u/khaleeeexi

I don’t know if it’s really a new thing or if I’m just now seeing it in my social feeds, but over the last few years I’ve reallllly started noticing how upset it makes people with human children when those of us with animals celebrate either parent centered holiday. It started out as a joke, but now I genuinely get joy posting about my cats and my partner and I being their parents. I don’t understand what the big deal is and why it makes anyone angry at all. I feel like if you bring another living being into your home (especially as a little baby) and nurture, love, care for, and spend sooooo much money making sure they’re happy and thriving, that should count for something, right? Lmao. Hell, my mom gets me a Mother’s Day card from my cats and she receives a card from her grandkitties.

So, why do we think it pisses them off so much? And am I horrible for getting a good chuckle knowing someone out there rolls their eyes hard into the back of their head when they see pet parent, or even grandparent posts? ….oh well I guess ¯\_(ツ)_/¯

Hi friends, I’ll start this by saying I’m 27F. I’ve been experiencing my symptoms for about 15 years, we’ve theorized a very bad mono case (4+ months of being undiagnosed and deathly ill) could potentially be what “triggered” whatever may be going on with me. Two covid infections making it worsen over the last 4-5 years. I’ve been talking about these things for years, but no doctor decided to take me seriously until two of my sisters were formally diagnosed with POTS over the last two years, and I finally got a PCP who listened. *sisters are my half-siblings and are not related to each other*

My PCP was almost certain what I was experiencing was POTS, and from my online education as well as speaking with my sisters and comparing symptoms, I thought the same. She put it in my chart and even made sure that I mentioned it before a surgical procedure for my safety.

But here’s where my confusion comes in. My tilt table test was done and I’m at a loss over the results. After the test, my POTS diagnosis was reversed to “just some type of dysautonomia”

The reason? I didn’t have a significant drop in BP? I thought that was orthostatic hypotension, unrelated to POTS? My cardiologist reviewed the results and he is extremely adamant that because my blood pressure didn’t change, even though my HR jumped from around 70bpm to 140bpm immediately, I do not have POTS. The tilt results also said that one of the reasons for a negative result was that my HR did not sustain at an elevated rate for the entire duration of the test?

Am I misunderstanding all of this? Is everything I read from Johns Hopkins and NIH wrong? It’s just not making sense to me. What’s even more confusing to me is my cardiologist is one of my sister’s cardiologists…so I’m not sure. He literally just said “something is wrong with your autonomic nervous system but we can’t really pinpoint it”. Which is fine, but my brain cannot comprehend HOW when everything I read does not mention either of those things as necessary to the diagnostic criteria.

Any insight at all would be appreciated so I can understand all of these technicalities.

*eta: context

Will be 16 weeks post op the end of the week and for the most part I am doing alright. It’s been a little rough because I am dealing with some SI joint dysfunction as well as patellofemoral syndrome and ITB issues, but getting better with time.

My one gripe is I’m literally getting 3-4 hours of sleep and I think it could be related to being uncomfortable. I usually sleep on my right side but of course that’s my bad leg, after a few minutes it starts to get sore and the next day I definitely feel some irritation in my back and hip flexor. The next problem is also I think that because I’ve been sleeping on my left side, I’m to the point where even that is uncomfortable after a while now. Anyone else deal with this? And if so, was there anything that facilitated side sleeping comfortably. Operative leg or good leg. And will I everrrr be able to sleep or lay on my operative leg again!? That’s the side I usually lay on to sleep with my partner and truthfully it’s so depressing not being able to :(

Much appreciated!