u/redfoxxy23

Hey ya’ll - I (26F) and considering egg freezing because I have an Autosomal Dominant disease (meaning I have the disease and one copy causes disease and I have a 50% chance of passing the disease to my offspring). Disease shouldnt affect my fertility.

I came back with a 3.6 AMH but a follicle count of 13 which is apparently low for my age. Anyone know what this means?

Since 50% of the embryos later will have the disease (apparently it is normally more than 50% because the autosomal dominant eggs tend to be strongest/chromosomally normal or something) trying to figure out the potential impact of this.

Thank u!

Hi friends, today is REDS4VEDS day where the VEDS community spreads awareness about our rare, life threatening genetic disorder. Would love to have fellow chronic illness friends join in or learn more.

What is VEDS?

VEDS (Vascular Ehlers-Danlos Syndrome) is a severe, rare genetic disorder that weakens the body's connective tissues. Caused by mutations in the COL3A1 gene, it prevents the body from producing normal type 3 collagen. Its similiar but less prevelant to Marfan’s syndrome.

Symptoms of Vascular Ehlers-Danlos syndrome that may not be apparent from outward appearance include aneurysms, artery dissections, and arterial tears (including the aorta), as well as sudden lung collapse, bowel perforations, and uterine rupture during pregnancy. Additional symptoms can include easy bruising, characteristic facial features and other less severe unexplained symptoms like chronic pain. It is diagnosed via genetic testing on the COL3A1 gene.

The format for REDS4VEDS is free and simple to get involved with:

• ⁠Wear something red
• ⁠Take a picture
• ⁠Share on your socials using the hashtag #REDS4VEDS

You can wear as much or as little red as you want just so long as it’s red! The key to the success of the campaign is the hashtag #REDS4VEDS which helps pull the campaign together!

if you have experienced any of the above and it’s unexplained by your current diagnosis but have not been able to access further care, there are resources available that we can connect you with!

Hi friends, today is REDS4VEDS day where the VEDS community spreads awareness about our rare, life threatening genetic disorder! Would love to have fellow rare disease friends join in or learn more!

What is VEDS?

VEDS (Vascular Ehlers-Danlos Syndrome) is a severe, rare genetic disorder that weakens the body's connective tissues. Caused by mutations in the COL3A1 gene, it prevents the body from producing normal type 3 collagen. Its similiar but less prevelant to Marfan’s syndrome.

Symptoms of Vascular Ehlers-Danlos syndrome that may not be apparent from outward appearance include aneurysms, artery dissections, and arterial tears (including the aorta), as well as sudden lung collapse, bowel perforations, and uterine rupture during pregnancy. Additional symptoms can include easy bruising, characteristic facial features and other less severe unexplained symptoms. It is diagnosed via genetic testing on the COL3A1 gene.

The format for REDS4VEDS is free and simple to get involved with:

• ⁠Wear something red
• ⁠Take a picture
• ⁠Share on your socials using the hashtag #REDS4VEDS

You can wear as much or as little red as you want just so long as it’s red! The key to the success of the campaign is the hashtag #REDS4VEDS which helps pull the campaign together!

if you have experienced any of the above and it’s unexplained by your current diagnosis but have not been able to access further care, there are resources available that we can connect you with!

REDS4VEDS Day is a global campaign that takes place on the third Friday of May each year to help raise awareness of vascular Ehlers-Danlos Syndrome (vascular EDS), a rare genetic disorder.

REDS4VEDS was launched in May 2015 and is hosted by Annabelle's Challenge. The campaign continues to gain momentum year on year helping to raise awareness for those who are touched by vascular EDS, it is also a great way to raise vital funds for research.

The format for REDS4VEDS is free and simple to get involved with:

• ⁠Wear something red
• ⁠Take a picture
• ⁠Share on your socials using the hashtag #REDS4VEDS

Participants are encouraged to engage through places of work, school, and colleges. You can wear as much or as little red as you want just so long as it’s red! The key to the success of the campaign is the hashtag #REDS4VEDS which helps pull the campaign together.

The stick is being shoved down my throat on tik tok but its not on amazon or their site?? But it does seem like their official tik tok posted it.. anyone know why?

And anyone actually tried it? If it helps my under eyes im interested but im sussed by it not being on their site