u/chronically-badass

My dr said to take nurtec every other day to break this migraine along with getting ajovy shot which I did Monday. It helps some, but it's always back by the end of the day. But for how long can I take the nurtec every other day? I thought she said a week but would it be bad if I did it for longer? She did do a refill but didn't specify.

I'm confused by my neuros directions and she just referred me out to UCSF Headache Clinic because my 6 week migraine has not responded to ajovy x1, nurtec 3 days in a row, steroid pack, tiz 4mg or compazine at the ER. So now I have a debilitating headache and have to wait 2-8 weeks for a new doctor 😭 if I can do the nurtec every other day i would prefer that...

As my 6 week migraine continues while I wait for ajovy to work (first dose was Monday) I'm looking into every possible treatment.

Was talking with my remote EMDR therapist about the acute migraine protocol which involves a touch therapy, myofascial release/head compression portion. They would be fine leading the EMDR part of that if myself and my partner got trained in the head compression portion by a physical therapist. I just found a PT so that's great. It involves compression alternating on both temples and occipital/forehead, at the myofascial points.

Has anyone gotten relief or less headache days from either EMDR, myofascial release, or both? Do you have any videos online you like about myofascial release? I've been doing EMDR for other trauma including pain and medical trauma for years but never needed it for migraine.

(( I usually only get a few migraines a year so having a headache everyday for 6 weeks is terrifying. I know I had a month of terrible sleep and eating due to other health issues, and stopped my magnesium and memantine at the same time which I'm sure is why stuck now, but I would love to be out of this mess 😭 steroids didn't work.I'm a caregiver for my disabled parent with no one to take care of me and it sucks. ))

Nurtec is the first thing I tried after failing triptans, but I didn't try it until I was 3 weeks until a 5 week (still) migraine. 1st and 2nd dose helped for a few days and dr said to try 3 consecutive days then discontinue - after 2nd dose i got what might be eczema on the back of my hands and my palms itched/burned that night but it went away.

Does this mean I can't try other meds in the same class? The nurtec was a huge relief and honestly I wasn't sure if was a migraine until ER dr convinced me, up until then I thought it was a sinus issue or a stroke.

I tried a steroid pack and my migraine went away and now it's coming back as I taper off. Should I ask my neuro for a cgrp to try to break it? I'm kind of freaked out. I've never had a migraine for more than a few days but it was a perfect storm of insomnia/not eating for other reasons. The ER refused tx since at the time it was responding to Tylenol and isn't 10/10 pain but it is persistent. I have an appt Monday and am trying to figure out my options.

I've had a migraine for a month and my dr wanted me to start methylprednisolone (26mg day one then taper down) to break it, and rx Tizanidine for break through pain (a muscle relaxer). Pharmacy said it's okay to take them together with spacing but honestly I'm so sensitive to both, but also the steroid insomnia and blood sugar stuff always makes me so uncomfortable and distressed. I've been on Prednisone for up to a month before for bronchitis and RA and it suuucked. Lower doses but for a longer time

Just wondering if anyone has done something similar and how you felt? Or if you've done this steroid taper before I would love to hear your experience! I'm having anxiety about starting new meds generally. Ugh.

Have you ever taken less than 24mg medrol to start the taper for a long migraine and still found it helpful? I've taken Prednisone before and it gave me bad panic attacks, insomnia, crazy blood sugar etc and I don't think I'm going to be able to tolerate the full 24mg day one even spread out :/

Background

On my first 28 day migraine due to a bad series of other chronic illness stuff that resulted in insomnia and not eating so... Now I'm here. On my 2nd day of nurtec (Nuero recommended 3 days in a row) but it doesn't fully take away the pain. Waiting for my endo to approve the medrol because I'm prediabetic. It's definitely more bearable with the nurtec but before this I got maybe 2-4 migraines a year. I filled this nurtec in 2024 and haven't needed it until now.

I tried the ER a week ago, it was so bad I thought I was having a stroke, they didn't treat bc it was still responding to Tylenol. But now I'm getting rebound headache after Tylenol and ibuprofen I think made my stomach hurt. I'm also slowly restarting memantine. CBD and THC help a bit, but can't take during the day. Dr also rx tizandinde which I've never tried before, maybe there's still a residual tension headache after the nurtec? I'm so frustrated and tired!!! I have such bad health anxiety now after trying so many other meds over the last 20 years and having odd reactions. I've put off two gallbladder scans, a pulmonologist appt etc because I can't get there (I'm a caregiver for my disabled partner who can't drive often).

Any thoughts around medrol welcome, it freaks me out but I also can't function like this.

Has anyone experienced more or less pain on CGRP inhibitors like nurtec or ubrevly? I know there are a lot of calcium channels in the GI system, which is why nausea and abdominal pain are side effects... My GI had no idea. I have no other medications on hand to try and the ER won't treat me for calls reasons.

I've had GB and abdominal pain off and on since last fall and keep having to push my HIDA scan back because of other illnesses, including my current 3 week migraine. I took ibuprofen for it today and my gallbladder is not happy 😭 but also this migraine is so life alteringly painful