u/iambaby1989

Have had my GJ well over a year, Mic-key button.. fully healed as much as a hole in the abdomen can be and haven't had any issues with it no balloon bursting, tube changes done every 3 months with moderate sedation (judge me if you want but my IR suggested it)

Anyways back to the issue, over the last two months I've had really bad pain like feels like a broken rib on one or both sides and especially hurts when I breathe in deeply .. It's now affecting my being able to J feed my full amount because it feels like once my stomach swells a bit from feeds or drinking by mouth... I can't take a deep breath without it being sharp stabbing pain.

Has anyone else experienced this?

What has mildly helped

Heating pad on my ribs but I don't do it for long because GI told me it's not good for the tube to have the pad on it

Weirdly keeping pressure on my ribs helps too, like holding them still when I am walking when it gets really bad sometimes

Any advice or questions or whatever is welcome. I'm 36 F with post stroke autoimmune triggered Gastroparesis confirmed with GES x2 if that matters

I'm 36 f if that matters and been diagnosed with RA for 7 or 8 years now, did my time with Methotrexate and Plaqunill early on then switched Rhumas when I moved and got on Leflonomide, Plaqunill, and Orencia

Orencia stopped working a year and a half ago and I got on Simponi Aria infusion.

I have the kind of RA that really was only flaring a week before I was due for an infusion and it was a mild flare ( fingers and toes aching but could still open things etc)

Well I had my Simponi infusion like normal 3 weeks ago and the pain hasn't stopped, not only that but it's like 10x WORSE flare and it's in places it wasn't a year and a half ago.. I am losing my mind and I hate my body so much rn.

I before my other foot started hurting the same I thought I had a stress fracture near my pinkie toe and top of my foot and went to Urgent care yesterday and X-ray showed nothing.. today the other foot started hurting just the same so I guess it's just more new RA flare spots.

I've been really lucky that I've mostly had mild RA sx when on meds, my Rhuma called in 20mgs of Prednisone for a week then 10mgs for a week, Urgent care gave me Meloxicam but I'm on blood thinners so can't take NSAIDS.

I told my therapist today I was losing it because it essentially feels like a neverending toothache in my joints.

Idk what I'm asking for here , I guess support or ideas for pain management 😭 the thoughts got .. dark .. by the end second week, I'm barely sleeping, can't use my own hands and am hobbling around like both my feet are broken.

Basically what the title says, my mother has had some version of AN or "dieting" her entire life and obviously that was carried over to me.. well I'm 36 and in quasi recovery I guess you'd call it and finding out SHE got the cheat code shots just.. idk.. I know it's irrational, my logical brain sees that but all my ED brain sees is the unfairness.

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I feel insane lately with how "heroin chic" dieting like in the 90s vibes the world has gotten lately.

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Anyone else feel like the whole world is just embracing ED culture with open arms and blind eyes rn??!!!

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Advice or support or whatever is welcome.

I'm 37 and female to start with, I have had a restriction ED diagnosed as Atypical Anorexia-R for the last few years and also severe Gastroparesis.

(I started with my ED behaviors at like 7 years old though, thanks mom)

I got a GJ tube placed while in the medical hospital last year for severe malnutrition and I've really struggled to use it appropriately.. I'm not underweight but also continuing to lose weight regularly. I have significant Anemia and need iron infusions, idk how much of this is nutrition based and how much is based on having a clotting disorder and autoimmune stuff because I've never not been restricting to some degree.

I read that book "Sick Enough" that talks about the medical side of EDs and it has me seriously wondering if I should get treatment and see what's what . My fear is.. if I have Gastroparesis that truly isn't nutrition/restriction issues then I don't want to have them pull my GJ tube and then have to go through the HELL of having a new one placed, not to mention what if I get to treatment and I genuinely cannot make the meal plan goals??

It's a lot to think about and if anyone has any advice or support I'd appreciate it, I see an outpatient ED therapist but she's been off and on pushing me to go to a higher level of care for the last few months.

I don't have a dietician, Medicare has one in my city they cover and I saw her 2x and wasn't underweight and she basically was like okay so why are you here? Which I get she works at a Diabetes place she isn't ED trained and mostly counsels people with Type 2 diabetes but damn.. it was not helpful.

Okay so this has turned into a bit of a ramble but I hope it's making some kind of sense!