My dad is receiving home hospice and I need help with a serious question
Hello all. So my dad is 81 and I’m 51 and my mom is 79. He has kidney cancer and has a tumour wrapped around his left kidney. He wants to sleep. That’s all. The hospice nurse came over with the Counsellor and we talked about what to expect. Here’s my issue.
My mom used to be a nurse. She retired 25 years ago. And she still has the energy of a 50 year old. But I think that she gets bitter when other nurses come in and want to treat my father because she feels she can do it and because she’s his wife she should do it. I don’t think that’s the best idea. He’s on dilaudid and lorazepam and two other meds. When he’s in pain my mom keeps thinking that he’s just saying that because he wants to sleep. At this point what’s that difference. Let he sleep. My mom can be a bit hard to deal with. I get it that she’s been married to him for 55 years but I don’t want my dad to suffer. She keeps trying to give him Tylenol and I tell her he’s beyond Tylenol mom. I know she is doing some things wrong but when the hospice nurse comes over i feel she’s not telling the nurse everything. Like she’s trying to keep him alive but her methods are hurting my dad. She thinks she’s back in nurse mode and I keep telling her to stop it. Let the hospice nurses and doctors decide if should get a higher dose or take it more often. She’s trying to handle everything herself and it’s causing so much anxiety amongst me and her and my brother and sister. He just wants to sleep because he said he wants to die. And doesn’t want suffer. Ugh. I’m sorry. I’m trying to word this correctly but this all happened so fast. Any advice on what I can tell her that the regular hospice people don’t ? Thanks so much.