Hello all! Nothing showed on my short eeg so I will be going to an epilepsy monitoring unit for a few days. What are good things to bring, and what things weren’t worth bringing? Also I do bead work, do you think I can bring that stuff including beading needles or is that not allowed? Thank you 🙏
Long story short I’m pretty sure I have myasthenia gravis but am struggling to find a doc willing to do a Mestinon trial. I also recently shared a lot of drinks and food with a friend while visiting their place and they just tested positive for mono. What do I expect in 4-6 weeks from now if I get mono and also have untreated myasthenia gravis. What was your experience. Did any of you end up in crisis from it? Any info helps. Thank you
Welp, I’ve done messed up. I’m visiting a friend and both them and I have celiac disease. I’ve been to chick fil a so many times and never been glutened before… until today. We both woke up in the middle of the night having our glutened symptoms and the only thing that we’ve both eaten were the fries. The timeline adds up too. After doing some research I’ve learned not all chick fil a’s have a dedicated fryer for French fries. I’ve gotten so used to eating there that I stopped asking to double check it’s safe. This sucks. I guess this is a good reminder to always ask the important gluten free questions no matter how many times you eat at a place.
Hello all. I am helping my friend who was just denied Medicaid funded long term care. They live in Virginia. They met the first two requirements: a nursing home level of functional status, and an ongoing medical and/or nursing need. However they didn’t meet the third requirement: not at a risk of institutionalization within 30 days. I believe this is because they live with their partner. We are going to appeal this decision but was wondering what that process looks like. I assume you have to go to court for it like my SSDI appeal. They are autistic so I don’t think it’s a good idea for them to represent themselves so me or their partner are going to as lawyers are quite expensive. What are the appeals like, what information are they going to focus on, what materials will I need to prep, and what makes someone and imminent risk of nursing facility placement? Literally any information or explanation provided will be helpful. Thank you and please let me know if more information is needed.
I’ve (23 F) been traveling quite a bit lately and every now and then when going through security they stop me to ask if I’m 13 or under because I guess they do something different for children. So I’m going through security and putting my bag on the table for the scanner and one tsa agent stops me and asks if I’m 13 or under. I say I’m 23 and he says with a lot of attitude “well take it as a compliment”. I brush it off and go to the scanner and before they let me in another tsa agent stops me and asks if I’m 13 or under. I go no I’m 23 and he goes oh my gosh I thought you were 12. I just go “surprise!” And laugh it off. I’m used to people thinking I’m younger than I am and can usually laugh it off, but gosh I have never had anyone snap back at me to take looking like a child as a compliment. He said it with such attitude like I wasn’t supposed to correct him. Bizarre. I also am not a fan of people saying to take it as a compliment. Sure when I’m 50 and you think I’m in my 30s maybe I will. But when I’m an adult and you mistake me for a child I will not take it as a complement because I don’t want to be mistaken for a child. Anyways that’s my mini rant. Thanks for reading.
I went to another doc to see if they would take me seriously about mg but left very disappointed with all of my health problems being blamed on fibromyalgia. However, he did point out to me that my left eye was lagging behind my right eye when he was having me follow his finger with my eyes. My left eye is the eye that droops and now has Bell’s palsy on. He said that Bell’s palsy wouldn’t cause a true lazy eye like I’m having but didn’t mention anything about mg causing it after he blamed my muscle weakness on fibromyalgia but also in the same appointment said fibromyalgia isn’t a real diagnosis. So anyways he said I need to go to a neuro ophthalmologist. While I wait to get into one of those docs I am curious. Can myasthenia gravis cause a lazy eye?
Hello all! For the past three or so years I’ve been fighting for doctors to take me seriously about looking into MG. I have a lot of symptoms for it but I’m just gonna focus on the facial ones for this post. I’ve had a droopy left eyelid that gets worse the more I do and even had a positive ice pack test. However, in the past few months that whole side of my face has begun to droop. Even the nostril. I got an mri and have Bell’s palsy due to the inflammation of the facial nerve. I’ve had an MRI done previously when it was just my eyelid drooping and there wasn’t any inflammation. I’m just very frustrated because one of my pieces of proof is now over ridden by the Bell’s palsy. Does anyone else have a similar situation or advice?