How did Mavacamten/Camzyos make you feel?

Will start 5mg tomorrow. Kind of curious to hear if people feel things soon after starting or if it takes awhile. I think it might take some time but I’m not sure. Probably my doctor has been vague because there are many variables.

I’m a little nervous, but at the same time, excited about the possibility of feeling better than I’ve felt in a long time.

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u/real415 — 7 days ago

Oakland, Calif., Civic Center Post Office, 13th St at Jackson St

August 2013. Western Electric three slot coin telephone formerly installed here, with standard bell box.

Building constructed in 1932. Sit-down wooden booths would have been standard at this time.

Early example of wall mount surround, designed to match building’s windowframes and doorframes. Shelf appears to have been added later without attempting to match the style.

u/real415 — 1 month ago

Steps for setting up “expired” number for international eSIM use

One of my lines was in a pool, and was paid for through 8/1. Recently I removed it, since that phone is outside the U.S. and won’t be used here for a few months. Now it shows as “expired.”

I’d like to choose one of the data-only eSIMs for it. It looks like I have to pay for another plan to get it reactivated for what I plan to use it for. Please let me know the steps to follow so I can get it set up on that line. Thank you!

(edit) Solution:

  1. Add Snooze

  2. Buy correct eSIM

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u/real415 — 1 month ago

Billing question: Is the invoice for next month unable to see changes I’ve made?

I’ve snoozed a line effective in a few weeks with the start of my next billing period. If I look at the invoice for the next billing period, it shows the snoozed line as still active and scheduled to be billed at the unsnoozed rate. Does its correct status get updated later so the billing will be correct?

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u/real415 — 1 month ago

Snooze/Unsnooze – immediately or with next billing cycle?

Wondering if Snooze takes effect immediately, or at the beginning of the following cycle. Same question for Unsnoozing. If I Unsnooze before the end of the current cycle, does it wait to apply the change? I want to make sure our family member has service in place when they arrive home in a few months.

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u/real415 — 2 months ago

What am I missing? Pooling 10GB for 2 users for $28 monthly. International roaming e-SIM ideas?

Have been using T-mob’s 55+ plan for probably 10+ years, since it was 2 lines for $60. When they recently announced another increase, taking us to $84 a month, we decided to bail. We use barely 8 or 9 GB of data total on our heaviest months, so unlimited is not really our thing. The 10 GB plan seems very reasonable at 2 pooled lines for $28.

We do travel a few times a year, and have found the included SLOOOOW T-mob international roaming to be somewhat functional for basic things when we’re away from WiFi. But if we’re saving $55 each month, we can afford to buy a roaming e-SIM for international data, and get faster speeds too – any good suggestions for regional (EU mostly) or low-cost worldwide e-SIMs ?

Any other input before we switch? Plan to keep the T-mob network, since we get generally excellent service where we are, unless there’s a compelling reason to use one of the others.

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u/real415 — 2 months ago

Tips on reliable data eSIM providers

For a visit of between two to three months, I’m researching eSIM providers. I’m seeing two types:

  1. expensive ones clearly aimed at tourists and short term business travelers.

  2. the ones that come in longer terms like 30 or 90 days, often Singaporean, and are much less expensive – but I question whether they’re legit.

Any recommendations on companies that are reliable?

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u/real415 — 2 months ago
▲ 273 r/dementia

It’s over. Thank you for helping me through this descent into madness

I stayed with dad for his last two weeks. He was admitted to home hospice 12 days before he died. The day I came, he looked good. He was still able to walk to the kitchen and get a drink or a snack. But within a few days, he got into bed and stopped eating.

Every day he had less energy, though he would still resist when I changed and cleaned him, even up to a couple of days before he died. He’d suck an ice chip, but that was about it for sustenance.

For his last two days, the nurse opened the med kit, and with the meds, I could see that he was relieved. On his last day, he was breathing with more difficulty and a higher respiration rate, over 40/min, so they increased his dosages. His respiration rate decreased to a more normal one.

A few hours later, I was sitting at his bedside with the prayer book, reading evening prayer, and could hear his respiration rate slowing. I told him I loved him and asked him not to be afraid or resist death. I started reading the prayers at the time of death, as his breathing continued to slow. I remembered hearing about how people still hear us, even when it seems they might not.

I am so grateful for that experience of sitting with him as he slipped away from the dementia. All the horrible experiences he’d had for the past few years now seemed so distant. Later as I sat and watched the sunset, a feeling of peace washed over me, knowing that he was no longer suffering.

I don’t know if I could have done it without the hours of reading your ups and downs (mostly the downs, sadly, since after all, it’s dementia), commiserating, and learning better ways to handle what was coming. So often these conversations answered my questions, even before I knew I had them.

Home hospice was so helpful to us. Though, as happens so often, we waited much too long to begin. Somehow it’s hard to see how bad things are when we’re in the middle of it all.

For all of you who aren’t sure how much you can handle, who don’t know what’s next, who feel the weight of this bearing down on you every day and night – I pray that you will find the strength you need, and that you will come out on the other side of this before too much longer.

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u/real415 — 2 months ago

Death must be near

He’s been on home hospice for a week. Maybe it should have been earlier, but his most recent decline happened so quickly. A week ago he was still walking around the house. Drinking and eating snacks. Now he’s in bed, barely speaking, resentful about needing to be changed.

It’s been months since he ate a meal out of hunger, at least without prompting. His last real full meal was two weeks ago. Now can barely swallow and he’s mostly sucking on ice chips.

A well-meaning person offered him a few sips of Coke and Boost yesterday – with his empty stomach, those were like powerful drugs. He ended up kicking me and throwing his wet diaper when I needed to change him.

Sometimes I wonder if I’m doing the right thing by regularly disturbing him to change him and the bedding.

I read this, but find it hard to follow:

You are not failing him if hygiene becomes imperfect right now. Near the end of life, avoiding repeated distress is often the kinder choice.

I feel alone, between a family with expectations of flawless care, and those who can’t understand why I would do this.

His decline through dementia has been so long and difficult that I barely remember my old dad. I’m afraid that these images of his final days will never leave me.

Every night, I stand in an unfamiliar liminal space, with death so near, as I say goodnight and goodbye. I know that when the moment comes at long last, it will be the answer to many prayers. Though I’ll feel relieved of an unfathomable weight, what will I have left undone?

For those who’ve walked this way, what were some last things that you did which made a difference in how you healed from the death after dementia experience?

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u/real415 — 3 months ago