r/AFIB

▲ 2 r/AFIB+1 crossposts

Looking to learn

I’m trying to learn everything I can. I have paroxysmal afib for about a year now and have not gone to Er yet however I’ve come close. Seems at first to be triggered by being overmedicated on Synthroid. I’m now on a different med and my thyroid is more under control but seems food is triggering now. I have histamine intolerance and possibly MCAS (thinking based on symptoms but tbd by testing.). I also have crappy genes

. MTHFR C677T +/-
• COMT V158M +/+
. COMT H62H +/+
• VDR Taq +/+
. MAO-A R297R +/+
• MTRR A66G +/+
• BHMT-02 and BHMT-04 +/-

I have episodes maybe twice a month triggered by foods and possibly over exertion the previous day. But foods for sure as Afib starts pretty immediately after trigger foods/meals. Have a Follow-up with cardiologist (not EP as I went to a women’s specialist cardiologist) in March. Previous Echo was fine. So I’m unmanaged and quite lost in what to do. I wonder why people go to er for cardio versions when others live with constant afib? Had one triggered from pizza today for 3 hours. Highest heart rate about 145. Average during the ep was 120-130. Any thoughts are welcomed. Thank you 🙏

reddit.com
u/Miserable_Ad_1877 — 3 days ago
▲ 10 r/AFIB

Has anyone weened off daily Metoprolol Succinate?

(39m) I was diagnosed with afib a year ago, self-converted after four hours and that was my only experience since then. Been taking baby aspirin and 12.5mg of Metoprolol Succinate at night and feel pretty good for the most part. The main issue for me is shortness of breath when exerting myself in the gym or if i do a lot of walking around for the day.

I believe my afib is a result of gut dysbiosis/histamine intolerance leading to malabsorption/nutrient issues that I’ve been battling over the last two years. Magnesium Taurate has been crucial to keep any flutters away. My cardiologist said because I’m on such a low does of Met it would be safe to go off and just use the pill in pocket method. Has anyone had success going off and not getting rapid adrenaline responses?

reddit.com
u/nothingwasnothingis — 3 days ago
▲ 15 r/AFIB

Is having atrial fibrillation scary?

I had myocarditis three months ago which caused extensive scarring. I was able to recover alot though but then I caught covid again (I keep catching bad viruses) and it's affecting my heart again. This morning in bed my heart rate went up to 150 and my heart started making all these weird beats. And I assume that adrenaline was being dumped also as I was super shaking and I was very panicky also.

It was really scary. I am going to go the hospital but I hope that it's not virus/viral Myocarditis triggering A fib because A fib sounds like something scary to have 😭.

I have already been through so much. I had Pulmonary embolism twice too.

reddit.com
u/Affectionate_Top959 — 4 days ago
▲ 5 r/AFIB

Afib at 23

Hey everyone, I’m a 23-year-old male, and I weigh around 188 pounds. Exactly seven days ago, I experienced my first-ever episode of atrial fibrillation (AFib), and honestly, I’ve been scared to death about it ever since.

Last Sunday around 7 p.m., I was sitting at my desk checking emails when, all of a sudden, I felt my heart beating strangely and racing. I decided to go to the ER, where they confirmed that I was in AFib. They started an IV, ran blood work, and transferred me to a cardiac hospital.

After approximately four to four and a half hours in AFib, my heart spontaneously returned to normal sinus rhythm. They drew additional blood samples, but ultimately, I was told they weren’t sure what caused the episode.
I ended up staying overnight at the cardiac hospital and was discharged the following day around noon, after spending approximately 12 hours there.
Since then, I haven’t experienced another episode, and I have an appointment with a cardiologist in about five days.
I also want to mention that I’m probably in the worst shape in my life. Although my weight is fairly reasonable, I’ve barely been moving for the past three months. I haven’t been to the gym or been very active, even though exercise had been a regular part of my life for the previous five years.
I know I’m young, and I’m trying not to overthink everything, but this experience has honestly terrified me. I never expected something like this to happen at 23, and now I find myself constantly worrying about my heart and whether it could happen again.
I guess I’m just looking for some reassurance and hoping to hear from others who have experienced something similar, especially anyone who developed AFib at a young age.

reddit.com
u/Ironmike-1 — 3 days ago
▲ 5 r/AFIB

My afib event last Thursday.

I was home watching tv and I went to get up from the couch and get some water. When I went into afib. I thought ok, no biggie, it should go away any sec.

Up until then I would have these short bursts all my life where my heart did this that never lasted more than a few secs.

Only this wasn't going away. So after 5 mins of this I panicked and drove myself to e.r. which is literally a block away.

I was there for 2hrs where they gave me meds and got my heart rate down. But it was still irregular when I left.

It took about a day for me to get back to feeling normal. What I want to know is. Could food have caused this?

That night I had perogies with turkey sausage and onions. Washed it down with a 20oz of cherry pepsi and then ate 4 pumpkin spice cupcakes.

I'm thinking. Maybe that set it off? I'm also not in the best of shape. But since this episode. It's scared me straight and I'm now gonna eat much better and never have caffeine again.

I'm a alcohol free smoke free 52yr old 6ft 270lb male. That is now on a diet and plan to lose around 100lbs.

I also have a mitral valve prolapse since 16. So I been on antenolol 25mg since then. The doctor there at e.r. changed my prescription to metoprolol tartrate. Which I have already gone back to atenolol cause the metoprolol was giving me hypnick jerk. A condition in which your body jolts you awake the moment you fall asleep.

According to the research I did. Metoprolol can do this.

Now what I want to know is. Am I prone to getting this again? Could this have been a one time thing? Granted I no longer have the same eating habits of course and begin to lose weight and sick to a diet.

And if this is something that will now stick. What are some triggers that I can avoid to make sure it won't happen again?

Thanks for reading and replying.

reddit.com
u/LordHelmet47 — 3 days ago
▲ 4 r/AFIB+1 crossposts

5 weeks post ablation afib/flutter back :(

If you have a small episode of afib/flutter 5 weeks after ablation, does it mean it failed. I am 5 weeks away from my second ablation, my doctor said it was mostly for flutter.
Yesterday I had a really stressful day with construction workers at home, I didn’t really hydrate for couple days before that, and I decided to smoke a bit of hash…..10 min later my mouth started feeling dry and my heart rate started beating….i looked at the Apple Watch ekg for a second, and it looked like it was flutter/afib. Rate was around 120 while sitting….it lasted about 5 min, but it took a lot out of me.
I am just scared that the quality of my life is going to keep getting worse and my flutter will eventually bring my LVEF down again and lead to death.

reddit.com
u/Tasty-Engineering-93 — 10 days ago
▲ 5 r/AFIB

Lower Back Pain Weeks After Ablation

My 79-year-old mother had a mitral valve repair a decade ago that began leaking again about a year and a half ago. She had a 7% mortality rate with surgery (ineligible for the clip so it would be open heart) and the doctors said that's not exactly low risk, so she has decided to just proceed with medication. She was feeling pretty good but did come back as having afib, even though she really had no symptoms of it. She had a cardioversion last October which was going well until the spring, and then she went back into afib. So in July she was recommended for an ablation (still had no symptoms of it though but did it based on recommendation) and had it the first week of August.

When the procedure was over the surgeon told me she was doing well but there was one slight complication which was a possible nick and he said he'd keep her overnight to make sure there was no fluid around the heart. They did a scan that night and then the next morning and released her, presumably after finding no fluid around the heart. I don't know if he meant blood or other fluid, but this is what I recall.

Since then ablation her health has been declining. She recently gained 17 pounds of fluid and was having a difficult time breathing. She has a prescription for Lasix but was not taking it initially for unknown reasons. When she began taking 20 milligrams it did nothing so the cardiologist last week changed it to 40, which is now working to get rid of the excess fluid.

However, she's been having severe left-sided lower back pain for a few weeks but only when she sits or lays. If she's walking or standing, she does not feel it. Two weeks ago the PCP told her she had a UTI so they assumed it was that causing the back pain. She was given an antibiotic prescription but it did not go away. When she saw the cardiologist about the fluid buildup and they upped the lasix, they told her they don't handle UTI or kidney issues, the low back pain is something she needs to go back to her PCP about.

So she went to the PCP yesterday, and he is telling her he thinks it's fluid around the heart built up and she needs to go back to the cardiologist. He didn't even test to see if she still had the UTI or a kidney issue, just asked her what she wanted. She said the pain to stop so he gave her a lidocaine patch prescription and sent her back to the cardiologist, who she will see Monday, but presumably only to check on the fluid drainage issue and possibly schedule another cardioversion. They were trying to wait the three-month blanking period which would be the end of October but said they may do it early if she was not feeling better. Her shortness of breath is better since the fluid has left but the back pain is not. She was supposed to see the ablation surgeon the last week in October and he was going to tell her, once the blanking period was up, whether another cardioversion was needed.

I live out of state and have been driving 14 hours to take her weekly to these appointments, but it's very difficult as she's being sent back and forth from one doctor to the other and nobody knows or even seems interested in finding out what the lower back pain is from. Does anyone think this is possibly the result of the ablation? I did see an old FB post where other people said they had this, although I don't have a FB so I can only read the first few comments and I don't see what the cause is. Atrial Fibrillation Support Forum | Don't suppose anyone else has had crippling lower back pain after an ablation have they | Facebook

Can someone please tell me what would be causing the low back pain issue after an ablation? I can't keep driving all this way to go to appointments where they just tell her to make another appointment, and I'm at a loss of what to do and what is wrong with her. Any advice is appreciated.

reddit.com
u/FleursSauvages322 — 12 days ago
▲ 2 r/AFIB

Question about intervention

Hi folks, TL;dr - if I got a cardioversion would I still move forward with an ablation scheduled for next month? I don’t consider this an emergency, although those of you who haven’t experienced my normal state of being might jump up and go to the hospital.

I’ve had paroxysmal afib and aFlutter on and off for the last several years. No beta blockers due to daily bradycardia. I haven’t been offered any one-time medication like I’ve read about in this sub, but the one the EP talked about would involve a hospital stay and 100% compliance.

I have an ablation scheduled in one month. It’s the zap kind, not the cryo kind.

I’m currently in aFib and I’ve been here on and
off since Thursday night, although I didn’t have my watch on all day Friday (yesterday). Symptoms are palpitations and fatigue. Heart rate range today is 48-149 with basically no physical activity at all.

I’m not worried enough for the E/R, because I get an episode once or twice a day most days, but having a long duration is unusual. But if it keeps up, I might go to urgent care tomorrow.

Here’s my question: - if I got a cardioversion would I still move forward with an ablation scheduled for next month? Would they offer me a “pill in pocket” medication? I really like my cardiologist and the EP is top of his field, but they’re chairs of their respective departments and thus very difficult to schedule. So it’s doubtful I’d get prescribed anything in the next 30 days.

While I typed this, my heart was either at 68-70 bpm or in the 140s, back and forth

reddit.com
u/Economy_Ambassador58 — 11 days ago
▲ 6 r/AFIB

Is this Afib?

Hey everyone,

I’m currently pregnant at 28 weeks and noticed that I have episodes of high heart rate and feeling like my heart is beating so hard and then I’ll be short of breath when it happens. I’ll feel like I’m running but I’m sitting, resting. I had it last pregnancy but thought it was gestational diabetes related, I told my doctor and she said it was unrelated and was probably from the coffee I drank that morning. I still had the episodes but whenever I would tell another woman, they’d say “oh yeah you’ll be short of breath since you’re pregnant” so I just wrote it off as a normal pregnancy symptom.

Anyway, during this pregnancy I noticed it as well and wrote it off as normal for a while as well. One day, my MIL came over and after a few hours of sitting and talking, I have one of these episodes again. I thought it was related to my dinner and maybe I had too many carbs. I started wearing my Apple Watch so I decided to check my heart rate and it was ranging between 110-150 and wouldn’t go below 100 for over 3 hours. My usual resting heart rate during pregnancy has been in the 80s and is in the 70s when I’m not pregnant.

I went to a routine doctors appointment and she told me that if it happens again that I have to go to the ER. Anyway, that night I had another episode when I was just putting my daughters laundry away and I was laying on the floor, I started to feel my heart race and was like “oh no here we go again” so I go to the living room where my husband is to tell him we need to go. My husband then brings out his watch and tells me to put it on to check with the ecg (my watch is an older version and doesn’t have it) and it said Afib and so we immediately went to the ER.

I currently have on a ecg device to monitor my heart for 30 days but I’m just worried and curious I guess. My husband couldn’t find the ecg info when we were in the ER but I found it later in pdf format.

Does this look like Afib?

u/Longjumping_Sand_167 — 11 days ago
▲ 5 r/AFIB

Conjugal fun after ablation?

Of course Hubby who had the ablation was too shy to ask! We’re in our 60’s. He’s had some bruising and mild swelling that seems normal. Any advice would be most welcome! Thank you!

reddit.com
u/momamil — 11 days ago