I am new to hellinisim, I set up my altar in my art studio because I live in a very conservative house. I've been collecting things and offering my art and flowers to Aphrodite. I love how its coming along!
Do not get me wrong I am all about educating people on HS. I am not shy about telling others about what I experince but sometimes it can be really frustrating especially when they don't really seem to understand what a chronic disease is or are only concerned about how it looks and the vanity of it all, which is honestly my last concern.
I am currently stage 3, I've tried so many medicines, natural remedies and everything in between, I have heard so many suggestions from so many people that it can be exhausting when some one suggests something new. I understand that the people who care for me will want me to feel better its just frustrating when I let them know that I've tried so many things and try to explain to them why certain things won't work but they keep insisting.
I am not outwardly vocal with my daily pain when I am experiencing it, so to others its not something I deal with daily but it is. Everyday I wake up and the first thing on my mind is my skin, taking care of it, minimizing pain, its alot and Explaining to others the complexity of this disease can be really overwhelming sometimes.
Explaining to people that this is a chronic disease and that treatment varies with each person can be so frustrating because everyone assumes you can just throw medicine at it and everything will magically get better. It's not a commonly known illness so people don't seem to understand the severity of it, the physical and mental load of dealing with this disease EVERYDAY.
It can just be frustrating when you know your body, know what you experience, what you have tried, the severity of your disease and have to explain to others who think that the way it looks is the worst part or the entirety of the disease.
I have stage 3 HS and have been managing my diet very strictly as of late. I've recently been having some stomach problems that seem to be close to IBD, I have a doctors appointment soon to get checked out i was just wondering if anyone else has experienced stomach issues like chrons disease with their HS.
I've been having really bad bloating and a heaviness in my stomach with certain foods. It's mainly been foods that I have already been trying to avoid because of HS. My tummy will feel heavy after certain meals and I get really fatigued, I also have occasionally been seeing blood in my stool with these flare ups. If I eat really strict I don't seem to have any stomach flareups or blood or anything. Like I said I am scheduled to talk with my doctor to figure out what was wrong. I am just wondering if anyone has gone through something similar with IBD and having an inflammatory immune system.
So I’ve been realizing how sensitive my skin is not only where my HS is but all over. I was wondering if anyone had any natural soap recommendations, preferably bar soap. I have been using soap from the Palestine soap cooperative which I Love, I just want to mix it up every now and again. I’d love a soap that doesn’t dry my skin out too much as I’ve realized that that is one of the main reasons why my skin reacts to certain soap. If you have any recommendations I’d love to hear it! It’s definitely a bonus if it’s from a small business which I prefer to support!!!
I’ve been managing my diet lately especially with my PCOS and pre diabetic diagnosis. I’ve been cutting trigger foods out that could not only affect my HS but also my other diagnosis.
I’ve also been loosely following the AIP diet which has been hard because I love to cook but no food is worth the pain of HS. I’ve been exploring different recipes cutting out things that have been obvious triggers but I was wondering if anyone had any food triggers that don’t seem to be commonly known about or any external triggers that contribute to your symptoms of HS.
I’ve had HS for a while now, I’m currently at stage 3. I’ve also found out I have PCOS and am pre diabetic so I’ve been taking extra care of my diet and making sure to cut out any trigger foods and foods that don’t work with PCOS and diabetes. I’ve only been doing this for about 2 weeks now, making sure to eat in specific intervals to help my pre diabetes and manage my blood sugar to not contribute to flare ups. So far I’ve noticed a good bit of improvement during the day, my skin hasn’t been as swollen and my reoccurring open wounds seem to be healing more. My energy levels and fatigue have also drasically improved. I have noticed that at night right before bed some of my nodules swell up, they last about halfway into the night but usually go down in the morning. I’m wondering if anyone else has experienced this and have any tips for managing or improving the swelling. Also if i have swelling on nodules at night that aren’t draining they don’t seem to come to head and just go back down by the morning.
For context me (24f) and my (25f) partner have been dating for 5 years now. My partner has Always been terrible with time. She is almost always late to appointments, bad at being punctual and will procrastinate all day if we have errands to run. I on the other hand am a lot stricter with time, I prefer to get things done as early as possible in the day and usually show up early to appointments etc.
When it comes to her own things she is up and ready to go yet anything else she procrastinates all day. And I am struggling with waiting on her when she procrastinates.
If I plan to do something together or want to go out I usually end up waiting, sometimes for hours before she is ready to attempt to leave and sometimes I wait so long I don’t even want to go anymore.
We have talked about this before and I let her know I get anxiety waiting on her. It makes me feel like my things always have to be put on hold because I’m waiting on her while if she wants to do something I get right up and am ready. This has made me not want to rely on her and prefer to do things on my own.
I would like advice on how I could manage better when I am waiting on her or a better way to convey how I
feel because I have to wait on her.