u/Zealousideal_Truth67

My uncle (77M) died yesterday several years after his initial Parkinson’s diagnosis. In the last year or so he developed Parkinson’s Disease Dementia, and while his body was still strong, he had hallucinations, had started to wander, and got violent a few times. About a week and a half ago he was taken to the ER because he was so agitated. They couldn’t calm him down, first putting him in restraints that he escaped, and later in some type of cage. My aunt met with palliative care and eventually decided to bring him home under hospice’s care. He was sedated, and the nurse said he had 1-3 days left.

When my dad (my uncle’s brother) visited him the next day, he was already unconscious, with ragged breathing. My dad is having a tough time, feeling like he could have calmed him down if he’d seen him in the hospital - he was always able to do that - and feeling like there should have been another step of my uncle going to a care facility before hospice. The progression felt quick, from seeing my uncle three weeks ago and him being able to do things like use the restroom on his own, to palliative care and death.

My aunt and uncle had spoken before it got to this point that they wouldn’t prolong life. I trust these wishes and their decision, and I’m also hoping others who have been through this might be able to share if some of these symptoms and the progression were aligned with what they experienced. I think I’m trying to understand more about the speed of decline, the hospital not being able to sedate the patient, and any experiences with hospice for someone with PD and PDD. Thanks in advance for sharing.

with hospice for someone with PD or PDD?

Has anyone ever dealt with a partner who has chronic sleep deprivation but is very resistant to getting help? This has been an ongoing issue with my partner now for over a year and a half. When he’s overtired, it’s like he’s drunk. He stumbles, slurs his words, doesn’t understand reality. He was diagnosed with severe sleep apnea and has a CPAP but doesn’t wear it regularly. He’s on a GLP-1 and has lost a significant amount of weight, so hopefully that would help the apnea, but the overall issue hasn’t gone away. Also, the symptoms seem to be triggered through emotional distress. It got bad when he went through a toxic period at work or it when he has a difficult conversation with his parents or when he takes care of our kid solo. I’ve been patient and supportive, but without progress it’s really wearing on me, especially when he tells me it won’t happen anymore, like it’s something he can control through sheer will. Just curious if anyone else out there has ever had this happen.