u/pilotpenpoet

Hi everyone,

I have a follow-up appointment with my doctor to discuss my biopsy results and creating a treatment plan. I have Stage 1, Low-Grade Papillary RCC, 5.3 cm tumor. It is likely I will be put on active surveillance.

I'm very fortunate that this was caught early, even though my already poorly functioning kidneys from PKD (eGFR 21, Creatinine 2.6, so it’s stage 4 CKD) pose a bigger threat. Still, I am almost thinking it's no big deal.

I've been trying to just understand, \*comprehend\* that I have cancer. I mean, I say it to myself: "I have cancer. \*Cancer\*. It's like me looking at a mixed up Rubik's cube before I even try to solve it.

Anyone else feel this way? Thank you in advance for all your insights.

Hi everyone,

I have a follow-up appointment with my doctor to discuss my biopsy results and creating a treatment plan. I have Stage 1, Low-Grade Papillary RCC, 5.3 cm tumor. It is likely I will be put on active surveillance.

I'm very fortunate that this was caught early, even though my already poorly functioning kidneys from PKD pose a bigger threat. Still, I am almost thinking it's no big deal.

I've been trying to just understand, *comprehend* that I have cancer. I mean, I say it to myself: "I have cancer. *Cancer*. It's like me looking at a mixed up Rubik's cube before I even try to solve it.

Anyone else feel this way? Thank you in advance for all your insights.

Hi everyone,

I’ve been sort of lurking here. I am 54F and I have Stage 4 CKD (eGFR 21 and Creatinine 2.6). I was recently diagnosed with Papillary Renal Cell Carcinoma. It’s a slow-growing, low-grade, Stage 1 T1b (5.3 cm) tumor.

I have an appointment next week to discuss treatment. It looks like I will be put on active surveillance—looks like. If I get a nephrectomy, partial or radical, that will likely put me into ESRD and dialysis sooner rather than later.

Needless to say, I definitely did not expect this. I thought I would more likely get breast cancer eventually since it runs rampant in my family.

Has anyone else here been diagnosed with RCC on top of having PKD?

Thank you in advance for sharing.

I found out last Tuesday, 6/16, that I have a low-grade, stage 1, Papillary Renal Cell Carcinoma. Thankfully, it’s slow-growing and not as aggressive as other RCCs.

Boy, finally finding out is a relief. That going back and forth with “I do have it… I don’t have it” was rough mentally and emotionally.

I see my urologist next week on 6/30 to talk further and discuss options. As you know, a partial or full nephrectomy would be a typical option, but I have Polycystic Kidney Disease. I’m stage 4 CKD (eGFR 21, creatinine 2.6), sooooo…

If I get any type of nephrectomy, it will affect my kidney function and possibly put me in Stage 5 or End-Stage CKD.

This also affects how I will be processed for getting on a transplant list when I get on dialysis.

Oddly, when I first heard that I was stage 1, low-grade, and probably put on active surveillance, I was tricking myself into thinking it’s no big deal, especially since I’m in an early stage. Then I look at my kidney bloodwork numbers and realize that it IS a big deal.

I don’t really know what else to say or ask. I’ve been researching and writing questions down to ask my urologist next week.

Thank you for reading and I’m sending healing vibes your way.

Hi everyone,

I have a percutaneous (needle) biopsy next Thursday. I’m supposed to have a driver take me home—not an Uber or Lyft or transit because of the likelihood of still being groggy from the sedation.

I wanted to wait until my biopsy results to reveal that I have cancer (if I have it—my mass is 5.3 cm) to my family.

I had a troublesome start of the year with me almost being homeless and thankfully my siblings stepped to help. I really don’t want to put more on them.

Suggestions? Thanks in advance for your help.

I’m sorry that I mostly lurk here.

Like the title says, I have PKD, am at stage 4 CKD, and just learned from and ultrasound and an MRI that I have a 5 cm renal mass in my right kidney. I met with a urologist at Fox Chase Cancer Center and my needle biopsy will be on 6/11.

I didn’t think it would be anything until I saw in the report that it’s a solid renal mass/ renal cell carcinoma (RCC). Apparently if a mass is >4 cm, it’s an 80% chance it’s malignant. If it is malignant, it’s categorized as a T1b, which is still early, thank goodness.

I knew that my kidneys were going to fail down the road, but if this ends up where I will need a partial or radical nephrectomy, I will likely end up being stage 5 ESRD. I’m 54 and the literature says that RCC occurs more in older adults on dialysis and people with PKD have a higher risk.

I guess I’m wondering if anyone else here has had a renal mass/renal cell carcinoma, what it was like, and what treatment helped them.

Thank you for your insight.

Just curious how people observe Shavuot. I'm going to two events tomorrow at two synagogues. I am on the fence about staying up all night and attending the later, overnight events at one of them. I think I can only last until midnight. I went to part of the overnight one last year and absolutely LOVED it. I love learning and debating. 😄

How do you all observe or celebrate Shavuot?

[supprimé]

*Reposted because I messed up the title*

Ugh… I just saw this through my Israel Live News Feed on WhatsApp.

There was a terror attack in Golders Green in London in which row Jews were stabbed.

I’m sorry this keeps happening and that Jews, synagogues, businesses, and more have to keep their heads on a swivel on their heads. It’s not right. it’s not right.

I was at an event last week at a lovely Kosher restaurant in Philly learning about an organization called Latet that described its services for people living in poverty Israel. There were 3 or 4 police’s officers there!

I’m not Jewish, possibly converting… and I just feel badly for you and support you. Many hugs.