u/fic-fawn

Hi! So, I just got back from the optician, who told me in no uncertain terms that it is impossible that I have Kerataconus because I do not have high enough astigmatism. He made this assessment after looking at my eyes with the light wand thing for a while. ( I explicitly asked if their OCT machine was capable of corneal mapping before making the apt, they said yes, then at the appointment I was told it in fact is only for retinal health checks, but alas)

Here are some facts about me:

1. I was diagnosed with Keratoconus as a teenager, I believe after a scan that was probably corneal mapping. Unfortunately, I also had undiagnosed ADHD at the time and it went in one ear and out the other. Was never brought up again at standard optician appointments, I forgot about it.

2. I remembered this only upon seeing that study about ADHD and Keratoconus (lol)

3. I am 30 years old, and my prescription was stable for the better part of a decade. Then, last year, shifted from -6.50 (left) -7.0 (right) to -7 (left) -8.0 (right) within 6 months. As of the appointment I just had (around 6 months from the last) it is sitting at -7.25 (left) and -8.25 (right). I was just told this change is not clinically significant.

4. I have a diagnosed connective tissue disorder and MCAS

5. I take the drug Spironolactone for hormonal issues. During the time of the change in vision I happened to be experimenting with my dose of that.

6. I’ve had myopia since I was a kid, but did not alway have astigmatism.

7. My values are cyl -0.50 (L) -1.00 (R)

Look, obviously I will be thrilled if I do not have this! I have always dreamed of permanent vision correction, and if that’s still on the table, that’s fantastic news….

If this sounds like something I should write off, I will do so with glee. But I need to try new meds because of the hormonal impact on my MCAS symptoms, and I do not want to do that until I’m sure the big fluctuations aren’t the thing making my vision worse.

So, is what the optician said legit? No high astigmatism means no pointy cornea, guaranteed????

Any guidance and or confirmation of insanity is welcome 🥲🙏🏻

Hi! So, I just got back from the optician, who told me in no uncertain terms (in a tone I could say very unsavory things about) that it is impossible that I have Kerataconus because I do not have high enough astigmatism. He made this assessment after looking at my eyes with the light wand thing for a while. (This was after I explicitly asked if their OCT machine was capable of corneal mapping before making the apt, they said yes, then at the appointment I was told it in fact is only for retinal health checks, but alas)

Here are some facts about me:

1. I was diagnosed with Keratoconus as a teenager, I believe after a scan that was probably corneal mapping. Unfortunately, I also had undiagnosed ADHD at the time and it went in one ear and out the other. Was never brought up again at standard optician appointments, I forgot about it.

2. I remembered this only upon seeing that study about ADHD and Keratoconus (lol)

3. I am 30 years old, and my prescription was stable for the better part of a decade. Then, last year, shifted from -6.50 (left) -7.0 (right) to -7 (left) -8.0 (right) within 6 months. As of the appointment I just had (around 6 months from the last) it is sitting at -7.25 (left) and -8.25 (right). I was just told this change is not clinically significant.

4. I have a diagnosed connective tissue disorder and MCAS

5. I take the drug Spironolactone for hormonal issues. During the time of the change in vision I happened to be experimenting with my dose of that.

6. I’ve had myopia since I was a kid, but did not alway have astigmatism.

7. My values are cyl -0.50 (L) -1.00 (R)

Look, obviously I will be thrilled if I do not have this! I have always dreamed of permanent vision correction, and if that’s still on the table, that’s fantastic news….

If this sounds like something I should write off, I will do so with glee. But I need to try new meds because of the hormonal impact on my MCAS symptoms, and I do not want to do that until I’m sure the big fluctuations aren’t the thing making my vision worse.

So, is what the optician said legit? No high astigmatism means no pointy cornea, guaranteed????

Any guidance and or confirmation of insanity is welcome 🥲🙏🏻

Edit: thanks everyone, I am going to find a private ophthalmologist and book an appointment just to make sure! I appreciate the feedback (and also will be going elsewhere for my contacts and glasses in future)

Hi! So I just got done with what I believed to be my final titration appointment. I’ve been on Elvanse 50 mg for 10 weeks! (4 of those with the 5 mg top up)

I’m a rapid metabolizer, never got the genetic testing done for it (because it was $$ back in the States) but my clinical psych back home is the one who suggested it (and it was very obvious in the way slow release meds affected me)

So, the previous clinician I was speaking to at Care ADHD totally understood this, and recommended keeping me on the lower dose of Elvanse and adding a top up instead of front loading more of the pro-drug (this lines up with the dosing approach I’ve always found works best for me!)

I am content with my current dosing! The only time it doesn’t work well for me is when I’m dealing with hormonal problems or the histamine problems that come with, which I’m hoping to manage through other unrelated treatments (thx MCAS)

I thought this was my final appointment, instead, got a new provider who was

1. Wrong about how long I’ve been on the medication (she thought I’d been at 50 for only 4 weeks)

2. Believes that “at the right dose of Elvanse you shouldn’t need a top up, and you shouldn’t have a crash”

She wanted to ditch the top up, and increase my Elvanse dose.

I managed to convince her not to, but you could tell she is against the whole thing, and believes I need to be on a higher dose of the pro-drug, believing that would make it last longer for me (that is not how this metabolic issue works)

So now I’m super stressed!

Has anyone else dealt with having two different clinicians with totally different approaches over the course of your titration?

If the next time I speak to her, she absolutely insists on changing my dosing to something higher, do I have any recourse to push back against that?

I thought I was at the finish line, I’m content with my dose and I just wanna be done. 🥲

Hi, so, on the heels of whatever update they did earlier, it seems my proxy configs got reset to some previous date. The models I actually use now are gone, along with my prompts and generation settings have been set back to what they were months ago.

I go to ‘restore’, see my most recent setup under one of the tabs, but if I select it, it says that the configurations already exist.

They do not. 🥲

Just wondering if I’m alone in this bug

Hello!

My husband has an Exceptional Talent endorsement from the British Academy, and we’re about to submit his application to switch from the SWV he’s been on since 2023 (valid until 2028). Just a couple things I’m hoping to get a sanity check on before we hit submit:

1. Hypothetically, if the 3 year route is not changed in anyway with the coming reforms, he should be able to apply for ILR in August of this year. That being the case, we’re planning on just requesting this visa for a year, to avoid overpaying IHS. I know there’s some uncertainty politically right now, but I figure if the route is changed, he can just apply for an extension at the end of this year if he needs it. Does that sound reasonable?

2. I am here as a dependent on his SWV, I’ve read that it’s okay for me to keep my current visa until it expires (when, barring changes, I will qualify for ILR as it will have been 5 years.) Are there any other reasons or benefits as to why I should change from SWV dependent to GTV dependent? Or am I right in thinking I should just ride out my current visa and take it from there?

All advice appreciated, thanks! :)