u/sedboi69xxx

Multiple neurologists gave me different tremor diagnoses- what to believe? (just need opinions)

24M. In 2018 I cold turkey stopped psychiatric meds after about a week of use:

  • Aripiprazole (Zedan)
  • SSRI (Flux)
  • Alprazolam (ALP)

After that I developed minor body jerks, but over the years I started having head shaking/tremor issues.

My symptoms:

  • Head shakes in a “no-no” direction in certain positions
  • Worse when sitting straight with my back against a chair
  • When slowly turning my head right/left and returning to neutral, my head shakes noticeably even when alone
  • Tremor gets MUCH worse when nervous/anxious or in public/social situations
  • Lip trembling when smiling + pressure/tension in lips
  • Neck/back of neck pressure and shoulder tension, especially when sitting straight

What confuses me is that I’ve seen multiple neurologists and got completely different opinions:

  1. (online consultation) He said its Psychogenic Tremor.
  2. (online) He said it's Dystonic Tremor.
  3. (online w/ Movement Disorder specialist) She said it's all functional movement disorder/somatic.
  4. (On-site appointments) He also said it's functional and prescribed me SSRI (which I didn’t take).
  5. (Online Neurologist with 35+ years experience) He said it's Essential Tremor.

But it’s not persistent all the time, which is why I’m confused.

I honestly don’t know what to believe anymore because all of these overlap in some ways with my symptoms.

Has anyone dealt with something similar or received conflicting diagnoses like this? I need help thanks.

reddit.com
u/sedboi69xxx — 4 days ago

Multiple neurologists gave me different tremor diagnoses- what to believe? (just need opinions)

24M. In 2018 I cold turkey stopped psychiatric meds after about a week of use:

  • Aripiprazole (Zedan)
  • SSRI (Flux)
  • Alprazolam (ALP)

After that I developed minor body jerks, but over the years I started having head shaking/tremor issues.

My symptoms:

  • Head shakes in a “no-no” direction in certain positions
  • Worse when sitting straight with my back against a chair
  • When slowly turning my head right/left and returning to neutral, my head shakes noticeably even when alone
  • Tremor gets MUCH worse when nervous/anxious or in public/social situations
  • Lip trembling when smiling + pressure/tension in lips
  • Neck/back of neck pressure and shoulder tension, especially when sitting straight

What confuses me is that I’ve seen multiple neurologists and got completely different opinions:

  1. (online consultation) He said its Psychogenic Tremor.
  2. (online) He said it's Dystonic Tremor.
  3. (online w/ Movement Disorder specialist) She said it's all functional movement disorder/somatic.
  4. (On-site appointments) He also said it's functional and prescribed me SSRI (which I didn’t take).
  5. (Online Neurologist with 35+ years experience) He said it's Essential Tremor.

But it’s not persistent all the time, which is why I’m confused.

I honestly don’t know what to believe anymore because all of these overlap in some ways with my symptoms.

Has anyone dealt with something similar or received conflicting diagnoses like this? I need help thanks.

reddit.com
u/sedboi69xxx — 4 days ago
▲ 9 r/FND

Multiple neurologists gave me different tremor diagnoses- what to believe? (just need opinions)

24M. In 2018 I cold turkey stopped psychiatric meds after about a week of use:

  • Aripiprazole (Zedan)
  • SSRI (Flux)
  • Alprazolam (ALP)

After that I developed minor body jerks, but over the years I started having head shaking/tremor issues.

My symptoms:

  • Head shakes in a “no-no” direction in certain positions
  • Worse when sitting straight with my back against a chair
  • When slowly turning my head right/left and returning to neutral, my head shakes noticeably even when alone
  • Tremor gets MUCH worse when nervous/anxious or in public/social situations
  • Lip trembling when smiling + pressure/tension in lips
  • Neck/back of neck pressure and shoulder tension, especially when sitting straight

What confuses me is that I’ve seen multiple neurologists and got completely different opinions:

  1. (online consultation) He said its Psychogenic Tremor.
  2. (online) He said it's Dystonic Tremor.
  3. (online w/ Movement Disorder specialist) She said it's all functional movement disorder/somatic.
  4. (On-site appointments) He also said it's functional and prescribed me SSRI (which I didn’t take).
  5. (Online Neurologist with 35+ years experience) He said it's Essential Tremor.

But it’s not persistent all the time, which is why I’m confused.

I honestly don’t know what to believe anymore because all of these overlap in some ways with my symptoms.

Has anyone dealt with something similar or received conflicting diagnoses like this? I need help thanks.

reddit.com
u/sedboi69xxx — 4 days ago

Multiple neurologists gave me different tremor diagnoses- what to believe?

24M. In 2018 I cold turkey stopped psychiatric meds after about a week of use:

  • Aripiprazole (Zedan)
  • SSRI (Flux)
  • Alprazolam (ALP)

After that I developed minor body jerks, but over the years I started having head shaking/tremor issues.

My symptoms:

  • Head shakes in a “no-no” direction in certain positions
  • Worse when sitting straight with my back against a chair
  • When slowly turning my head right/left and returning to neutral, my head shakes noticeably even when alone
  • Tremor gets MUCH worse when nervous/anxious or in public/social situations
  • Lip trembling when smiling + pressure/tension in lips
  • Neck/back of neck pressure and shoulder tension, especially when sitting straight

What confuses me is that I’ve seen multiple neurologists and got completely different opinions:

  1. (online consultation) He said its Psychogenic Tremor.
  2. (online) He said it's Dystonic Tremor.
  3. (online w/ Movement Disorder specialist) She said it's all functional movement disorder/somatic.
  4. (On-site appointments) He also said it's functional and prescribed me SSRI (which I didn’t take).
  5. (Online Neurologist with 35+ years experience) He said it's Essential Tremor.

But it’s not persistent all the time, which is why I’m confused.

I honestly don’t know what to believe anymore because all of these overlap in some ways with my symptoms.

Has anyone dealt with something similar or received conflicting diagnoses like this? I need help thanks.

reddit.com
u/sedboi69xxx — 4 days ago

24M Alright, So I have un-diagnosed Head tremor issues (Some doctors say it's Dystonic Tremor some say Functional Tremor some say It's Somatic symptoms).

A little bit about my tremor.

-So I have very minor body jerks they get bad with I am anxious or center of attention.
-When I sit straight my head is prone to shaking with pressure/pain on back of neck but does not shake when i am calm (even when im calm I move my head slowly to right and left and head shakes so badly in no-no pattern). This gets really bad in social situations or anxious.

-Lips trembling and pressure when smiling (very bad in social or nervous situations).

Issues:

First let me tell you I am a confident man. But As told my tremor is not always there but there is always a tendency of tremor in my head (just depends on situation or head position).

- To people that I think have better personality then me (Like good looking, talented, live in better city e.g). I am more prone to shaking meeting those people Since I think what if they notice my tremors and they will think I am anxious or idk something so this makes me more prone to tremors and guess what it happens since I think they are okay neurologically and I have this issue in brain so I am lesser then them when it comes to health part but either way i am confident about my own looks and personality/height etc.

- Also if some how someone noticed my head tremors (Now I know that they know I have this embarrassing issue). I fear meeting/contacting that person again or if i go meet them my heart beat goes really fast and my head tremor comes really bad.

- Also talking to a girl online on Discord that I know likes me I start shaking but This shaking only start for like the start of talking then I get good later once I calm down. (this happens only when I know she likes me and gives me too much attention or i think she has very good personality or is very pretty or idk man).

- Also there was an uncle who used to admire me like my personality is good and stuff I never had any contact with him but I had to buy something from his shop once knowing that he admires me I kinda become the center of attention in my own head. So I went to his shop and oh man oh I was trembling my head full body trembling was very bad it was very noticeable.

- Also I wanna go to a different city for a job since I currently have remote job but I have friends from that city they wanna meet me I always avoid meeting them cuz of this issue (What if they notice my symptoms??). Also that girl never seen me irl so when if she notices my head shaking on Discord video call with friends?? This scares me a lot and same loop starts.

Is this like a normal embarrassment response of head tremors or is it like a mental illness?

(I think I might have a movement disorder that reacts very bad to whatever this is a normal response of embarrassment of mental illness)

reddit.com
u/sedboi69xxx — 16 days ago
▲ 1 r/FND

24M Alright, So I have un-diagnosed Head tremor issues (Some doctors say it's Dystonic Tremor some say Functional Tremor some say It's Somatic symptoms).

A little bit about my tremor.

-So I have very minor body jerks they get bad with I am anxious or center of attention.
-When I sit straight my head is prone to shaking with pressure/pain on back of neck but does not shake when i am calm (even when im calm I move my head slowly to right and left and head shakes so badly in no-no pattern). This gets really bad in social situations or anxious.

-Lips trembling and pressure when smiling (very bad in social or nervous situations).

Issues:

First let me tell you I am a confident man. But As told my tremor is not always there but there is always a tendency of tremor in my head (just depends on situation or head position).

- To people that I think have better personality then me (Like good looking, talented, live in better city e.g). I am more prone to shaking meeting those people Since I think what if they notice my tremors and they will think I am anxious or idk something so this makes me more prone to tremors and guess what it happens since I think they are okay neurologically and I have this issue in brain so I am lesser then them when it comes to health part but either way i am confident about my own looks and personality/height etc.

- Also if some how someone noticed my head tremors (Now I know that they know I have this embarrassing issue). I fear meeting/contacting that person again or if i go meet them my heart beat goes really fast and my head tremor comes really bad.

- Also talking to a girl online on Discord that I know likes me I start shaking but This shaking only start for like the start of talking then I get good later once I calm down. (this happens only when I know she likes me and gives me too much attention or i think she has very good personality or is very pretty or idk man).

- Also there was an uncle who used to admire me like my personality is good and stuff I never had any contact with him but I had to buy something from his shop once knowing that he admires me I kinda become the center of attention in my own head. So I went to his shop and oh man oh I was trembling my head full body trembling was very bad it was very noticeable.

- Also I wanna go to a different city for a job since I currently have remote job but I have friends from that city they wanna meet me I always avoid meeting them cuz of this issue (What if they notice my symptoms??). Also that girl never seen me irl so when if she notices my head shaking on Discord video call with friends?? This scares me a lot and same loop starts.

Is this like a normal embarrassment response of head tremors or is it like a mental illness?

(I think I might have a movement disorder that reacts very bad to whatever this is a normal response of embarrassment of mental illness)

reddit.com
u/sedboi69xxx — 16 days ago

24M Alright, So I have un-diagnosed Head tremor issues (Some doctors say it's Dystonic Tremor some say Functional Tremor some say It's Somatic symptoms).

A little bit about my tremor.

-So I have very minor body jerks they get bad with I am anxious or center of attention.
-When I sit straight my head is prone to shaking with pressure/pain on back of neck but does not shake when i am calm (even when im calm I move my head slowly to right and left and head shakes so badly in no-no pattern). This gets really bad in social situations or anxious.

-Lips trembling and pressure when smiling (very bad in social or nervous situations).

Issues:

First let me tell you I am a confident man. But As told my tremor is not always there but there is always a tendency of tremor in my head (just depends on situation or head position).

- To people that I think have better personality then me (Like good looking, talented, live in better city e.g). I am more prone to shaking meeting those people Since I think what if they notice my tremors and they will think I am anxious or idk something so this makes me more prone to tremors and guess what it happens since I think they are okay neurologically and I have this issue in brain so I am lesser then them when it comes to health part but either way i am confident about my own looks and personality/height etc.

- Also if some how someone noticed my head tremors (Now I know that they know I have this embarrassing issue). I fear meeting/contacting that person again or if i go meet them my heart beat goes really fast and my head tremor comes really bad.

- Also talking to a girl online on Discord that I know likes me I start shaking but This shaking only start for like the start of talking then I get good later once I calm down. (this happens only when I know she likes me and gives me too much attention or i think she has very good personality or is very pretty or idk man).

- Also there was an uncle who used to admire me like my personality is good and stuff I never had any contact with him but I had to buy something from his shop once knowing that he admires me I kinda become the center of attention in my own head. So I went to his shop and oh man oh I was trembling my head full body trembling was very bad it was very noticeable.

- Also I wanna go to a different city for a job since I currently have remote job but I have friends from that city they wanna meet me I always avoid meeting them cuz of this issue (What if they notice my symptoms??). Also that girl never seen me irl so when if she notices my head shaking on Discord video call with friends?? This scares me a lot and same loop starts.

Is this like a normal embarrassment response of head tremors or is it like a mental illness?

(I think I might have a movement disorder that reacts very bad to whatever this is a normal response of embarrassment of mental illness)

reddit.com
u/sedboi69xxx — 16 days ago

Is this mental illness or normal embarrassment response of head tremors?

24M Alright, So I have un-diagnosed Head tremor issues (Some doctors say it's Dystonic Tremor some say Functional Tremor some say It's Somatic symptoms).

A little bit about my tremor.

-So I have very minor body jerks they get bad with I am anxious or center of attention.
-When I sit straight my head is prone to shaking with pressure/pain on back of neck but does not shake when i am calm (even when im calm I move my head slowly to right and left and head shakes so badly in no-no pattern). This gets really bad in social situations or anxious.

-Lips trembling and pressure when smiling (very bad in social or nervous situations).

Issues:

First let me tell you I am a confident man. But As told my tremor is not always there but there is always a tendency of tremor in my head (just depends on situation or head position).

- To people that I think have better personality then me (Like good looking, talented, live in better city e.g). I am more prone to shaking meeting those people Since I think what if they notice my tremors and they will think I am anxious or idk something so this makes me more prone to tremors and guess what it happens since I think they are okay neurologically and I have this issue in brain so I am lesser then them when it comes to health part but either way i am confident about my own looks and personality/height etc.

- Also if some how someone noticed my head tremors (Now I know that they know I have this embarrassing issue). I fear meeting/contacting that person again or if i go meet them my heart beat goes really fast and my head tremor comes really bad.

- Also talking to a girl online on Discord that I know likes me I start shaking but This shaking only start for like the start of talking then I get good later once I calm down. (this happens only when I know she likes me and gives me too much attention or i think she has very good personality or is very pretty or idk man).

- Also there was an uncle who used to admire me like my personality is good and stuff I never had any contact with him but I had to buy something from his shop once knowing that he admires me I kinda become the center of attention in my own head. So I went to his shop and oh man oh I was trembling my head full body trembling was very bad it was very noticeable.

- Also I wanna go to a different city for a job since I currently have remote job but I have friends from that city they wanna meet me I always avoid meeting them cuz of this issue (What if they notice my symptoms??). Also that girl never seen me irl so when if she notices my head shaking on Discord video call with friends?? This scares me a lot and same loop starts.

Is this like a normal embarrassment response of head tremors or is it like a mental illness?

(I think I might have a movement disorder that reacts very bad to whatever this is a normal response of embarrassment of mental illness)

reddit.com
u/sedboi69xxx — 16 days ago

Hello, 24M I cold turkey stopped Psychiatric medication in 2018 after a week of use. Meds were - Zedan (Antipsychotic), Flux (SSRI), ALP (Benzo).

Since then i had body jerk issues but they were minor.

Now I have head shaking issues like i am okay most of the time but in certain positions like sitting straight my head shakes like in no-no positions and sometimes in yes yes positions All this gets really bad when anxious or with friends and I have most of time pressure and pain in back of neck and shoulders .

Also my lips shake so much when smiling and there is so much pressure on lips too. I can't even go to gatherings or at restaurant with friends since this issue gets really bad with anxiety.

Also a weird symptoms I have like severe pressure on my forehead almost always this started like a month ago. Also my right eye been twitching badly since a month ago.

I went to neurologist he had done MRI (Contrast), tests and said everything is structurally normal and said it's related to functional symptoms. And prescribed me an SSRI (Paroxetine). I am really scared of starting an SSRI and i don't think that it's the right treatment since I don't even have depression. (I think SSRI can make all these more worse).

Also I had an online consultation with a movement disorder specialist and she said its all like somatic and psychosomatic coming from thoughts and functional stuff. (Which i don't believe is entirely true)

What do you think about SSRI's being used for my symptoms (Functional neurological disorder)?

Thank you for reading.

reddit.com
u/sedboi69xxx — 18 days ago

Hello, 24M I cold turkey stopped Psychiatric medication in 2018 after a week of use. Meds were - Zedan (Antipsychotic), Flux (SSRI), ALP (Benzo).

Since then i had body jerk issues but they were minor.

Now I have head shaking issues like i am okay most of the time but in certain positions like sitting straight my head shakes like in no-no positions and sometimes in yes yes positions All this gets really bad when anxious or with friends and I have most of time pressure and pain in back of neck and shoulders.

Also my lips shake so much when smiling and there is so much pressure on lips too. I can't even go to gatherings or at restaurant with friends since this issue gets really bad with anxiety.

Also a weird symptoms I have pressure like severe pressure on my forehead almost always this started happening like a month ago believe me :(. Also my right eye been twitching badly since a month ago.

I went to neurologist he had done MRI (Contrast), tests and said everything is structurally normal and said it's related to functional symptoms.
And I asked could this be Dystonic Tremor? He said no my tremor is not rhythmic And prescribed me an SSRI (Paroxetine). I am really scared of starting an SSRI and i don't think that it's the right treatment since I don't even have depression. (I think SSRI can make all these more worse).

Also I had an online consultation with a movement disorder specialist and she said its all like somatic and psychosomatic coming from thoughts and functional stuff. (Which i don't believe is entirely true)

Do you have any experience like this?

What do you think is this Functional Neurological Disorder or a movement disorder?

I really need clarifications on my Diagnosis. Thank you for reading.

reddit.com
u/sedboi69xxx — 18 days ago

Hello, 24M I cold turkey stopped Psychiatric medication in 2018 after a week of use. Meds were - Zedan (Antipsychotic), Flux (SSRI), ALP (Benzo).

Since then i had body jerk issues but they were minor.

Now I have head shaking issues like i am okay most of the time but in certain positions like sitting straight my head shakes like in no-no positions and sometimes in yes yes positions All this gets really bad when anxious or with friends and I have most of time pressure and pain in back of neck and shoulders .

Also my lips shake so much when smiling and there is so much pressure on lips too. I can't even go to gatherings or at restaurant with friends since this issue gets really bad with anxiety.

Also a weird symptoms I have pressure like severe pressure on my forehead almost always this started happening like a month ago believe me :(. Also my right eye been twitching badly since a month ago.

I went to neurologist he had done MRI (Contrast), tests and said everything is structurally normal and said it's related to functional symptoms. And prescribed me an SSRI (Paroxetine). I am really scared of starting an SSRI and i don't think that it's the right treatment since I don't even have depression. (I think SSRI can make all these more worse).

Also I had an online consultation with a movement disorder specialist and she said its all like somatic and psychosomatic coming from thoughts and functional stuff. (Which i don't believe is entirely true)

Do you have any experience like this?

What do you think is this Functional Neurological Disorder or no?

I really need clarifications on my Diagnosis. Thank you for reading.

reddit.com
u/sedboi69xxx — 18 days ago
▲ 1 r/FND

Hello, 24M I cold turkey stopped Psychiatric medication in 2018 after a week of use. Meds were - Zedan (Antipsychotic), Flux (SSRI), ALP (Benzo).

Since then i had body jerk issues but they were minor.

Now I have head shaking issues like i am okay most of the time but in certain positions like sitting straight my head shakes like in no-no positions and sometimes in yes yes positions All this gets really bad when anxious or with friends .

Also my lips shake so much when smiling and there is so much pressure on lips too. I can't even go to gatherings or at restaurant with friends since this issue gets really bad with anxiety.

Also a weird symptoms I have pressure like severe pressure on my forehead almost always this started happening like a month ago believe me :(. Also my right eye been twitching badly since a month ago.

I went to neurologist he had done MRI (Contrast), tests and said everything is structurally normal and said it's related to functional symptoms. And prescribed me an SSRI (Paroxetine). I am really scared of starting an SSRI and i don't think that it's the right treatment since I don't even have depression. (I think SSRI can make all these more worse).
Also I had an online consultation with a movement disorder specialist and she said its all like somatic and psychosomatic coming from thoughts and functional stuff. (Which i don't believe is entirely true)
Do you have any experience like this?
What do you think is this FND or no?
I really need clarifications on my Diagnosis. Thank you for reading.

reddit.com
u/sedboi69xxx — 18 days ago