u/wild_rose_child

I downloaded this app forever ago, tried to use it and became so completely overwhelmed by my ignorance that I set my phone down and just slowly backed away into a corner.

I really want to use it to create automation that could help me manage my ADHD ravaged household but I am so lost I don't know how to get started.

I've started searching for tutorials but most have me lost by the intro.

If you were trying to teach a 5 year old, what resources would you recommend...actually my 5 year old might be better at this than me...a caveman perhaps?

Bottom line up front:

What therapies/treatments/tools would you have wanted to receive as a kid to help deal with symptoms. Kiddo has spastic hemiplegic CP.

Backstory

My kiddo has been in OT and PT since we finally got his diagnosis at 3. Over the past 6 years he's made great progress. He is mostly self sufficient for a 9 year old. Still a few things he needs help with because he can't keep his arm extended enough to properly scrub his hair in the shower but mostly able to do things with an adapted grip or aid.

His care team have told me from the beginning that "by the time he finishes growing you won't even be able to tell he has CP" and I naively thought this meant with all his therapies he would build the neural pathways he needed to let his muscles get the correct signals etc. The focus is primarily on his leg, really working to get his foot down to a neutral position. They were working on his hands to but the OT we were assigned is sort of, unhelpful in a very kind way.

As he has progressed they have continued to reduce the number of times he goes in which was fine with me at first because we can do the PT exercises at home and the OT assigned to him spent so much time doing little diy splints that he refuses to use that we weren't even accomplishing anything. This facility is also limited on what specific skills they can work on. We are now down to an every other month check-in for his leg brace and measurements.

I happened to be researching the issues he has with his kidney/bladder and found this group. In looking through everything I am concerned that they might not understand how he's likely to progress as he ages and I am accidentally setting him up for future pain and challenges.

I was already looking into special OT for his toileting issues and want to get better help with his hands but I'm concerned that there is more I just don't know to be concerned about.

Was there anything that your parents shamed or punished you for that was outside of your control that they just didn't understand was part of having CP? Did the coddle too much or push you too hard? I want to be the support my son needs but I know there are going to be blind spots.

Background if it helps:

My kiddo has CP and a couple of chronic conditions that I figured are related his CP but it seems like even now in 2026 so many doctors straight up ignore how CP impacts anything beyond limb use and swallowing.

My kids case is mild enough that most people know him for months before they finally clock that something is different, usually the toe walking is what gets mentioned. But he has a lot of challenges around toileting. It seems totally reasonable to me that if everything on the ledt side of his body is impacted than any systems or organs on that left side will also be impacted. I had to really push his doctor to consider that his toileting issues could be CP related and not solely ADHD. His Gastroenterologist just wanted to give miralax because he must just be constipated but I thought it was more likely that he has slow motility and that his body wasn't coordinating all the sphincters normally. His treatment plan made everything worse so I just trusted my gut and its a lot better.

His urologist did order testing that showed his kidney and bladder sphincters were not functioning properly which allowed the bladder to reflux back into his kidney and just randomly release his bladder without him actively releasing it.

Is there other stuff like this that is making things harder, more tiring or painful that I should know about? What would you want to go back and tell yourself if you could?

I am trying to understand how the roots of my breast work, I have a reasonable gap between Thelma and Louise at the bottom of my breast but at the sternum, like maybe 1/4 inch between if I lay on my back and force them into seperate corners. But, they don't seem to end, there is no discernible end they just become my side, like a street that just gently turns the corner and suddenly has a new name. Is this normal? I have to use the Elomi Cate (36K) to get an underwire that doesn't stab me in the boob fat.

I don't recall ever having an apparent end to my breast, even back in my C cup days of puberty so I don't think its just a size thing.

I've pretty much given up on finding a bra I love and am settling for one that doesn't make me crave a long walk off a short roof.