u/submissivebrat20

▲ 3 r/CIRS

Doctor finally listened now on cromolyn

I have been getting sick daily for weeks and finally got my immunologist to listen and we are now trying cromolyn yay only thing is I have to take it with milk

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u/submissivebrat20 — 5 days ago
▲ 1 r/MCAS

Not able to get into doctors

I've recently developed intolerances to many foods and water I've tried to get in with my family doctor and my specialist but with no luck any advice I don't want to just go to the ER as I'm not actively swelling or flaring. But I'm not sure what to do at this point

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u/submissivebrat20 — 29 days ago
▲ 2 r/MCAS

Newly diginosed and can't keep food down

Hello everyone I'm newly diginosed with MCAS I'm on a type of chemo but even before that I've not been able to keep food down I either like it dump everything I eat except steak, Russet potatoes, and cream cheese. I've been dealing with mcas for ten months mainly swelling, dizziness and heat intolerance. So this is new but has been very consistent for the last 5 weeks anyone have any tips

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u/submissivebrat20 — 1 month ago
▲ 1 r/MCAS

Question is this normal or a common experience

I just recently received the diginoses of mcas after 10 months of doctors calling it idiopathic angioedema, when it first started I would have flats like once a month that caused hospitalizations but as time passed it became almost weekly that I was getting hospitalized with most involving the ICU since it was caused swelling in my airway. Now it's been three weeks with a bad flare but I'm not able to keep food down I will be starting medication soon but just wanted to know if this is similar to anyone else.

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u/submissivebrat20 — 2 months ago
▲ 2 r/MCAS

New to having HEA would like some tips if you have any

Hi I'm newly diagnosed with HEA class 3 it's been 8 months of almost constant flares involving many hospital visits and ICU stays we have not found a trigger for mine at all and so far no medications are helping. The flares often effect my airways and face so it can be quite scary and progress fast. If you have any tips it would be very appropriate

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u/submissivebrat20 — 2 months ago

Sleeping toddler reborn

Hello everyone I am looking for a sleeping toddler reborn but having trouble finding one does anyone know any good sculpt or have any that could share pictures of theirs

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u/submissivebrat20 — 2 months ago