u/tinyquilt

What are the online spaces you’ve found supportive as a late identified autistic person?

Please be specific. So instead of “discord” share the server name. Instead of “peer support” drop a link to the support group. Instead of “reddit” list the subreddit. Offerings change and spaces change so it’s helpful for me to know what exists right now.

And drop a line or two about why it’s been supportive if you‘re up for it!

I’m open to dms as well, especially for online affinity spaces (eg groups for people who are queer, trans, and/or BIPOC).

I’m so exhausted, exhausted to the point I got a CFS diagnosis because my multi-year fatigue would not let up no matter what I did. Sleep hygiene, sleep meds, cpap. And now I understand that this isn’t depression or just my sleep disorder, this is burnout. I probably would’ve never figured it out if this hadn’t have happened. So in some ways I’m relieved I know now, but also I hate that it had to get to this point for me to learn something so huge. And I really want my brain back.

Decided to get a formal diagnosis. The primary assessment tool was the MIGDAS, and just got my report this week. Since I went down the Am I Autistic? research hole, I guess I already identified most of the things that a report might draw attention to. I think I expected more suggestions around potential accommodations and less of a general summary of my autistic traits. Any one else find their report kinda useless?

Also some of the jargon in these things is hilarious. Clinicians…who hurt y’all and made you write this way eg “extreme textural defense?”

If you have/had trauma symptoms how do you figure out what will help?

Sometimes what I’m told to do for ptsd makes sensory issues worse. That’s not always the case, but it’s taking time to figure it out. For instance, I’m not sure if I’m having panic attacks or meltdowns or some other thing. It all feels like a tangled necklace