatologists, and one diagnosed me with AGA + retrograde, while the other didn't diagnose anything, he said I'm fine and to return in 2 years. But I've heard on other subreddits that three or four people have told me I probably have LPP (possibly the diffuse form), and that it often starts as retrograde. What scares me is that a few years ago, a guy told me I looked like him and that he had diffuse LPP, but he was misdiagnosed with AGA and I've seen posts of people with my hair loss and saying they had it.

I haven't had a scalp biopsy yet. I will if necessary, but it's quite expensive, so I don't know if I can afford it.

I'm using 5% minoxidil, and I don't know if it's getting better because I've only been using it for a month, but I'd say it's gotten a little worse.

I also have these little spots on my scalp that look like scars, but I don't know, and I have diffuse thinning on the top of my head.

To be honest, this is ruining my life.

I've also started taking vitamin D supplements because I have a severe deficiency (11.1 ng/ml), but I don't think it's telogen effluvium because the pull test came back negative.

I hate this life