Got different result when I saw the Sjogren's specialist
First saw a PA for diagnosis because to see the board-certified Sjogren's specialist was going to be a year out. Was dissatisfied by the PA's assessment. Asked for an appointment to the specialist even if I had to wait a year, but strangely, she had an opening in a couple weeks (a cancellation I guess). The PA only diagnosed me with sicca. With the same info, the specialist diagnosed me with Sjogren's, although not very far progressed. She also said an ultrasound would be available whereas the PA insisted the lip biopsy was the way to go, even though I said I didn't want it. Apparently the department does do the ultrasounds.
The specialist is leaving the state at the end of the month, but at least I have some sense of where I stand and what to look out for, moving forward.
This specialist is the clinical supervisor for this PA, but apparently the PA is not up to date in their approach.
I post all this to provide perspective to anyone who feels they did not get a thorough workup from rheumatology. Always advocate for yourself - pretty much no one else is going to do that, at least not once you're an adult.