u/festivehedgehog

I’ve been on 500mg of Diamox for about a month and have lost about 5 lbs.

My neurologist has really emphasized weight loss to increase my chances of going into remission and a target BMI of 24. Mine is 28. I already eat a vegetarian diet and got my 10K steps each day as a teacher. Before Diamox, I’d have the energy to go to the gym a few days per week too. After starting Diamox, my energy and clear-headedness was often replaced by a constant dull nausea, irritability, lethargy, and brain fog.

I started Wegovy this morning. I went out of network (US insurance didn’t cover it) to pay for it. I also have unmedicated ADHD that I usually use lots of coffee to get things done.

Here’s my report back from Day 1:

-I took my Wegovy about an hour before anything else first thing in the morning. It was hard to only have a sip of water because the Diamox already makes me so thirsty, especially when I just wake up. I need a better hydration game plan for day 2.

-I had a boiled egg and a banana for breakfast and lots and lots of water with no issues with nausea from the Wegovy. I then took the Diamox on a full stomach and with lots of water.

-About 15 minutes later, I got a barf bag ready, but thankfully nothing happened. It was the Diamox giving me its regular dull nausea, but today’s was somewhat more pronounced.

-I went to lay back down in bed for a bit but realized my mind was AWAKE and had a lot of ideas for things I wanted to DO today. Thankfully the nausea/weirdness subsided 15-30 minutes after that, and I was able to get up and slowly move about. (It’s also the first day of my period, and I had a major headache from dehydration that morning/overnight with not waking up as much as I usually do on Diamox to drink water/pee repeatedly.

-Slowly but steadily, I somehow cleaned the whole house for fun?! And rearranged some things?

-The Wegovy is only 1.5 mg today for the starting dose, and I experienced no change to my appetite. I was still nonstop hungry all day long. However, my working memory, general mood, alertness, and being able to transition from one task to another without cognitive exhaustion today has been a lot better than usual without the jittery feeling of espresso. I didn’t even have coffee this morning.

TLDR: Possibly placebo. Way too early to say. No major interactions between Diamox and Wegovy. Also no change to appetite Day 1. However, my ADHD and general mood possibly seems to love the Wegovy. It’s a keeper.

So, like many of us, sparkling water (of practically every brand and flavor) has tasted terrible since I started Diamox. However, I recently realized there’s one exception for me! Spindrift!

A coworker offered me one as I was packing up my classroom last week, and it tasted *normal.* Spindrift already tasted pretty different for sparkling water (maybe due to having some actual fruit juice in it), so maybe this is why Diamox hasn’t affected it for me.

Since then, I’ve bought several packs. All of the flavors are normal and familiar to me. Thank goodness for some normalcy in this past several weeks (diagnosis to Diamox to new daily life).

Were any of you able to decrease the grade successfully with Diamox, a shunt, weight-loss, or something else?

I just got diagnosed a few weeks ago.

I’m at urgent care because it’s Saturday, and I can’t message my neurologist.

My CO2 is 19 (low) and Chloride is 110 (high). Obviously, Google and Diamox’s pharmaceutical warning sheets are scaring me that I might have metabolic acidosis. Are these numbers normal for Diamox? I’ve been on it for a week now and hate it.

I went in to urgent care for abdominal pain. I’m having severe cramping in my lower abdomen. They prescribed me muscle relaxers, said a must have pulled a muscle in my sleep when I said I woke up feeling like this, said they had never heard of Diamox, and laughed when I asked if serious side effects like metabolic acidosis could be ruled out.

I don’t have diarrhea or constipation. My potassium labs looked good. My ketones looked good. Sodium looked good. Everything else but CO2 and Chloride was in the normal range.

But damn, am I tired, irritable, in pain, and just want to lay down. I’ve had 3 Motrin, 2 Tylenol, and a gas x. None of them have made a dent in the pain.

Have you asked for accommodations? I haven’t. Maybe I should consider it. For starters, at least an accommodation to go pee more than once every 4 hours.

I’m just starting Diamox and am an elementary teacher. (Today was Day 4 and my first day at school!!) The protocol is to call the office if I need to pee within a nonstop 4-hour instructional/recess duty block. Today was my first day teaching while teaching with Diamox. Between the tingling, the whooshing sensations through my body randomly, and the sudden vertigo (that thankfully wasn’t scary today), it was quite an experience. I’m glad the year is winding down, and I wasn’t actually trying to teach any new content.

I made this post because I’m trying to book a cabin in a park with some friends/family for a wilderness getaway. Then, I reconsidered my ability to do the hike I was looking into based on my current ability level. Later, I was looking at the cabins, which are all hike-in, except for a handicap-only cabin. That got me thinking. I haven’t asked for any accommodations at work or from my doctor. What do I actually qualify for? What is a reasonable accommodation for me?

How are you all managing your jobs + Diamox + symptoms?

Do you have disability/medical accommodations?

I’m just trying to see something from a very small sample size.

I just got my diagnosis last week. I lucked out (I suppose) and stumbled upon it. My doctor ordered a CT scan due to a chronic sinus infection and found an abnormality. I hadn’t had any symptoms yet of IIH. An optometrist, ophthalmologist, neurologist, and MRV with contrast later, here I am, on day 2.5 of Diamox. What an experience.

A journal I’ve read says this idiopathic condition usually affects obese women. However, it makes obesity sound causal and oversimplified. What’s missing from the story? It makes me wonder… what else besides obesity correlates?

I am curious. Who else has an ADHD diagnosis? I’ve had one for 30 years. I also had chronic ear infections all through early childhood, speech therapy for years, and I’m LGBTQ. What do we have in common?

Looking for insight or guidance:

Taking in a preteen girl for the first time under kinship. I am concerned about her cell phone usage, safety, and healthy screen limits. We have a 10-year-old boy (also nontraditional/custody from a court order 7 years ago) who has ADHD and struggles with screens. We are a screen-free household and do not have a tv after getting rid of it and the iPad almost a year ago. Since getting rid of screens, he has not once complained of being bored, he reads chapter books, plays outside/inside, builds things, creates things, etc and follows directions significantly better without meltdowns.

I’m mainly concerned about healthy screen boundaries with an incoming 12-year-old who is currently glued to her phone and recently has done lots of unsafe/unhealthy behaviors due to unlimited screen access, like staying up until 3am on social media and skipping school/refusing to go to school the next day/being exhausted, sneaking out of windows to meet people her care team doesn’t know in the middle of the night, inviting boys into her room via windows after coordinating via social media/texting at 2am.

I’m also concerned about my godson accessing her phone online. There are biological family members of him who are trying to gain access to him who shouldn’t have access to him for his safety/wellbeing, and he has searched for porn on YouTube before with friends. (We talked at length without shame about sex, got him more age-appropriate books, offered to answer his questions, and let his therapist know.)

I told my concerns to her case worker, and she said she’d try to check what we can do as a placement family regarding phone restrictions. They want to place her with us ASAP. I just want to make sure we can have some specific, consistent, fair, and easy-to-understand norms/rules on screen usage before she moves in.

OK frazzled neurodivergents,

I want to share something I started doing two weeks ago and HAS STUCK so far.

I have been trying and failing to get away from microplastics, processed foods, and the expense of frozen meals for lunch, keurig k cups, and buying coffee on the way to work.

Making coffee or matcha in my pour over cup each morning just wasn’t working. Keurigs took too long too. I never had enough time.

It dawned on me two weeks ago in a eureka moment to just brew enough coffee for whole week. I put it in a huge glass mason jar and put it in the fridge to pour iced coffee each day. Just pouring a glass each day was life changing, but mixing in ice and oat milk after still took too much time.

Week 2 I had a better idea. I bought a pack of 8 mason jars. On Sunday, I brewed coffee for the week again, but put it in 5 different jars for the week. Now, I just grab and go. All I have to add to each is ice and oat milk.

It also dawned on me in a eureka moment to just boil a huge bowl of pasta for the week AT THE SAME TIME I have my 5 pour over coffees brewing. While this is happening, I am now ALSO boiling eggs for breakfast for the whole week.

I get to cook THREE things for the week just on Sunday for just 20-30 minutes, and I get to hyper focus while doing it! Suddenly, I have breakfast, lunch, and coffee all ready to go in individual containers.

I know people have been meal prepping since forever, but it’s never worked for me. Also, I hate salads and NEED to start off with lots of protein and lots of coffee for my brain to *brain*!

I just wanted to share!

Next week, I’m hoping to also smoothie prep by putting smoothie packs together (probably also in mason jars or old pasta sauce jars because I’m on a roll with them right now and have a lot lying around) and putting the in the fridge for the week to easily just toss in a blender.