u/katieeedayle

It’s 1 in the morning… cant take this shit anymore i swear.
I am so exhausted, sleep-deprived, and confused right now, and I just need to know if anyone else has experienced this exact nightmare. I have 83% May-Thurner and 60% Nutcracker, and tonight and more recently the pain has become completely unmanageable.
I have severe stabbing pain in my butt and my left kidney, but now my right kidney is getting shooting pains too all of a sudden. Earlier tonight I was peeing every 15 minutes. Now, my bladder feels incredibly swollen, it burns like a horrible UTI/ kidney infection, and I physically can barely pee at all. I can literally feel the inflammation tracking all the way down my ureter to my urethra.
I’ve tried everything. I’m laying on my left side with a heating pad. Tramadol isn't touching the pain. I tried a Fleet suppository earlier because I felt so backed up, but it just caused spasms and incontinence.
I am so sleep-deprived from dealing with this, i think my dysautonomia started up around a year ago and since then i have built up some sleep debt, not making anything better 😞
I’m confused and can’t even remember if I took a Valium on top of the Tramadol and Tylenol . Muscle relaxers, oxycodone, meloxicam, nothing touches it anymore at ALL
I know this is a physical blockage because I went to ER few days ago with a fever, tachycardia, and extreme weakness. The ER doctor tried to dismiss me, but I fought for a contrast CT.

The scan showed:
Edematous urinary bladder wall thickening
Edematous wall thickening involving the rectum and colon
Fluid-filled loops of small bowel

Because of the compressions, the blood can't drain, and the fluid backup is literally crushing and swelling my pelvic organs. They discharged me to follow up with GI and Urology outpatient since my bladder wasn't actively bursting at that exact moment, but now I'm back home and I am locked up.
I’ve been meditating, reading, journaling…. Anything to try and rest and calm my nervous system, but sleep just seems so far away. People around me keep treating me like I’m mental or like I am doing this to myself, even with cold hard evidence

Has anyone experienced this severe bladder lockdown and right kidney pain with NCS? Did you have to go back to the ER to get a catheter? I’m so incredibly tired and feel so alone dealing with this. Any advice is appreciated.

Hi guys, its been a few years now since figuring out a lot of my health stuff and along the way finding out more behind what was causing my extreme pain besides stage 2 endometriosis (3 vascualar compressions that a bunch of Drs missed lol :D)

During this time Ive been on and off medical leave, and at this point havent worked since January.

Many of my relationships have faded while ive been in survival mode

I think that chronic illness/ pain really showed me everyone’s true colors.

My best friend of almost 10 yrs ghosted me, my mom and dad say awful things to me and treat me like a burden , And ive found myself more alone and socially isolated than i probably ever have been. plz tell me im not alone in this lol, trying to feel somewhat sane during this time

Hi guys
Ive been socially isolated for way too long
I need someone, something, a social outlet, some hobby or anything..
Pls help w any suggestions/ things u do :( I cant work and stuck at home, lost most all relationships while dealing w multiple chronic illnesses for a few years now im 23 and feel so alone :((((( and so many thoughts and feelings swirling. Trying to figure something out medically and just all of it so overwhelming, exhausting and not being able to sleep and developing insomnia :( only so many times u can call a crisis line lol i need help / advice
Help me pls

Have any of u guys lost a lot of ur relationships w/ friends and fam while dealing w this stuff?
And like sleep issues and loneliness? I can’t tell if it’s weeding out toxic people or if I’m just isolating and ruining every single relationship I have (very few lol) feeling extremely isolated, confused, and don’t know where to go
Feel like a retreat would be nice, support groups r hard to find, and this shit sucks….. i want to somewhat enjoy my 20’s and I’ve been robbed off them.
Please tell me someone has a similar experience or any advice lol <3
Thanks in advance, you guys are all warriors