u/imahugemoron

I’m excited for Slime Rancher and there was a small rumor of no mans sky coming to iOS but that one hasn’t had any sort of update or confirmation so I’m not holding my breath on that one. Just wondering what other paid IOS ports you are all looking forward to that I can keep an eye on

4 and a half years ago, covid left me with a permanent headache that hasn’t gone away in all that time and has only gotten worse. One of the first things I noticed with this headache was if I tried to use a computer or tried to play video games, the constant headache would flare up extremely badly within minutes, cause speech problems, dizziness, limb weakness, difficulty understanding words, and just the extreme head pain increase happening so suddenly was all extremely scary. This issue took away my biggest passion, video games, as well as lost me my career in the tech industry which was all computer work. To this day if I try to use a computer or play any games, I still get the same familiar sensation that I know cases all those extreme stroke-like issues.

Over the last 4.5 years, I’ve hung onto several things to keep me going, looked forward to when I would be able to enjoy those things once again when all of this was behind me. Before all of this happened I was a huge gamer, I have been all my life, and in the years prior to COVID disabling me in my early 30s, my main game was Destiny 2. Well this week the devs announced they would be shutting down active development, it will be the end of service for the game. The news really hit me hard, even though I know games aren’t going to be developed and supported forever, it was one of the main things I’d always tell myself, “once they figure this out, I’m going to have so much Destiny 2 to catch up on.” I’ve watched several expansions of the game pass by over the years, but still I held onto hope that one day I could come back and enjoy the game from wherever it was at the time.

I guess the news of the game shutting down really puts it into perspective for me that time is passing me by, the world is passing me by, life is passing me by. Many of the things I loved before this condition started will be long gone if or when I’m recovered or at least treated. I guess it was an awful reminder how temporary everything is and how I am unable to participate in the things that made me who I am (or who I was I guess), and no matter how much I hold onto those things, it’s like they will be gone before I can come back to them. I know the game seems like such a small thing, I mean it’s just a video game, but it was something I loved so much and the shutting down highlights what this condition and this society has taken from me and how much in my life is just passing me by. My nephew was born at the start of my condition during the height of COVID, he’s 4 now and he doesn’t even hardly know me, every time I see him he’s a different person because of how much he’s changed and grown. I saw him when he was born and the next time I saw him he was talking.

I’m getting closer and closer to 40 now and I didn’t even really get much of my 30s. How much more of my life will this condition steal? How much longer will our society continue to ignore us?

Been at this 4.5 years, constant headache, severe liver area abdominal pain, but one symptom I have that I feel like has taken a back seat to all my other more constant issues is the bloating after eating, and I don’t think I’ve asked here about it. The bloating is basically after anything but water, maybe on decent days I won’t get it so much but it’s very often. But the bloating isn’t gas bloating, I don’t get gassy, and the bloating is more firm I guess. I’m getting to the point where I dread eating because I either get real bad bloating or my liver feels like someone lit a candle inside it. I’ve been to the ER many many times during severe flares and all they ever find is inflammation in my colon, they find that almost every time. What’s crazy though is every time I bring up the colon inflammation, doctors just change the subject really, I haven’t been able to get a doctor to take that seriously as far as trying to get to the root cause and give me a diagnosis and treatment for it. Like I basically meet all the requirements for inflammatory bowel disease but I can never get a diagnosis for that.

I’ve had like 5 colonoscopies/endoscopies by now and sometimes they find inflammation, sometimes they just find “redness”, but it seems they’ve ruled out colorectal cancer, which is good. I’ve had a HIDA scan to check my gallbladder, tons of ultrasounds, several liver function tests and MRIs of the area, the most they ever found was a tiny liver cyst they said wouldnt cause any issues and mild fatty liver disease which they said also wouldnt cause the symptoms I’m talking about. And I’m really certain it’s my liver too, I mean I can definitely feel the colon inflammation but the severe liver pain is much higher, yet they never find anything.

But anyways I guess I digress. This bloating after eating anything is really bothersome as well, but of course getting a gastroenterologist to take me seriously is like winning the lottery. Well, in all fairness they have done colonoscopies and stuff, scans and stuff, but it seems after that and ruling out cancer, they kinda just go “nothing we can do, you just have pain and bloating now I guess” and they give me no diagnosis or any real treatment. It’s insanely frustrating. I just want to be able to eat and feel comfortable and not in a bunch of pain. My diet is already super limited and when I get bad flares, all I can eat is chicken broth and water, and even those sometimes make it worse. I do notice though after it gets bad, when I finally manage to sleep, the next morning it’s usually much better after not eating for a long period while sleeping. But then it’ll get bad again as soon as I eat anything, I’ll bloat up and my upper liver feels like someone lit a candle in there.

Edit: I’ve also had my pancreas checked, both bloodwork and scans

I’ve just always hated the bright blue rain. I get why the water is blue in the game, but the rain being this bright blue is just plain ugly to me and doesn’t make sense, though I know that statement doesn’t make a lot of sense because outside of the oceans, most water isn’t blue either lol. Just wondering if anyone knows of any addons or resource packs that aren’t shaders that make the rain look more realistic or if there’s any way to just change the basic color from blue to maybe like a gray