After getting long COVID I acquired a couple autoimmune disease that are not very fun.
Wondering if others have similar experiences of getting diagnosed with autoimmune disease(s) after long COVID?
I got vulva and anal lichen sclerosis and oral lichen planus. How about you?
Hey everyone. I’m new here. I have been having oral health issues for 5 years that seem to resemble oral lichen planus. I have an appointment with my family doctor in a couple weeks to facilitate a referral to a specialist.
I am curious about your journeys to diagnosis. Did you suffer for years before diagnosis?
I had a family doctor that told me my mouth sores were just canker sores for the last 5 years. I got a new doctor who sent me to a rheumatologist to rule out Behçet’s disease. Luckily I don’t have Behçet’s disease.
But I do have troublesome mouth symptoms that seem to occur 3 times a year like a “flare up”. My symptoms include mouth pain, sore red, sometimes white spots on my gums. Sometimes sores on the insides of my cheek. Sometimes I have small bumps on my bottom lip that look like clear fluid is in there. Dry mouth. Burning mouth. It feel very hard to eat when these symptoms happen and it takes 2-3 weeks for them to go away. I would have to eat bland foods until things improved. I gargled with salt water. Drank peppermint tea to soothe the mouth pain.
I have told my dentist about this multiple times and he told me it was stress and unfortunately I was never symptomatic during my appointments. I have great oral hygiene so it’s not a hygiene problem.
I also noticed the flare ups were more likely to happen the week before my period.
Also these symptoms coincided with perimenopause so part of me just was dealing with this horrible mouth pain and sores because I just thought perhaps this is my mouth now as a perimenopausal woman.
Another interesting thing to note is I got diagnosed with lichen sclerosis on my vulva in 2021 and I noticed this is when I started to have mouth symptoms and also started to feel perimenopausal.
Just wondering what your diagnosis journeys were and if we have similarities.
I have LS and recently started taking vaginal estrogen as I’m in perimenopause.
I don’t want to use my fingers to apply it and prefer the disposable applicators.
Is there a brand that is safe and non toxic for LS that you use??
I discovered I had bladder leakage because my underwear would be moist and at the end of the day my underwear and crotch of my pants would smell like urine.
Anything that I’ve read about bladder leakage in perimenopause is about leaking when laughing or coughing.
Has anyone else had this issue and if so, what have you done to deal with it? Saw a urologist today but she recommended pill for overactive bladder but she said it’s more for when you leak when you cough/laugh. So I was confused.
This is a weird thing but the only time I noticed the bladder leakage while it was happening when I was in the bath tub, the temperature of my urine was different than the water so I could feel it happening. So I wondered if it happens when I’m resting and relaxed? And then what does that mean, that my pelvic floor is weak and tight? Or one or the other?
Edited to add: started vaginal estrogen a year ago and still no improvement.
Tried pelvic floor physio four years ago when after having covid, the severe coughing would make me pee myself. The physio resolved that issue. This peeing without noticing it is a new issue in the last year or so.