u/helpless_baby

I (31f) don’t think my life has a point anyways. I’m in an abusive marriage where I constantly get cheated on. No one has ever picked me first in life. I was in foster care so I have no family and no one I can say ever truly loved me. I have an 8 year old I love very much so I’m going to “watch and wait” as long as I can and then go on hospice. My tumor is 1.9cm all the way around and they said it’s slow growing. I’m to scared to do surgery or biopsy and I hate the mri machine because I’m claustrophobic. I’m just going to enjoy the time I’m given with my daughter and that’s it. No point in fighting when there’s nothing on the other end anyways.

Hi all, me again (31f). Sorry I post so much. I’m really scared. The week before I found out about my tumor (and I found that out June 3rd this year) I had applied for public housing to leave my domestic violence marriage of 10 years. Now I feel like I’m stuck with him now. I had horribly abusive parents growing up that lost custody of me and then I aged out of foster care. All I want right now is someone to come to my bed and stand over me and just hug me while I cry. I moved states away to be with this man. I haven’t been able to make or keep any friend or have social media and I am so isolated. I have a neurosurgical consult next month and I do not want to be in the same house as him recovering from surgery. I have absolutely no one to keep me safe or care for me after. All I have is my 8 year old who I know will do the best she can but again she’s only 8. I was so close to escaping and now I have to go through this. I just really need a hug right now.

I have a neurosurgical consult scheduled. Does that mean they go straight to planning surgery or do they talk to you and “watch and wait” for a little bit sometimes?

Had an mri this month that found a 1.9x1.9x1.9cm tumor on my temporal lobe. Likely slow growing. My neurologist sent everything a neurosurgeon. I WAS TOLD they don’t like to see people and that they look over everything then say either get an mri again in X amount of months OR they’ll call you for an appointment. Guess who got a call for an appointment next month? I have not BEGAN to process this.

if you had a neurosurgical consult did they mean go straight to planning surgery or did they talk to you and “watch and wait” for a little bit

Had an mri this month that found a 1.9x1.9x1.9cm tumor on my temporal lobe. Likely slow growing. My neurologist sent everything a neurosurgeon. I WAS TOLD they don’t like to see people and that they look over everything then say either get an mri again in X amount of months OR they’ll call you for an appointment. Guess who got a call for an appointment next month? I have not BEGAN to process this. I just need time to get things together. Mentally and financially I am not ready either!

Had an mri this month that found a 1.9x1.9x1.9cm “lesion” on my brain likely a tumor on my temporal lobe. I literally just found out about everything this month! Anyways my neurologist sent everything a neurosurgeon. I WAS TOLD they don’t like to see people and that they look over everything and say either get an mri again in X amount of months OR they’ll call you for an appointment. Guess who TF for a call for an appointment next month? I have not BEGAN to process this. I forgot my question while writing this. Anyways, if you had a neurosurgical consult did that always mean you go straight to planning surgery or did they talk to you and say decide to “watch and wait” a little bit? I just need time to get things together, I’m 31F this was NOT on my summer bucket list. Financially I am not ready either!

Just curious if you are how long it took your approval and if you had to reapply or have a hearing. Life has been absolutely and I only recently found out about this tumor this month. I actually applied back last month because I couldn’t take all the symptoms I was having and working has felt impossible. I have a low grade slow growing tumor according to both my MRIs. I’m hoping if I can get approved, and maybe a little back pay, I can have surgery and get this over with. I was/am the bread winner for my family so this extra sucks

I had a mri without contrast show a 1.7x1.7cm lesion probably a tumor they said but I said probably something else. I did and mri with contrast and it’s a 1.9x1.9x1.9 FUCKING TUMOR. I HAVE A FUCKING TUMOR IN MY BRAIN. I’m only 31. I HAVE A KID YOU GUYS. HELP IM CRASHING OUT. I AM NOT BRAVE LIKE YOU GUYS I DONT BELONG HERE

Hi all, I gave birth naturally in 2018 and it was absolutely traumatizing for me and my husband to say the least. I didn’t really tear but we spent days in labor absolutely miserable and then I hemorrhaged. I felt absolutely everything when I gave birth. I do NOT want to do that again. I was thinking this go around we have a planned scheduled c-section. I like the idea of getting a nights rest before going in the next morning. I can pick a day and have childcare planned since I don’t have a lot of support. I know it’s a major surgery and I’m sure it’ll hurt but I would rather be in pain at home recovering and managing than miserable for days at the hospital, no sleep, and physically feeling every complication. I want my birth to be beautiful and enjoyable. If the c-section is planned then I imagine we go in, pull baby out, stitch me up and I have plenty of energy to hold and enjoy my baby. I do not want to be absolutely traumatized with labor and delivery again. What was everyone’s experience?

I applied for ssdi back in may. My doctor is helping me. The problem is both she, and the ER, have documents some of the injuries I’ve gotten from domestic violence. I’m hoping to get approved not only because I am disabled but because then I can also financially afford to leave the situation. I’m just worried social security will say “you wouldn’t have these issues if you weren’t being abused” and therefor not approve me. I did recently find out this month I have what’s possibly a brain tumor (had a second mri and find out tomorrow if it’s confirming the tumor) so hopefully that helps my case. I just worry they won’t take my case very serious. I haven’t been able to leave because I can’t work due to disability and that’s kept me being abused- not the other way around. Should I ask her not to document the abuse anymore or skip the ER if I can? He’s given me black eyes and hit me in the head and lots of pushing/choking so I’ve only ever went when I had serious enough injuries.

How big was your tumor? How often did you have MRIs? My first mri found a 1.7cmX1.7cm tumor on my temporal lobe. Today I had an mri with contrast so I’m hoping to learn more and get good news. I’m only 31F, hardly any symptoms and no midline shift (tumor isn’t pushing into anything). I would like to have more kids or even the one I have now (8F) grow up enough to help me after surgery and have lots of good memories with her mom growing up.

31f had an mri without contrast that should a 1.7x1.cm lesion on my temporal lobe likely “a glioma or low grade neoplasm.” Two different doctors I see wanted me to get the mri with contrast asap so we can know. I couldn’t get it scheduled for two weeks (tomorrow is the appt) since I wan to go to a facility with an open mri. The thing is I was fine with waiting 2 weeks (or more) for the mri. I don’t want to know. Right now I can just live in a delusion of “it’s probably not a tumor bc XYZ” and live in my fairyland of this not being real. I’ve been more emotional the past two weeks sure but no one seems to get that I don’t want to go through this. If I go for my MRI tomorrow then they will have more information and everything will become a very scary reality. I’ve tried to talk to my husband about it and he tries to tell me how I feel (that I WANT to know- I DO NOT WANT TO KNOW). Anyways thanks for anyone that’s reading this. I’m scared out of my mind. I’m going into the library to read for a few hours with my phone off and enjoy one more day of denial.

Surgery has always been one of my worst fears in life. I have a contrast mri-Friday bc my mri without contrast found a 1.7x1.7cm lesion that “looks like a low grade neoplasm or glioma.” Has anyone of years or even decades of watching and waiting? Was anyone able to shrink it so small with chemo or radiation you never ended up needing surgery? I’m 31f and scared out of my mind bc I have a kid and would’ve love to have more in the future. I was actually almost (what I felt like) financially able to do so in a year or two.

I (31f)was born into poverty the oldest of 5 and was abused my whole childhood. We were homeless, starved, beaten and tortured daily. In my late teens I worked really hard to become a nurse (and did by 22). I got married at 23 and had a baby at 24. I suffered the whole way through to that point. I got married to someone I thought was perfect but wasn’t. I love my child more than anything. In June I decided I would be brave enough to leave the marriage and his abuse and then two weeks later had a brain mri that revealed a brain tumor. Now I feel like I’m forced to stay in this marriage until I find out more and if I’ll need surgery which looks like the best option of all the choices they’ll offer. I’m terrified of surgery and it’s always been my biggest fear in life. I would rather end my life than go through surgery. All my life I’ve always been the bigger person, the punching bag, the empathetic one and all I’ve learned is all people seem to be truly evil (except kids). I told myself I had went through all my suffering when I was young and there was no more left in this life to suffer. I was wrong. I don’t want to do this anymore. I don’t want to suffer or have surgery or have a tumor. I’m not strong enough and don’t say I’ll find the strength because I won’t. I refuse to. Is this the end for me? I can not suffer anymore ! I was almost free of this abusive marriage and was going to enjoy life with my beautiful daughter and learn what it feels like to be safe. Now what? I can’t do this anymore

31F. I have a healthcare background. Always tried to live a healthy lifestyle. Don’t smoke. Don’t drink. One soda a day (I’m naughty). No energy drinks. I’ve always loved hot dogs but avoid them because processed meat can cause cancer. My grandpa died for colorectal cancer. I been eating hot dogs nearly everyday since I found out last week about my tumor. Life short, got to enjoy what I can. My tumors small but I haven’t been allowing myself a lot of “guilty pleasures” trying to be healthy. Maybe if I eat enough they’ll take me out before brian cancer does, who knows haha. Anyone relate?

I’m terrified of surgery (new in this journey). Even though I’m 31 I would honestly rather do hospice than surgery. It’s been my biggest fear in life. That and as a person who has worked in healthcare their whole adult life I do not want to suffer. I don’t want to be a vegetable in the nursing home that can’t eat or speak for themself. There are fates worse than death and a botched surgery would be one of them. Not to mention the chance of being SA during surgery. Have others just done a “watch and wait” or been successful on chemo/radiation and not ended up needing surgery? My MRI said I likely have a low grade neoplasm or a glioma. Either way it’s stable. I appreciate anyone’s advice.

Yup, 31F with a right temporal lobe tumor. I grew up in absolute poverty. Oldest of 5 with 2 highschool drop out parents who regularly beat and starved us. Ended up in foster care then homeless. Went to college and became a nurse at 22. Moved out of the poverty stricken Bible Belt to a major city with lots of work/money in a blue state. Had a baby at 23. Went back to college for pre-med because I had always wanted to be a doctor. Was excelling in my classes. Pandemic hit and took some time off from school because work and having a toddler was intense. Tried to go back but had been feeling “off” the past few years. Been working part time to get by going to every medical appointment thinking I must have some chronic illness that just isn’t showing up on tests/exams. Saw a neurologist in February and got an MRI of my brain done that he didn’t think I needed. Well they found a freaking tumor. Doesn’t explain all my symptoms but a good chunk of them. Guess I’m back to poverty. Can’t work, can’t sleep, can’t eat. Don’t know what I did to deserve such a hard life. Anyways I’m going to kick cancers ass because I have a kid so I can’t just feel sorry for myself BUT this is America so there goes every penny I ever saved trying to get ahead.

30f nurse non-trad. Found out I have a brain tumor in my temporal lobe. I was premed and preparing for mcat. had to take two years off for medical reasons and recently got answers to why I’ve been as “off” as I have. I loved being premed and medicine was always my passion. I’m not working right now so I would love to mentor others. Completely free of course, I have family support while I go through my cancer journey. I just want to be apart of others journey and sharing your ups and downs while helping you all navigate this crazy rat race on your journey being future doctors. I still want to feel useful and important and this is the best way I can think of. Reach out if you guys are looking for a mentor!

I had a brain MRI done for some headaches. Thought they were just tension headaches but did an mri without contrast and the radiologist wrote “Approximately 1.7 × 1.7 cm lesion in the inferolateral right temporal lobe concerning for glioma or other low-grade neoplasm.” Waiting to do an MRI with contrast but I do not like how suspiciously nice everyone has been. I’m terrified to do the mri with contrast but I guess I better get use to it if this is the path I’m going. I just want to see my sweet baby grow up, she didn’t deserve this. I’m scared and need support. I don’t know what my life is going to look like now. Please give some encouraging words. Are you all still living and enjoying life?