Two Movement Disorder Neurologists, Two Opinions - Now What?
TLDR: Is my 71 year old Mom's second opinion movement disorder neurologist's approach appropriate vs the first movement disorder neurologist's opinion amid a family history of PSP.
My Mom is a 71 year old female with a left side hand/arm constant tremor and extremely mild almost not noticeable gait issue on the left leg (only I - her adult kid - her two movement disorder neurologists and her LSVT BIG physical therapist have also recognized this gait issue). These symptoms started three years ago and the tremor has developed, but at her first neurology appointment two months ago and her PCP appointment three weeks ago she was very firm that she did not want to start medication because it did not bother her enough. The tremor is very obvious. She does have mild memory issues but my husband and cannot decide if those are age related. She denies them completely. She has fallen three times and she is adamant that all three times were from the ground being uneven, holes in the yard or the road being off. I was not there, so I cannot say. For background information my maternal grandmother died of PSP, diagnosed by autopsy when her brain was donated after her death through CurePSP.
After an evaluation, the first movement disorder neurologist diagnosed my mom with stage one parkinson's, tremor dominate. He gave my mom the option of medication, but my mom declined. He told my mom to continue her robust social and volunteer life and keep going with her daily exercise, but try to incorporate some aerobic activity (my mom was not happy about this because she does walk 2 miles per day but her heart rate never increases - we share apple watch fitness data with each other). Their office does not recommend the physical therapy to patients unless they are in wheelchairs, so that was something I discovered on my own and my Mom's PCP sent a referral for her.
We had a second opinion with another movement disorder neurologist in another city that my Mom's friend, who has advanced parkinson's, treats with. He did all the same evaluations the first neurologist did. He noticed the same gait issues and the obvious tremor. This neurologist does not use the stage system (he says it's misleading?) to diagnose patients and he told us he cannot clinically confirm my Mom's diagnosis. He suggested my Mom start taking carbidopa/levodopa and that if it helps her tremor we will have better confirmation of her diagnosis "under the parkinson's umbrella". My Mom immediately agreed. He started her on the medication today and it will take her 6 weeks to reach a therapeutic dose. I did ask this neurologist about aerobic exercise vs non aerobic exercise and he told us it does not matter because some patients cannot get their heart rate up (my Mom is not one of the patients who are unable to have an increased heart rate because both her PCP and her LSVT physical therapist have told her she NEEDS to do aerobic exercise). I was a little surprised by this.
A note to say both neurologists confirmed for me twice (because I asked) that they are as confident as they can be that my Mom does not have PSP.
I am very new to this world and my Mom is extremely independent. She is newly widowed and this diagnosis added quite a bit of anxiety to her world (rightly so) and I want to know if this second neurologist is on the right track. My Mom wants to stick with him and if this is who she is comfortable with then I need to learn more.