When to see a neurologist (or insert other specialist)?
I (29F) have been doing the dance of seeking some sort of diagnosis for my myriad of chronic pain, fatigue, etc. physical issues that increased dramatically 1-2 years ago. Two different PCPs, 6-months of physical therapy, several rheumatology visits, multiple blood tests, ultrasounds of my joints, and X-rays of my knees layer, both rheumatology and primary care say there is “no indication of anything wrong with me”. According to my understanding of my blood results, my sed rate and CRP are elevated, but my rheumatologist insists it is “insignificant”.
So, I got back to my PCP, we go over everything again, and then just end up sort of staring at each other, as she and I both are like ??? My previous PCP suggested perhaps it’s fibro, but my current PCP isn’t so sure. My rheum refused to comment on fibro. So, current PCP asks me what I’d like to do next, and I honestly don’t know. I just keep googling about my symptoms, and sometimes I come up with diagnoses that seem to fall under neurology. The trouble is, my visits with the rheum have been so traumatic through their gaslighting of my experience that I hesitate to even ask my PCP to continue referring me to different specialties, just as it’s hard not to assume I’ll continue to hear the same things anyways.
Has anyone sought a neurologist’s (or speciality other than rheumatologist) opinion for fibro-like symptoms? Any ideas beyond this?
Any advice or insight is appreciated!