#9 Enhertu today. Dose increase.

#9 Enhertu today. Dose increase.

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Hey all, how are you doing? 😊

I just wanted to update because I know when I started different chemos I was really interested in other people's experiences on them so I've been sharing my experiences on enhertu.

My dosage was increased today because I've gained some weight from being on prednisone. I like that we increased my dosage because my last PET scan showed some areas were less avid and some were more avid so overall it's considered stable. And of course I'd like to dream of one day being NEAD although idk if that's even possible in my case.

Anyway long story shortish Enhertu gave me mild pneumonitis when I first started on it and I didn't have any breathing difficulties or any symptoms like that.

We took a break from the enhertu and put me on prednisone and I've been on it ever since, and my pneumonitis has been gone ever since that first little scare.

So far my side effects with enhertu has been fatigue, lots of fatigue. I've gotten better at managing that with caffeine, I like the V8 energy drinks best for this.

I've also occasionally gotten really bad heartburn usually at night and usually only for a few days after my infusion. I manage this with pepcid complete that one of my friends recommended to me and it works great.

So far my morning routine is to take my prednisone and my zofran at the same time,

and drink at least one energy drink or coffee.

My evening routine is to take a pain pill and an olanzapine to help me sleep through the night without pain and olanzapine helps with nausea too.

I highly recommend the olanzapine for anyone with trouble sleeping.

Sometimes after my enhertu infusions I still have tons of energy from the premeds and other times I've been exhausted. Today I was just a little tired and took a short nap after but I feel really good now since I took a nap.

I feel really lucky that my symptoms haven't been too terrible overall although I have also occasionally had diarrhea and nausea and vomiting. When that has happened I felt better after getting fluids from the cancer center.

Anyway I hope you're all doing well and everyone feel free to share other tips for whatever works for you for your symptoms.

u/dumplinglifesaver — 6 days ago
▲ 4 r/cancer

Anyone else with a CHEK2 mutation and cancer? What kind of cancer do you have?

I got genetic testing done shortly after my cancer diagnosis and they found a CHEK2 mutation.

I have stage four breast cancer.

I guess this gene mutation is linked to other types of cancers too and I wasn't sure how rare or common it is to have this mutation.

I was just curious about it.

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u/dumplinglifesaver — 11 days ago
▲ 14 r/cancer

Core memory you'd like to share?

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Hello everyone. I was wondering if any of you had a memory about your treatment or cancer experience that you would like to share?

This doesn't have to be a positive memory, but it can be if you want.

You can also share as many memories as you like.

I just find it nice to be able to read and relate to other people's experiences especially since sometimes it feels like people who don't have cancer really can't relate and have a hard time even empathizing sometimes.

Anyway my memory I'd like to share is that when I was in the hospital I had a peg tube and couldn't eat, and I was also having a hard time drinking plain water.

I wanted sweet tea really badly but the kitchen didn't have sweet tea.

I mentioned it to one of the nurses and she made me two pitchers of sweet tea and kept them in the fridge at the nurse's station and she even wrote up a little card about how she made it and put that on my wipe off board in my room. That way if I ran out of sweet tea one of the other nurses would be able to make me more.

I thought that was so nice of her and I even kept the card with the tea instructions when I left the hospital.

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u/dumplinglifesaver — 17 days ago

#8 Enhertu yesterday

Hey all hope you're doing well.

I wanted to write about my 8th enhertu infusion because I like to keep these posts as a journal and I think it helps other people to see how the treatments go, I know I get curious and search for posts like this too.

Anyway my 8th enhertu infusion was yesterday.

I drank two v8 energy drinks yesterday before/during my infusion and it's worth mentioning because those things give me such a good caffeine boost without a crash later I highly recommend them.

Anyway I also get premeds in my iv and I get dexamethasone pills and I'm on a low dose of prednisone right now.

My husband and I sat through my infusion then we went out for breakfast.

Then I still felt good so we went to the mall. I walked and pushed my wheelchair for a while and only had to sit in it briefly at the end of the mall visit.

Then we went to the art museum and I got a lot of walking there while pushing my wheelchair and I didn't have to sit in it at all. I highly recommend a wheelchair if you guys get tired it really helps to even just have it to lean on and obviously it's great to sit in when you get tired.

Mine is actually called a transfer chair and my dad was able to give it to me because he already had one so I know I am lucky I didn't have to buy one since I assume they can be expensive but maybe there are programs/resources you can look into to get one?

Anyway then after the art museum we went out to dinner! We got pizza and it was delicious.

I was so surprised I felt so good and was able to do so much but I really think the v8 energy drinks helped the most and I'm not even kidding.

I'm really getting the hang of handling things as long as I don't get sick on top of the cancer.

When I get a cold or flu it's been awful.

Anyway I hope you're all doing well and I hope your treatments are going well. 💜

u/dumplinglifesaver — 26 days ago

Feeling a little better! How are you?

Hey all! I have felt terrible for a while but I'm doing a little better today.

It's been a week and a half since my last chemo which was my #7 Enhertu.

I had to go get fluids on Friday because I'd had diarrhea for like four days straight and threw up on Friday too.

Weirdly this was the first time my side effects were so bad from the Enhertu normally it just makes me really tired for a week.

Anyway the fluids got rid of the diarrhea but I still didn't feel great. Still I highly recommend getting fluids if you can when you need them, it really helps.

Yesterday I still felt terrible but today I woke up feeling a bit better.

I had a V8 energy drink which I LOVE and can not recommend enough,

And I was able to walk across the field to go visit my folks for the first time in like a week and a half which was nice because I usually visit them in the mornings.

Then this afternoon I sat outside in the sun for a while which was nice too.

Anyway I hope you're all doing well.

I'm honestly just happy to feel more "normal" today because I've been feeling so atrocious for a couple months.

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u/dumplinglifesaver — 1 month ago

Night Hawk Steak N Taters 7/10

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I followed the oven instructions for this meal instead of the microwave.

The potatoes didn't turn out crispy at all they were very soft which is why I didn't rate this higher.

The steak was really good imo and nicely salted.

I liked this meal overall.

7/10.

u/dumplinglifesaver — 1 month ago

How are you all doing? Vent post.

I feel like shit.

I had a cold for like a month straight but it's finally gone.

I've been very dizzy for like a month and a half.

I got a brain MRI on Monday and found out my brain is still clear which is nice, but it also means my dizziness is just a big question mark and I have no idea when it will end.

Started having gut issues yesterday and today and I'm just tired of feeling like shit.

It's weird I got diagnosed de novo June 2025 and I'm finally getting down in the dumps about it.

I just want to feel better.

I want to have energy to cook and do my hobbies and yesterday I spent four hours sitting in the living room wishing I was in my bedroom because I didn't have the energy to move.

Hope you're all doing okay.

Feel free to vent here, nobody in my real life can relate to any of this at all so I barely even bother to complain about anything.

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u/dumplinglifesaver — 1 month ago
▲ 69 r/cancer

I have a brain MRI in an hour.

Edit:

Thanks for all the support everyone I got my results back and my brain is still doing okay and everything was unremarkable 💜💜💜💜

Hey all. I have stage four breast cancer diagnosed a little over a year ago.

I'm an idiot and didn't call my cancer center when I started feeling really dizzy and I'd go blind briefly during the dizzy spells and I'd drop things.

I also went to sit down a few times in midair instead of on an actual seat and had to realize and catch myself so I wouldn't fall.

This went on for a few weeks in between my appointments and I just chalked it up to me also being sick with a cold or maybe the steroids I was on or maybe low blood pressure.

But I told my oncologist at my appointment on Friday and they scheduled me for a brain MRI first thing this morning so now I'm kind of scared.

Anyway I don't even know why I'm posting here I'm just scared. I know people live a long time with brain mets sometimes but if I'm already having these symptoms from them I just wonder how much worse it will get and how quickly and I've only made it a little over a year from my diagnosis so far and I'm just really sad right now.

Anyway I hope you're all doing well and I'll update this when I get my results. I really hope it's not in my brain but it's all through my spine and was in my clivus bone when I was first diagnosed so I'm just not feeling very hopeful right now.

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u/dumplinglifesaver — 1 month ago

#7 Enhertu and need a brain MRI

Hey all how are we doing?

I had my #7 Enhertu infusion today.

A few weeks ago I got a cold on top of the cancer and that's the second time I've had a cold in addition to the cancer. (I was diagnosed in June 2025)

Whenever I've gotten a cold while sick with the cancer I also get weird symptoms like confusion when I'm tired or when I wake up in the middle of the night. And the cold seems to last forever like a few weeks before I can kick it.

These last few weeks have been especially odd though, like extreme dizziness when I stand up and then I've realized I also temporarily go blind during these spells, I'll drop things or hold my cup sideways so stuff spills out of it because I can't see. I even tried to sit down a few times in midair because I misjudged where the chair or toilet was so then I have to catch myself in midair and be like okay that's not where I need to sit down.

So that's been very weird.

Luckily I get my chemo infusions every three weeks and I always see my oncologist before my infusions. I say that's lucky because I see that a lot of people don't see their oncologist as often.

Anyway so I saw him today and I told him about my symptoms and he said he'd like to schedule me for a brain MRI just in case. Also I should have another PET scan scheduled soon which is good because my last PET scan actually looked really good.

Anyway we sort of guessed around at what could be causing my symptoms whether it's that I'm on prednisone, the cold I had, low blood pressure maybe.

Neither of us think it's the Enhertu because I've been tolerating that quite well and really only get fatigued from that.

Also I had progression before I got on the Enhertu when I was just on herceptin and perjeta, but once I got on the Enhertu we saw really positive results on my scans.

I just wanted to make that clear because I don't want anyone to worry about Enhertu giving them these symptoms.

I did have mild pneumonitis initially with the enhertu but we got that solved by taking a break from the enhertu and doing just prednisone and then going back onto the enhertu.

Anyway these posts are a journal of sorts for me but I also know how helpful it can be to read what everyone else is going through so this is just me sharing I guess.

Feel free to share how you all are doing 💗

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u/dumplinglifesaver — 2 months ago

#6 Enhertu

Hey everyone, how are we doing? I had my #6 Enhertu infusion a little over a week ago.

I've also been sick with a cold for a little longer than that.

I'm also really dizzy lately and I'm not sure if it's because of being on prednisone or what. Maybe low blood pressure, it feels like low blood pressure but I read if anything the steroids should be increasing my blood pressure so that's odd.

Anyway I'm just trucking along. I hope you're all doing okay. I was a little grumpy and feeling sorry for myself yesterday because I have no energy.

I am usually lacking energy for about a week after chemo anyway but then to have a cold on top of it it's not great.

Anyway hope you're all doing okay. 💗

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u/dumplinglifesaver — 2 months ago
▲ 47 r/cancer

Any funny stories to share?

Last time I was at the cancer center they asked me "No allergies, right?" Like they always do and I said "Nope, lucky me!" And she started laughing and then I started laughing too. She said it was just the way I said it but I was like yeah I didn't really think of how funny it is, I'm here with stage four breast cancer but I'm lucky I don't have any allergies 😆

Anyway do you all have any funny stories you'd like to share?

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u/dumplinglifesaver — 3 months ago

Feeling crummy.

How are we all doing? I'm not doing so hot. I had my fifth Enhertu infusion on Thursday and it's Tuesday now so it's been like five days and I'm just exhausted.

I feel whiny for even feeling crappy which is also weird but I know my symptoms could be worse and have been worse.

Idk I guess I'm just having a hard time right now.

Hope you're all doing well. 💗

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u/dumplinglifesaver — 3 months ago

#5 Enhertu today. How are you all doing?

I had my #5 enhertu today. Felt really good at the infusion and then had lunch. Got really tired in the car on the way home but took a little nap once I got home and I feel decent right now. A little brain foggy too.

Overall I'm doing well and my lungs looked good on my last scan which is great because initially after 3 Enhertu infusions I had to take a break due to mild pneumonitis.

But after my fourth infusion my lungs are still good and hopefully that continues. They have me on prednisone in addition to the enhertu. And dexamethasone on chemo days and for a few days after chemo.

Anyway just wanted to share because I know when I was starting I really liked being able to read other people's experiences so I had some idea of what to expect.

Anyway one of the nurses also let me go through a whole bunch of stickers and 3d toys and pick out what I liked so that was super fun today.

Hope you're all doing well. 💗💜💙

u/dumplinglifesaver — 3 months ago
▲ 100 r/sewing

My reversible jackets.

I make these. I have a lot of fun making these. They don't take very long to make. I already have fabric picked out to make a couple more soon. The last one pictured here (pink and purple) is a gift for someone.

I don't follow a pattern, these are made entirely out of rectangle pieces. Simple patch pockets on each side. Woven cotton fabric although I'd love to make some more flowy ones out of rayon if I could ever find any rayon.

u/dumplinglifesaver — 3 months ago

My latest reversible jacket.

I make these reversible jackets. This one is a gift for someone. I have a lot of fun making and wearing these.

u/dumplinglifesaver — 3 months ago

How are we all doing?

I've had a lot of appointments already this month which has been kind of annoying but I also just reminded myself that I basically had two months off of treatment before that.

I'm back on Enhertu again and I had taken a break from it because I developed mild pneumonitis.

Now I've had my fourth Enhertu infusion and just had a cat scan this morning to see how my lungs are doing.

If it goes well I've got another Enhertu infusion in a couple weeks. So fingers crossed for clear lungs! My last PET scan was really good after only three Enhertu infusions so I'm really hoping I can keep going with this treatment.

How are you doing? How is treatment going?

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u/dumplinglifesaver — 3 months ago

How are you all doing? #4 Enhertu today.

Hello everyone, how are we doing today?

I've been off treatment for a couple months to recover from some pneumonitis caused by enhertu but it was very mild.

I had my fourth enhertu treatment today because we are trying it again since it was so effective against the cancer before.

I took prednisone this morning too and that usually gives me tons of energy but I fell asleep in the car on the way home and then napped most of the rest of the day!

Oh well, fingers crossed the enhertu is already doing its thing just like before.

Hope you're all doing well and treatment is going well.

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u/dumplinglifesaver — 4 months ago
▲ 60 r/trees

I just realized my dog is right pawed.

Never thought about it before.

Drank a thc drink.

Realized my dog is right handed/pawed.

That is all.

u/dumplinglifesaver — 4 months ago

What's your bedtime routine?

For me I have two pillowcases that I put fresh ice packs in and I sleep with the ice packs on my stomach and near my neck.

I also have lots of pillows that I cuddle.

I also have two dogs that sleep in my bed with me.

I also have a mouth guard because I clench my jaw when I sleep.

Anyway my routine is so good that even if I'm not tired I can make myself tired by putting in my mouth guard and cuddling my ice packs. I get really good sleep.

What about you? Does your nighttime routine help you sleep well?

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u/dumplinglifesaver — 4 months ago

The Originals should have been more opulent.

Anyone else wonder why the original vampires weren't just constantly doing whatever they wanted after being alive for so long? They could compel anyone and should be rich after so many years alive but they only threw one big party in TVD when Esther met Elena.

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It seems weird given that Rebekah also wanted to go to a high school dance. Why didn't they just have their own dance and invite everyone?

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It would have also been interesting to see more examples of riches they'd acquired over time, especially old riches from different time periods.

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I'm only in season 4 of The Originals and I think it does a slightly better job of showing their wealth but not really.

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I just know if I was a thousand year old vampire I would have acquired so many shiny things over the years lol.

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What do you all think?

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u/dumplinglifesaver — 4 months ago