u/curiositykilledsleep

So… I am not sure if what I’m experiencing is ASMR, but when I listen through the Bluetooth on my phone I very often get kind of a tickle. I don’t mean the vibration of the aids like you might get if they are too loose fitting. But like… I just kind of tense up like I would if someone was behind me blowing on my neck. I don’t know that it’s fully asmr because I wouldn’t describe it as relaxing. And it’s not like a static or a pins and needles either. (Although sometimes a rush of parenthesis accompanies it its is fleeting and flows through fast like a chill) Just feels ticklish and might give me occasionally chills or shudders. It’s definitely connected to more ASMR type sounds! High frequency airy clicky stuff.

When I hear similar sounds in real life through my aids they can be annoying but in a painful way not at all a ticklish way. (And much much less so now that I’ve been wearing for a few years) but this other feeling with the Bluetooth I have not gotten used to. Maybe cause I avoid using the Bluetooth to listen as it makes me squirm.

Anyone else relate? Also is it even asmr? Or something else entirely?

Do any of yall have simultaneous symptoms of both hypermobility and fibromatosis? I think I might have both but it’s odd cause they are contradictory… dupuytrens is when collagen type 3 is overproduced and your body creates a bunch of stuff scar tissue in the connective tissue making your hand curl in like a claw. The literal opposite of the flexy fingers in hypermobility. But I tend to get many symptoms of hypermobility in my pelvis and neck and knees etc. I don’t pass the Brighton score for hEDS… especially not with these stiff fingers.. does anyone have both? Is it even possible to have both?

I get very frequent frisson and emotional type chills. My reaction to asmr sounds is closer to a dramatic frisson than the normally described gentle relaxing and sustained tingling. Something I also get the feeling from disgust or shock of something sinister (like true crime). I get less dramatic rushes of tingles through my thighs for just about any emotional connection or reaction or a mental “aha” moment.

I get this multiple times a day. Like very frequently. I always have and thought it was normal but learned it’s not… and I can’t help but wonder if it is related to a deregulated or over-reactive nervous system. I am not officially diagnosed with dysautonomia. But I have wondered for other reasons if I might have issues with my nervous system and blood flow regulation. I have a really hard time with temperature regulation. It’s more that my body OVER-reacts to temp changes than that it under reacts. Raynauds in the cold, swollen limbs in the heat. And I can’t help but wonder if the frisson thing is related to the same underlying issues?

TBH I don’t know for sure if this is a dysautonomia thing or if it is something else entirely. But I just know my body over-reacts to things.

I get the tingles to ASMR type sounds and stimuli, Especially if the sound is coming from behind me. But the way ASMR is described or defined says that the tingles are gentle, more sustained and relaxing. Mine are a quick rush that often makes my eardrums rumble. More like chills. A quick rush or shiver/tingle….. Which is how frisson is described!

I get what I THINK is a more gentle “frisson” in my front thighs quite frequently (many times a day) to emotional or just interesting stimuli. People often call it “musical chills” but I get it for much more than music…if watching some cool science explanation, viewing beautiful art or nature, connecting with a character in a movie or just the “aha moment” of basically anything. I definitely get this thigh version more when sitting in bed or on the couch but this is also where I consume media so I don’t know if that is positional or not. Sometimes I can’t identify a trigger tbh.

But I get the more dramatic head/neck/spine chills sometimes with very emotional stimuli and music and even shocking revelations or feelings of disgust…but also to ASMR sounds! So… I guess I’m wondering if there’s a real technical difference? Is it defined by the trigger, or by the nature of the feeling? Or if this is too abnormal… do I maybe need to seek medical advice? 😅🤷🏼‍♀️ (half joke half serious…cause I DO think my nervous system or vascular regulation is a maybe a bit messed up at least with body temp regulation)

I get the tingles to asmr type sounds and stimuli. Especially if the sound is coming from BEHIND me. But the way asmr is described or defined says that the tingles are gentle, more sustained and relaxing. Mine are a quick rush that may even make my eardrums kind of shake. More like chills. Which is how frisson is described.

I get what I think is a more gentle “frisson” in my front thighs quite frequently to emotional or just interesting stimuli. People often call it “musical chills” but I get it for much more than music…if watching some cool science explanation, viewing beautiful art or nature, connecting with a character in a movie or just the “aha moment” of literally anything. I get the more dramatic head/neck/spine chills sometimes with very emotional stimuli but also to asmr sounds! So…. Am I not experiencing asmr? It is quick, dramatic, and tickles. Makes me kind of shiver or shake it off.

I’m 42…I want/need to get a full-time career job. I only taught HS one year after college before quitting to do part-time work-from-home / flexible side jobs while my kids were young.

I would love to get back into teaching full time (I think?🤷🏼‍♀️) but I have an issue with hearing loss. I do wear hearing aids and for everyday life, I am totally fine hearing and understanding most people in most situations. I’ve been subbing the past year and it has become clear to me that the classroom presents much more challenges in this regard than everyday life does. I also have worried about the political climate and pressure on teachers to be perfectly scripted and never accidentally say the wrong thing without becoming a local news headline.

I have considered seeking another career due to these reasons…but after looking into it for the past year…I don’t believe I can even FIND something that PAYS as well as teaching (the irony🙃) without getting another degree! Not to mention many jobs have similar challenges to someone with hearing loss. I have done many low paying side gig type jobs…I sell crafts, I play music gigs, last summer I drove a bobcat scooping stinky compost all day… but I need a steady full-time real career with benefits and living wage. The things I have found in my area that seem more “career” sounding have still been about $15/hr without benefits and maybe go up to like $25/hr with many years of experience. (And despite applying I still haven’t even gotten an interview 😕).

I’m currently working as a sub, it’s about $100/day. And because of our unique area being by 2 universities in a conservative religious community, teaching and subbing is actually pretty competitive. It’s often hard to even snag a sub job before they are taken within seconds, and if I didn’t have any people specifically requesting me I’d Probly only be working 1-2 days a week. Teaching in my local district starts at about $60,000. That would be a miracle to me to have right now. I haven’t even seen a job in my area of certification come up locally all year though (secondary FACS) I don’t know what to do…😣

Are caption glasses a practical solution? Is there other alternatives that might be more practical for my situation as a teacher?

More details on my specific situation:

I want to get back into teaching full time👩🏼‍🏫. (secondary FACS) I only taught HS one year after college before quitting to do part-time work-from-home-mom lifestyle while my kids were young. My hearing was bad back then and was a bit of a struggle but not as bad as now. I’ve been subbing this past year and have seen that in many classroom situations my hearing presents a significant challenge. Ironically it is especially bad when it’s QUIET. 🤐The kids are all working silently and one kid will need help but talks so softly. They never want to speak up loud enough due to the whole class hearing. 😅🤦🏼‍♀️ Secondly, announcements and phone calls from the office are near impossible for me. 🙉I have to ask the kids to repeat what was announced and often hand a random student the phone….which ISN’T ideal. 😆🤷🏼‍♀️ It can also be pretty ridiculous during a lecture when having discussions. I sometimes miss-hear and the kids will all snicker at the misunderstanding or at me asking them 5 times to repeat. 😳😬

My loss is steep ski slope pattern (normal lows, profound highs). I DO wear my hearing aids… and for everyday life I am fine hearing and understanding most people in most situations. But the classroom does present much more challenges for me than everyday life. I have considered seeking another career due to it…but after looking into it for the past year…I don’t believe I can FIND something that PAYS as well (the irony🙃) without getting another degree! And I do love teaching… and so many other jobs have similar challenges😣.