u/xrmttf

During orthodontic treatment the ortho changed my bite so my jaw pulled in a horrible, terrible, wrong position which ripped my neck apart and destroyed my entire body. I don't want to get into all the details because I'm so traumatized from it emotionally as well as physically (this was 19 months ago and it utterly ruined my life, my entire body, turning me into a housebound person who can barely use the bathroom etc). My pain psych got me an appointment with a pain specialist who is also an EDS specialist and should know about the cervical instability (which I don't feel I have... I just need my jaw and neck put back how they were...)

I am just scared this doctor is also not going to believe me about the event that INSTANTLY CAUSED all my issues. I've seen so many doctors and they start saying shit to me like "you're just aging" and "have you tried yoga" and "you need to eat better" ... No. MY NECK WAS CATASTROPHICALLY INJURED!!!! And STILL IS!!!

If anyone has tips on how to get this new doctor to actually listen to what happened to me please advise me. I'm so scared. My once vibrant and rad life now consists of laying on the floor almost all day every day, and going to dr appointments to try to get someone to LISTEN TO ME. I'm so scared it's too late. I'm so angry I got ortho. Sorry, I am ranting. I'm very traumatized 😞

40F. 5'9" 125lbs.

Last year, my hormones went awry temporarily. Don't know why, just old i guess. I am getting fat. My muscles are gone. I used to be 115 pure muscle. My waist hip ratio went from 0.6 to 0.9.. Yikes. I have always been very thin and fit.

My blood glucose barely moves after eating, even if i eat an entire pint of ice cream (yes i know..for science). Always between 80-115 ("thats good!"). FOOD DOESN'T GIVE ME ENERGY! thats my biggest problem. It happened all of a sudden after a neck injury in still contending with. I feel that I'm starving all the time, for energy, but not in my stomach. My stomach has no hunger at all, never growls. My A1C is 5.1 a year or so after but maybe its bad now.

I've tried many diets supplements etc over the past year. I was on keto for most of the year since I was never hungry anyway. Didn't affect my weight or energy. I'm trying to see an endocrinologist, can't get a referral. When i eat it just turns into fat. I'm so exhausted. Lifting weights does nothing. Running does nothing. Something is broken. About half of my hair fell out too.

If this sounds relatable to anyone please tell me about it. Thanks!

I don't know what more I could be doing if it's insulin stuff

I was wondering if anyone has taken this drug, pyridostigmine. My GI doc gave it to me because of POTS and lifelong slow-transit constipation ("weak guts" as ive always called it) and the way that laxatives don't really work on me.

It is pretty fast acting. My experience was that it felt like my entire body became pressurized, but in a good way?, and more "alive". But it also sort of felt like my heart was going to explode so I didn't take it very many times. It definitely "punped up" my intestines, like they felt alive and energized.

I probably first posted here about a year ago, when things went to Hell all of a sudden. Well now my genitals are almost totally gone. Hair all gone. Boobs feel loke theyre trying to float into outer space which is an incredibly bad feeling but I guess the other possibility is that they just hang down which is something that they started doing last year as well. My whole body is like a blob, even parts that don't make sense like my forearms, the skin is hanging in waddles. Not to really toot my own horn but to give you some perspective two years ago I was shaped like a Victoria's Secret runway model. Of course, I got a horrible neck injury and I've had to spend most of every day laying flat on my back on the floor for about a year and a half, so I haven't been able to exercise really for the first time in my life. But still. This makes no sense to me. I am being entombed in fat. My hipbones are almost totally gone. My legs are like sausages. When I eat food it doesn't raise my blood sugar at all. I've been keeping track. Apparently it just makes me fat instantly. I don't understand this. I don't understand what I'm supposed to do. Doctors aren't listening or helping. I don't understand why this is happening to me and not to other women. My dad's girlfriend is 65 and she looks amazing. All around me, this is not happening to anyone else. There's no iron in my blood and I can't get any iron in my blood. We've been trying all these different things for years I have had to go to the ER with reactions. I wish there was some sort of knowledge about what to do. I feel so hungry all the time and like I just want to scream forever. My teeth are crumbling in my head. My hair is totally ruined which sucks because it was very beautiful and down to my butt.

If I had known this was going to happen I would have made completely different life choices. I just don't understand. Life is over and I just don't understand if I'm supposed to keep hanging in there for something or if it's just going to get worse forever now. I'm not going to take HRT. HRT makes it all worse.

It just doesn't make sense. I mean I've always been totally alone like literally alone not seeing people for days. So I'm really not very educated or anything. I guess this is just another part of a life story that didn't make any sense and I never wanted.

I like to read books. I really like the stories and getting the information and everything. But my eyes hurt so I'm trying out an audiobook now and I'm having a problem. This is the same problem I have with trying to listen to podcasts or even people telling stories or instructions usually:

I listen, but I have to put it inside my mind and read it and so it's like double the work. It's like I'm listening to the words and then typing them out on a page in my brain and then reading that page to myself... But at the same time, it's like the information is coming too slowly to me and I can't keep a hold on it because I already forgot how the sentence started that they were telling me, because I can't look back at the words and remind myself I guess? Because I can't actually remember all the words that I'm trying to type out on a page in my head. I guess it's kind of like closed captioning inside my head and then it's off the screen quickly.

I don't really have a problem with having a spoken conversation with someone because I am listening to what they're saying and thinking about it because I'm going to respond. But when I'm just supposed to listen, it doesn't work.

Does anyone else have a problem like this? Do you know what it might be called? This has been a problem my whole life but I never really tried articulating it until now (im 40). Thanks

Hi, my teeth used to be crowded and they were fine I liked them and had no problems. I got braces on my teeth. I got the braces off a year and a half ago. I am still upset and uncomfortable 24/7 because of how my teeth are now and how my mouth, jaw and tongue don't work right. I was just wondering if anyone here has been through the same thing and if they ever got used to it. It is so intense that I can't do anything anymore because I'm on the verge of melting down from this.

I already did lots of physical therapy for my mouth and tongue. And tried drugs. My teeth are all in the wrong place now and hurt all the time and i cant ever feel comfortable. Thanks

I'm (40F) at the end of a lifetime of medical gas lighting and horrendous interactions with everyone around me. It makes me feel insane. I am not insane. If I talk to extremely intelligent and intellectually minded people like mechanical engineers or seven figures salarymen at intel they understand what I'm saying completely. I just can't believe so many people do not understand or believe in basic physics or the experiences of others. I seriously hate this world so much. Everything is a grift and everyone is full of shit. Can people really not tell the difference between a picture of regular wood and a picture of wood that's totally covered in white mold? I've read so many psychology books and studied so much over my life but I still don't understand what the fuck is wrong with people. But if I face the music and accept that something is deeply wrong with people, at least then it makes sense why the world is such a piece of shit lol. I can't believe that doctors and psychologists and all these types of people we're supposed to believe are intelligent, aren't. I'm so angry I fell for the scams and it partially paralyzed me, and ruined my teeth. I'm just so disappointed in this world. I can't talk to anybody anymore. It's just a nightmare. I tell myself it's just the USA but even so I'm fucking stuck here and I was born here and I was tortured here so. There's no way out! :( Be excellent to each other, we are all just walking each other home.

Hi there, 40F, my upper neck vertebra dislocated/tore (i could feel and hear it, it was the scariest thing that's ever happened to me) from the orthodontist moving my jaw to the side which made my entire body go weak and floppy, pins and needles, etc. It's just awful. This was over a year and a half ago, I am still very much disabled.

Just wondering if anyone has been through something similar and come out the other side. Any resources or ideas are welcome. I haven't been able to get anywhere with any doctors, dentists, etc. ive seen very many types of providers. I'm kind of stuck this way since my jaw is on crooked now and constantly pulling wrong. Can't get it back together because my teeth are in the way. Quite a pickle.