Have been dealing with mystery health issues for more than decade now that started as a child. Have gone down multiple different avenues. Looking to pull the trigger on Whole Genome Sequencing; is it worth it? Have you done it before? And what price range should be considered average and reasonable? Any recommendations? Thanks
Big long post about CAH?/PCOS/Thyroid.
Hello! I am new to this subreddit and new to the idea of a potential adrenal insufficiency or CAH diagnosis. I have been speaking with a friend who is in med school and they suggested I get tested for both. While I am in the process of getting that done, I figured I would come on here to ask if any of my symptomology sounds similar to something you have experienced?
As someone who has been diagnosed with PCOS for the past decade, I have always experienced thick Hirsutism/male-dominate hair growth patterns, hair shedding, insulin/blood sugar issues, body odor, acne, dry skin, etc. (the list could go on) and while I have addressed every angle of the condition, (diet, exercise, minerals, supplementation, therapy/PT, nervous system, mentality, sleep, sunlight, hydration, antioxidants, living a clean and stress free lifestyle, etc) I still experience symptoms. So I’ve always wondered if there was something larger at play.
I also have a thyroid condition (genetic and autoimmune) which I have heard can connect to CAH as well, since you need either hormone from each organ to regulate the other.
All of this to say, my biggest symptom is unrelenting fatigue and weakness that hurts down into my bones. Sleep does not touch this fatigue. Exercise does not touch this fatigue. Spending time with family and friends does not touch this fatigue. It is painful and feels so heavy like I can barely breathe. My adrenals feel sore to the touch. Intense brain fog to the point of dissociation and neurological symptoms. Falling asleep at all times of the day. Sometimes during a meal. In addition to the remnants of symptoms I thought are PCOS. Does this sound familiar? (I know this can be thyroid related as well, but it’s another reason I am wondering if it’s all connected on a greater scale to something like CAH. Do you have a thyroid condition with AI/CAH?… (I do want to recognize that those two different diagnoses are not meant to be lumped together and that they are separate in their presentation and diagnosis, but I couldn’t find a dedicated CAH sub.)
More details: I have just recently found lab testing from a while back (from when I was a teen) where my DHEA was bottomed out and I had very low testosterone and low estrogen (I’m biologically female btw for reference). It was never brought up by my doctor, but to me it seems significant to this hunt/mystery/case I’m trying to solve. I haven’t had my DHEA tested since but will make sure it gets tested this next round.
[[What I’m additionally curious about is how my male hormones/androgens could be low but I still experience Hirsutism/body odor/shedding etc… I have a few theories regarding estrogen dominance and it’s ability to turn into androgens, but I figured I’d ask on here as well.]]
Anyways, thank you for reading :)
Edit 9/23/26 - just found r/livingwithcah 10 minutes after posting this. will cross post on there as well.
If you are taking only T3 in the US, how are you sourcing it? Prescription, online?
Anyone who is taking only T3 and in the US, how are you sourcing it?
Has anyone found a non toxic deodorant that truly works? No stink?
What’s the ideal water treatment/set up for hard water in the shower that isn’t an entire home system? Any good recommendations for a filter + water softener? Anyone have a holy grail combo or product? I’d like to hear about it! Thanks :)
For Hashi folks specifically who are currently taking or have taken only T3 for a given period of time, would you please share your experience with it? Pros and cons, dosing, timing, symptomology, labs (if you’re comfortable), why you started taking it and what you have seen improve, etc. Thanks :)
Any curly girls have good non toxic hair recs? Need something moisturizing+hydrating, low to no fragrance :)
I’m not exactly sure which subreddit to post this question to, but I figured this one might be a good start. I was wondering if anyone had insight or experience to a phenomena I experience when I sleep — it’s typically when I’m waking up, I start to go in and out of consciousness/sleep multiple times and my body starts mildly and consistently shaking. It gets to the point where I start to wonder if there’s an earthquake (there isn’t). During these episodes, and during the periods I’m conscious, I know that I’m awake and I know that I’m shaking but I can’t do anything about it. Everything feels limp. I don’t know how long they last for because I sleep through parts of them, but it’s NOT a jerk sensation or something quick; they last a while from what I can discern. Anyways, if this sounds familiar and you’ve found an answer for it, I’d appreciate hearing about it. Thanks.
Left one moldy home to another house that we thought was mold free but are still experiencing mold-related symptoms like congestion, nightmares, fungal issues, etc. This house seems unsuspecting so I’m wondering if there are sneaky tell-tale signs of mold before we go and pay for another investigator